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Education and Training in Autism and Developmental Disabilities

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ways <strong>in</strong> the same <strong>in</strong>terviews where statements<br />

reflect<strong>in</strong>g limited actions that could be characterized<br />

as family-centered. Examples of<br />

these language-action contradictions are<br />

given by two respondents:<br />

R: I th<strong>in</strong>k the parents should be able to list<br />

out exactly what they would like to see their<br />

child achieve, whether it is personal goals.<br />

You know, basically lay it out <strong>in</strong> lists they can<br />

give to the teacher that really help them<br />

know the student as the child, as a personal<br />

<strong>in</strong>dividual. . . . I don’t know what else the<br />

parents would provide.<br />

The second example of a contradiction <strong>in</strong>volves<br />

the professional speak<strong>in</strong>g <strong>in</strong> a familycentered<br />

manner about communication notebooks<br />

be<strong>in</strong>g sent home to families. Dur<strong>in</strong>g the<br />

same <strong>in</strong>terview, the respondent made this<br />

comment: “R: The other kid I work with, his<br />

mom is <strong>in</strong> due process, so I try to be as vague<br />

as possible because I don’t want th<strong>in</strong>gs used<br />

aga<strong>in</strong>st us . . .”<br />

Goldilocks Perception<br />

We refer to the second theme as the “Goldilocks<br />

perception” because it appeared the<br />

professionals who participated <strong>in</strong> the study<br />

had very specific ideas regard<strong>in</strong>g the “just<br />

right” amount of <strong>in</strong>volvement <strong>in</strong> which they<br />

believed was appropriate for parents. They<br />

noted def<strong>in</strong>ite l<strong>in</strong>es that parents might cross,<br />

result<strong>in</strong>g <strong>in</strong> too much <strong>in</strong>volvement. However,<br />

they also described cases <strong>in</strong> which they believed<br />

parents were not <strong>in</strong>volved enough.<br />

From their po<strong>in</strong>t of view, parents had only a<br />

narrow w<strong>in</strong>dow of <strong>in</strong>volvement that might be<br />

considered “just right.”<br />

Too much <strong>in</strong>volvement. If a parent crossed<br />

over <strong>in</strong>to the professionals’ area of expertise,<br />

that parent was often considered “too <strong>in</strong>volved.”<br />

This sub-theme of too much <strong>in</strong>volvement<br />

<strong>in</strong>cluded both amount <strong>and</strong> an unwanted<br />

type of <strong>in</strong>volvement. In some cases, professionals<br />

were frustrated when a parent entered the<br />

academic realm or frequently questioned<br />

what they did. The follow<strong>in</strong>g comments suggest<br />

that professionals may be threatened by<br />

parents who participate to the extent of acquir<strong>in</strong>g<br />

expertise about <strong>in</strong>terventions for their<br />

child:<br />

R: She’s up there all the time want<strong>in</strong>g to<br />

know . . . well why haven’t you worked on<br />

this. And his therapist says he needs to be<br />

do<strong>in</strong>g this, <strong>and</strong> why haven’t you been do<strong>in</strong>g<br />

this, <strong>and</strong> why haven’t [you been do<strong>in</strong>g that]<br />

. . . So it seems like we are bend<strong>in</strong>g over<br />

[backwards]. Like I’ve ordered several<br />

books just to make this parent happy just so<br />

I can be like, look I am do<strong>in</strong>g research on<br />

this, you know. And a lot of times the parents<br />

will go to the Board. So we’ve always<br />

got to watch our back . . .<br />

R: They might read someth<strong>in</strong>g com<strong>in</strong>g out<br />

<strong>in</strong> a journal <strong>and</strong> why aren’t you do<strong>in</strong>g that<br />

for my child? And then you’re like, Holy<br />

cow, I have eight years of experience, <strong>and</strong> I<br />

keep up on that too. Let me do my job!<br />

They are mak<strong>in</strong>g progress. This is what<br />

we’re do<strong>in</strong>g.<br />

Some respondents thought that parents’ <strong>in</strong>volvement<br />

meant that the parent did not trust<br />

them to do their jobs.<br />

I: Do you th<strong>in</strong>k there is such th<strong>in</strong>g as be<strong>in</strong>g<br />

too <strong>in</strong>volved?<br />

R: Yes! Def<strong>in</strong>itely I do! Like earlier, work<strong>in</strong>g<br />

as a team, not say<strong>in</strong>g I’m the expert; you’re<br />

not. I th<strong>in</strong>k some parents won’t trust the<br />

teacher, so they’ll want to be there for everyth<strong>in</strong>g,<br />

be <strong>in</strong>volved for everyth<strong>in</strong>g, every<br />

decision.<br />

R: I th<strong>in</strong>k it is great when families are very<br />

<strong>in</strong>volved–as long as they aren’t totally runn<strong>in</strong>g<br />

the show. And I have seen that happen<br />

where they try to do that, <strong>and</strong> it doesn’t<br />

work . . . they become a big pa<strong>in</strong> . . . it’s a<br />

subtle message that maybe you’re not competent<br />

enough . . .<br />

Too little <strong>in</strong>volvement. Though participants<br />

<strong>in</strong> this study were specific about too much<br />

<strong>in</strong>volvement, they also expressed frustration<br />

when families had too little <strong>in</strong>volvement. Parents<br />

were considered “to have too little <strong>in</strong>volvement<br />

when they chose to not participate<br />

<strong>in</strong> activities or did not see the same value <strong>in</strong><br />

the activities the professionals deemed important.<br />

One participant expressed this idea<br />

when she said: “Here’s what you can do to<br />

address these at home, <strong>and</strong> then they don’t<br />

follow through. I ask the girl, <strong>and</strong> she is pretty<br />

reliable, <strong>and</strong> she wouldn’t lie, <strong>and</strong> I ask “Have<br />

you done this with mom?” “No.”<br />

360 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-September 2010

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