Caregiver Support and Well-Being Priority Project - Central East ...

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5 CCAC provides funded caregiver relief/in-home respite based on individual client needs, identifiedthrough a case management assessment, and as part of the personal support services provided tothe client.Short Stay Bed:1 There are 32 long term care facilities that provide 61 short stay beds in the Central East LHIN.2 The wait time for short stay beds differs throughout the LHIN.3 Between April 2008 and September 2008 there were 845 short stay respite admissions with anaverage length of stay of 14.5 days.4 Long term care homes have to apply to the LHIN to have short stay respite beds.5 The additional administrative work which accompanies short stay beds leaves little incentive for longterm care homes to take a short stay bed.6 Many caregivers are not aware of the option of short stay respite.RecommendationsAdult Day Programs:CE LHIN Recommendations:1. Standardize and simplify the admission process to Adult Day Programs across the CE LHIN.2. Establish and implement standard admission timelines to accelerate the admittance to Adult DayPrograms.3. Initiate targeted communication to Primary Care, Community Support Service agencies and to thoseworking with caregivers, to ensure awareness of Adult Day Programs and Short Stay Respite.4. Review the demand and supply for Adult Day Programs and ensure equitable access across the CELHIN.5. Review the various cost structures for Adult Day Programs across the LHIN (including transportation)to better understand the implications for access.In home Respite:CE LHIN Recommendations:1. Fund more subsidized in-home respite throughout underserviced areas of the CE LHIN.2. Establish and implement a common assessment tool for the Community Support Services providingpaid respite (i.e. InterRAI CHA (Community Home Assessment form)).3. Explore self-directed funding options that would assist caregivers in paying for in-home respite, dayprograms or other support costs and allow them the flexibility to spend the funds on what they needmost.Short Stay Respite:CE LHIN Recommendations:1. Simplify the admission process for short stay beds.2. Explore alternate areas for funded respite (i.e. retirement homes, supportive housing).3. Advocate for the following provincial recommendation.18
Provincial Recommendations:1. Provide additional incentives to Long-Term Care Homes to have short stay respite beds.General Respite Recommendations:1 Separate the eligibility for respite for caregivers from the need for services for care receivers. xliInformation and EducationDefinitionAccess to information and training programs and educational opportunities assists and enablescaregivers in their caregiving role.Components• Self Management:Education programs which provide strategies and insights into self-management encourage peoplewith chronic illness and their caregivers to improve their own health.• Care giving Skills:Opportunities to provide information and education to help caregivers develop the skills they need tofeel confident and safe in their caregiving roles.• Resources:Caregivers have opportunities to access strategies, tools, services and/or programs that supportthem.• Self Navigation Skills:Information and education is available to help caregivers identify access, utilize and coordinateappropriate resources.• Wellness and Health:Caregivers are provided with opportunities to take care of their own health.Findings1. The amount of information that caregivers need varies at each stage of the health care continuum.2. Caregivers need information and educational opportunities to develop the skills needed to be acaregiver.3. Caregivers need information and educational opportunities on how to care for themselves.4. Caregivers are asking for a simple system of finding information and educational supportopportunities.5. Useable information and educational opportunities and resources on care giving are not alwaysavailable to the culturally diverse population.6. Useable information and educational opportunities and resources on care giving are not alwaysavailable to those with hearing and sight impairments.7. Employed caregivers need information and educational opportunities to prepare them and/or supportthem in their caregiving roles.RecommendationsCE LHIN Recommendations:1. Mandate regular education and training for service providers to assist them in communicating withcaregivers and understand their needs.19
Page 1 and 2: Caregiver Support andWell-Being Pri
Page 3 and 4: ACKNOWLEDGEMENTSMany thanks to the
Page 5 and 6: The “Defining” group identified
Page 7 and 8: • Mandate regular education and t
Page 9 and 10: • Caregivers provide the invisibl
Page 11 and 12: INFORMATION-GATHERING PROCESSIn ord
Page 13 and 14: Data CollectionData was also collec
Page 15 and 16: FindingsSources include caregivers,
Page 17: RespiteDefinitionRespite is the pro
Page 21 and 22: Findings1. In order to keep a loved
Page 23 and 24: Provincial Recommendations:1. Advoc
Page 25 and 26: CAREGIVER SUPPORT MODELPlanning Fra
Page 27 and 28: This accountability includes:a) A c
Page 29 and 30: Caregiver Support Component ChartTh
Page 31 and 32: Central East Caregiver Support Cent
Page 33 and 34: Zone Specific Advisory GroupsZone-s
Page 35 and 36: Volunteers:Supportive interaction -
Page 37 and 38: Caregivers’ contributions need to
Page 39 and 40: Appendix 1Project Team NameCaregive
Page 41 and 42: Collaboratives: Durham East Collabo
Page 43 and 44: • Whether or not particular famil
Page 45 and 46: consumers, caregivers and service p
Page 47 and 48: Goals, Objectives & Performance Mea
Page 53 and 54: Project CostsFiscal Yr:08-09Fiscal
Page 55 and 56: Project TeamTeam Member,Organizatio
Page 57 and 58: Project/InitiativeInterdependency &
Page 59 and 60: Project RisksThreat:Risk Likelihood
Page 61 and 62: VON Canada. (2005). VON Canada Care
Page 63 and 64: Appendix 4Caregiver Support and Wel
Page 65 and 66: Appendix 5Community Engagement Surv
Page 67 and 68: • Somewhere to go where I can get
Page 69 and 70:
week for personal care. I live over
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1. Indicate using point form the su
Page 73 and 74:
7. Identify some opportunities for
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• Please add accessibility under
Page 77:
• More community awareness of CEC
Page 80 and 81:
ReferencesCompensation of Caregiver
Page 82 and 83:
U.S.National Family Caregiver Suppo
Page 84:
xxx MOHLTC, February 2009, Caring a
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