Caregiver Support and Well-Being Priority Project - Central East ...

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Proposed programs and services:• Education/ information sessions• Elder abuse information and linkages• Mind and wellness counselling/training• System navigation assistance including linkages to the broader health care system• Community outreach• Telephone line• Caregiver symposium.Goal: to generate 1,200 face to face visits and 1,500 telephone interactions.This initiative will also track the number and type of referrals from health and social service providers.Summary:A patient is discharged from the “formal” health care system, disappears from the accounting system andvanishes from the statistics of policies and practices horizon, but the cost has not gone away; it hassimply been shifted to the family. You can measure the cost of tangible equipment and hospital beds buthow do you measure the “cost” of countless hours spent with the care receiver, the inflexibility of havingto be “always there”? What is the cost in terms of time not spent with other loved ones, emotional andfamily instability? What is the personal cost of isolation, lack of confidence, lack of respect or fear? Whatis the toll of financial insecurity?The more families and friends in the Central East LHIN, and throughout Ontario, are required to do tosupport the health and well being of their loved ones, the more supports and assistance the Central EastLHIN and the Province of Ontario must provide for these caregivers so that they have the capacity tomeet the challenges, the emotional strength to “weather the storms” and the financial security to maintainquality of life.“On one side you have highly trained, highly paid, highly specialized, highly regulated, and highlyrespected. On the other you have caregivers with no formal training, who learn on the job, have noorganization that represents them, no pay, no benefits, no support, and no regulations and areusually under-appreciated. If all informal caregivers booked off sick, the entire long-term care, ifnot the entire health system would collapse.” lxivCaregivers remain silent and invisible because they are generally too busy giving care to protest. If theemphasis is placed on keeping people out of institutions and caring for them at home, caregivers mustbecome a more recognized entity, provided with useable supports within the health care system. If propersupports are not placed with those caring for individuals in the home now, the result may be even greaterdemands on the system from burned out, ailing caregivers in the future.Caregivers have needs independent from the care receiver, yet, in most cases, the programs, theservices, the funding, the information and the education are all directly connected to the needs of the carerecipient. While some organizations fully acknowledge the caregiver as a full partner with the carereceiver in the provision of services, there may not be the resources available to support the caregiver.Caregivers need a useable system to access information and educational opportunities. They need asingle point of access to find support and information. They need abundant opportunities for adequaterespite and they need financial compensation to remain viable in their care giving roles.36
Caregivers’ contributions need to be recognized and their input needs to be valued. Their contributionsare enormous in their output of physical work, in their emotional support of those in their care and in theirrole in sustaining the economic health of the system, the province and the tax payer.In a health care system which places emphasis on providing care at home, there must be a commitmentto the people who provide that care at home and provisions in place to ensure that they are adequatelyacknowledged and supported.Ensuring that there are enough caregivers to attend to an aging population with compassion, confidenceand quality care will be one of the biggest challenges ever faced by our society and our health caresystem. How successfully we meet that challenge depends on the care giving support decisions we maketoday and on the care giving actions we begin today in preparation for tomorrow.37
Page 1 and 2: Caregiver Support andWell-Being Pri
Page 3 and 4: ACKNOWLEDGEMENTSMany thanks to the
Page 5 and 6: The “Defining” group identified
Page 7 and 8: • Mandate regular education and t
Page 9 and 10: • Caregivers provide the invisibl
Page 11 and 12: INFORMATION-GATHERING PROCESSIn ord
Page 13 and 14: Data CollectionData was also collec
Page 15 and 16: FindingsSources include caregivers,
Page 17 and 18: RespiteDefinitionRespite is the pro
Page 19 and 20: Provincial Recommendations:1. Provi
Page 21 and 22: Findings1. In order to keep a loved
Page 23 and 24: Provincial Recommendations:1. Advoc
Page 25 and 26: CAREGIVER SUPPORT MODELPlanning Fra
Page 27 and 28: This accountability includes:a) A c
Page 29 and 30: Caregiver Support Component ChartTh
Page 31 and 32: Central East Caregiver Support Cent
Page 33 and 34: Zone Specific Advisory GroupsZone-s
Page 35: Volunteers:Supportive interaction -
Page 39 and 40: Appendix 1Project Team NameCaregive
Page 41 and 42: Collaboratives: Durham East Collabo
Page 43 and 44: • Whether or not particular famil
Page 45 and 46: consumers, caregivers and service p
Page 47 and 48: Goals, Objectives & Performance Mea
Page 53 and 54: Project CostsFiscal Yr:08-09Fiscal
Page 55 and 56: Project TeamTeam Member,Organizatio
Page 57 and 58: Project/InitiativeInterdependency &
Page 59 and 60: Project RisksThreat:Risk Likelihood
Page 61 and 62: VON Canada. (2005). VON Canada Care
Page 63 and 64: Appendix 4Caregiver Support and Wel
Page 65 and 66: Appendix 5Community Engagement Surv
Page 67 and 68: • Somewhere to go where I can get
Page 69 and 70: week for personal care. I live over
Page 71 and 72: 1. Indicate using point form the su
Page 73 and 74: 7. Identify some opportunities for
Page 75 and 76: • Please add accessibility under
Page 77: • More community awareness of CEC
Page 80 and 81: ReferencesCompensation of Caregiver
Page 82 and 83: U.S.National Family Caregiver Suppo
Page 84: xxx MOHLTC, February 2009, Caring a

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