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Education and Training in Autism and Developmental Disabilities

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<strong>in</strong>volves a bias <strong>and</strong> represents miss<strong>in</strong>g <strong>in</strong>formation<br />

from studies selected.<br />

These various reasons can expla<strong>in</strong> such variations.<br />

However, changes <strong>in</strong> people’s condition<br />

are not only attributable to the fact of<br />

be<strong>in</strong>g transferred from an <strong>in</strong>stitution towards<br />

<strong>in</strong>tegrated services offered <strong>in</strong> the community.<br />

The nature of services offered <strong>in</strong> their social<br />

environment also plays a determ<strong>in</strong><strong>in</strong>g role.<br />

With the exception of residential facilities, all<br />

other services are not well described <strong>in</strong> the<br />

scientific literature.<br />

Such <strong>in</strong>formation might well expla<strong>in</strong> the<br />

differences observed. In our study, the presence<br />

of a mobile team composed of educational<br />

counsellors especially tra<strong>in</strong>ed to ensure<br />

the cl<strong>in</strong>ical follow-up of each person present<strong>in</strong>g<br />

behavioral difficulties or mental health<br />

problems can expla<strong>in</strong>, partly, the improvement<br />

noted <strong>in</strong> behaviors of person or, at least,<br />

the absence of deterioration. Their support<br />

role with staff from the different residential<br />

resources <strong>and</strong> from the daycare centers, their<br />

collaboration with the health department,<br />

their will<strong>in</strong>gness to promote <strong>in</strong>terventions<br />

based on pr<strong>in</strong>ciples related to a positive approach<br />

(Fraser & Labbé, 1993; Kroegel, Kroegel,<br />

& Dunlap, 1996) comb<strong>in</strong>ed with a pharmacological<br />

<strong>in</strong>tervention, might expla<strong>in</strong> some<br />

of the positive results of our study.<br />

Follow<strong>in</strong>g exit from the <strong>in</strong>stitution, an <strong>in</strong>crease<br />

<strong>in</strong> medication also was noted. More<br />

precisely, this <strong>in</strong>crease is related to a rise <strong>in</strong><br />

the number of people to whom drugs were<br />

prescribed (nerve sedatives or anxiolytic) or<br />

<strong>in</strong> the posology taken, <strong>in</strong> some <strong>in</strong>stances. However,<br />

the nerve sedative family medication rema<strong>in</strong>s<br />

stable or decreases for 59.4% of <strong>in</strong>dividuals.<br />

For medication <strong>in</strong> the anxiolytic<br />

family, this percentage is calculated at 86%.<br />

This medication contributed to improvements<br />

<strong>in</strong> people’s condition, as proved by the statistical<br />

<strong>in</strong>verse significant relation revealed between<br />

medication <strong>and</strong> results obta<strong>in</strong>ed on the<br />

behavioral problems component of the ÉQCA<br />

<strong>and</strong> on the aggressiveness component of the<br />

Reiss Screen for Maladaptive Behavior scale.<br />

To this medication component, the analysis<br />

of studies undertaken elsewhere revealed<br />

quite variable results. Some recorded an <strong>in</strong>crease<br />

<strong>in</strong> psychotropic medication (Conroy,<br />

1996; Hill, Balow, & Bru<strong>in</strong><strong>in</strong>ks, 1985; Intagliata<br />

& R<strong>in</strong>ck, 1985). These studies’ f<strong>in</strong>d<strong>in</strong>gs<br />

are consistent with those related by Spreat et<br />

al. (2004). These authors compared the evolution<br />

of percentages of people tak<strong>in</strong>g drugs<br />

accord<strong>in</strong>g to whether they lived <strong>in</strong> <strong>in</strong>stitutions<br />

(n 279) or were de<strong>in</strong>stitutionalized (n <br />

167) between 1994 <strong>and</strong> 2000. The <strong>in</strong>crease <strong>in</strong><br />

the percentage of people tak<strong>in</strong>g drugs of various<br />

categories (anxiolytic, antidepressants<br />

<strong>and</strong> atypical antipsychotic) was higher than<br />

that observed <strong>in</strong> people that rema<strong>in</strong>ed <strong>in</strong> <strong>in</strong>stitutions.<br />

In 2000, 41.3% of <strong>in</strong>tegrated people<br />

took psychotropic medication. This percentage<br />

decreased to 30.5% for those who rema<strong>in</strong>ed<br />

<strong>in</strong> <strong>in</strong>stitution, a percentage which is<br />

even lower than that revealed <strong>in</strong> a study conducted<br />

<strong>in</strong> Oklahoma <strong>in</strong> 2000, which considered<br />

the entire population selected. Effectively,<br />

34% of the 3 187 <strong>in</strong>dividuals evaluated<br />

took at least one type of psychotropic drug.<br />

Other studies have not mentioned any<br />

change. Th<strong>in</strong>n, Clarke <strong>and</strong> Corbett (1990) did<br />

not f<strong>in</strong>d any difference between the medication<br />

taken two years before the exit <strong>and</strong> six<br />

months after for 34 <strong>in</strong>dividuals. In a recent<br />

Norwegian study <strong>in</strong>terested <strong>in</strong> the medication<br />

of 109 people (Nøttestad & L<strong>in</strong>aker, 2003), no<br />

significant change was observed after eight<br />

years for the nerve sedative consumption. As<br />

mentioned earlier, Nøttestad <strong>and</strong> L<strong>in</strong>aker<br />

(1999) observed deterioration <strong>in</strong> maladaptive<br />

behaviors for this same group of people. In a<br />

comparative study <strong>in</strong>terested <strong>in</strong> the difference<br />

between medication taken accord<strong>in</strong>g to the<br />

residential medium where 873 participants<br />

lived, McGillivray <strong>and</strong> McCabe (2005) recognized<br />

that the transfer <strong>in</strong> the community can<br />

be associated with an improvement of people’s<br />

liv<strong>in</strong>g conditions but that such a change<br />

is not necessarily accompanied by a reduction<br />

<strong>in</strong> medication. In their study, they did not<br />

observe any difference between consumption<br />

<strong>in</strong> <strong>in</strong>stitutions or <strong>in</strong> the community.<br />

Conclusion<br />

The present study tracked the evolution of<br />

various <strong>in</strong>dicators for <strong>in</strong>dividuals with <strong>in</strong>tellectual<br />

disabilities follow<strong>in</strong>g their departure from<br />

an <strong>in</strong>stitution. In this perspective, the tendencies<br />

related to deteriorations or improvements<br />

observed <strong>in</strong> certa<strong>in</strong> people’s evolution, <strong>and</strong><br />

revealed by our analysis, were then transmitted<br />

to counsellors <strong>in</strong> annual meet<strong>in</strong>gs. This<br />

De<strong>in</strong>stitutionalisation <strong>and</strong> Adaptation / 375

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