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Reflections on sight loss - RNIB

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Talking point<br />

available, ranges from peer-to-peer<br />

communicati<strong>on</strong>, such as <strong>RNIB</strong>’s Talk and<br />

Support teleph<strong>on</strong>e-based befriending service,<br />

to counselling services and <strong>on</strong>e-to-<strong>on</strong>e<br />

psychotherapeutic interventi<strong>on</strong>s, although<br />

these are rare.<br />

Services that are proving successful include a<br />

pilot project at Cam Sight, the local society<br />

working with blind and partially <strong>sight</strong>ed<br />

people in Cambridgeshire, where informal <strong>on</strong>eto-<strong>on</strong>e<br />

emoti<strong>on</strong>al support is offered by<br />

some<strong>on</strong>e who has completed basic training in<br />

counselling skills. More formally, <strong>RNIB</strong> has<br />

counsellors working with clients at low visi<strong>on</strong><br />

centres in L<strong>on</strong>d<strong>on</strong> and in Gateshead.<br />

“We are evaluating the benefits of counselling<br />

al<strong>on</strong>gside rehabilitati<strong>on</strong> and low <strong>sight</strong> services<br />

at these two sites”, explains Norowzian,<br />

adding: “These are specialist services in the<br />

<strong>sight</strong> <strong>loss</strong> sector. Clients report that they are<br />

more meaningful than services from<br />

counsellors who do not have experience of<br />

<strong>sight</strong> <strong>loss</strong>.”<br />

Presenting the evidence<br />

Gathering evidence to support a bid for<br />

specialist provisi<strong>on</strong> within the Nati<strong>on</strong>al Health<br />

Service is no small task, requiring commitment<br />

from a number of organisati<strong>on</strong>s, including the<br />

Visi<strong>on</strong> Impairment Network for Counselling<br />

and Emoti<strong>on</strong>al Support (VINCE) and <strong>RNIB</strong>.<br />

One counselling service that suggests a body<br />

of positive evidence can be gathered is an<br />

<strong>RNIB</strong> service in Bristol that offers counselling<br />

as an outreach service to blind and partially<br />

<strong>sight</strong>ed people, both in their homes and at a<br />

centre in the city. Sue Dale, head of the<br />

service from 2005 to 2008, explains: “We had<br />

a very enthusiastic resp<strong>on</strong>se to the service.<br />

Diagnosis and registrati<strong>on</strong> as blind or partially<br />

<strong>sight</strong>ed is a traumatic moment that triggers<br />

the need to talk to people outside the family<br />

and friends group. We provided a space in<br />

which we could just listen or offer more active<br />

counselling.”<br />

Dale is herself partially <strong>sight</strong>ed and worked<br />

with another <strong>sight</strong> impaired counsellor and<br />

two <strong>sight</strong>ed counsellors. She says clients often<br />

found her visual impairment helpful as they<br />

shared a similar world and wanted to talk to a<br />

counsellor who understood <strong>sight</strong> <strong>loss</strong>. In<br />

surveys of her work, some 96 per cent of<br />

clients achieved significant beneficial change,<br />

while feedback from individuals in a<br />

qualitative study stated that the service was<br />

“invaluable”, and “a lifesaver”.<br />

Structuring support – a new model<br />

The Guide Dogs for the Blind Associati<strong>on</strong> is<br />

also working to build the evidence. Its Middle<br />

Step project is designed to offer help and<br />

informati<strong>on</strong> as so<strong>on</strong> as possible after a<br />

diagnosis. Initially, 10 pilot sites were set up<br />

to discover whether a relatively structured<br />

package of emoti<strong>on</strong>al support and trained<br />

pers<strong>on</strong>nel could help people. These sites,<br />

which essentially offered group peer-to-peer<br />

work and introducti<strong>on</strong>s to useful services, ➜<br />

13

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