Caregiver Support and Well-Being Priority Project - Central East ...

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ReferencesCompensation of CaregiversWhetten-Goldstein, K., F. Sloan, et al. (1997). "The burden of Parkinson's disease on society, family, andthe individual."Journal of the American Geriatrics Society 45(7): 844-9.O'Shea, E. (2003). "Costs and consequences for the carers of people with dementia in Ireland." Dementia2(2): 201-19.Doron, I. and G. Linchitz (2004). "The work versus eldercare dilemma and the law: an Israeli example."Ethics, Law, and Aging Review: 10 109-124Struthers, J. (2007). ""They suffered with us and should be compensated": entitling caregivers ofCanada's veterans."Canadian Journal on Aging 26 Supplement 1: 117-31.White, S and Keefe, J.,(2005) Paying Caregivers, Briefing Paper – Canadian Caregiver CoalitionGibson, M and Houser, N (2007) Valuing the Invaluable: A New Look at the Economic Value of FamilyCaregiving, Research Report.Social PolicyHours Spent Providing Unpaid Care or Assistance to Seniors (7), Age Groups (7) and Sex (3) forPopulation 15 Years and Over, for Canada, Provinces, Territories, Census Metropolitan Areas andCensus Agglomerations, 1996 and 2001 Censuses - 20% Sample DataStobart, Susan (2004), Looking after seniors: who does what for whomCanadian Social Trends,Feinberg, L ., Newman, S., Fox-Grage, W., (2005) , Family Caregiver Support Services: SustainingUnpaid Family and Friends in a Time of Public Fiscal Constraint,National Center on Caregiving at theFamily Caregiver AllianceHuvane, K. and K. Huvane "Points of care. As the home care industry continues to expand, technologymust connect caregivers to home base." Healthcare Informatics 25(5): 34Levy, M. M. and M. M. Levy "Caring for the caregiver." Critical Care Clinics 20(3): 541-7.King, T. (1993). "The experiences of midlife daughters who are caregivers for their mothers." Health Carefor Women International 14(5): 419-26Lindsey Davis, L. (1997). Family conflicts around dementia home-care, Families, Systems, & Health Vol15(1) Spr 1997, 85-98.Lieberman, M. A. and L. Fisher (1999). "The effects of family conflict resolution and decision making onthe provision of help for an elder with Alzheimer's disease." Gerontologist 39(2): 159-66Kinsella, A. (2000). "Becoming a virtual caregiver." Caring 19(1): 36-7.Mahoney, D. M., B. Tarlow, et al. (2001). "Factors affecting the use of a telephone-based intervention forcaregivers of people with Alzheimer's disease." Journal of Telemedicine & Telecare 7(3): 139-48.80
Grant, J. S., T. R. Elliott, et al. (2002). "Telephone intervention with family caregivers of stroke survivorsafter rehabilitation." Stroke 33(8): 2060-5Yaffe, M. J. and J. Klvana (2002). "Physician perspectives on the elderly patient-family caregiverphysicianencounter.[see comment]." Israel Medical Association Journal: Imaj 4(10): 785-9.Friedman, E. H. (2003). "Re: Telephone intervention with family caregivers of stroke survivors afterrehabilitation.[comment]." Stroke 34(1): 7-8; author reply 7-8Mahoney, D. F., B. J. Tarlow, et al. (2003). "Effects of an automated telephone support system oncaregiver burden and anxiety: findings from the REACH for TLC intervention study." Gerontologist 43(4):556-67.Keaton, L., V. Steiner, et al. (2004). "An E-rehabilitation team helps caregivers deal with stroke." InternetJournal of Allied Health Sciences & Practice 2(4): 17p.Pierce, L. L., V. Steiner, et al. (2004). "Caregivers dealing with stroke pull together and feel connected."Journal of Neuroscience Nursing 36(1): 32-9.Robison, J., L. Curry, et al. (2007). "Partners in caregiving in a special care environment: cooperativecommunication between staff and families on dementia units." Gerontologist 47(4): 504-15.Models of CareCameron, J., Gignac, M., (2008) Timing it Right, A conceptual framework for addressing the supportneeds of family caregivers to stroke survivors from the hospital to home. Patient Education andCounselling pg 305-314,Elsevier, Ireland LtdWebsitesAustraliaCarers Australiahttp://www.carersaustralia.com.au/index.php?option=content&task=view&id=73Commonwealth Carer Resource CentresAustralian Government: Department of Health and Ageinghttp://www.health.gov.au/internet/main/publishing.nsf/Content/ageing-carers-resocent.htmCanadaBritish Columbia Ministry of Healthhttp://www.healthservices.gov.bc.ca/hcc/infoline.htmlCanadian Caregiver Coalitionwww.ccc-ccan.caCarering Voicehttp://www.bienvieillir-vitalaging.com/caregivers/index.html81
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Caregiver Support andWell-Being Pri
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ACKNOWLEDGEMENTSMany thanks to the
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The “Defining” group identified
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• Mandate regular education and t
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• Caregivers provide the invisibl
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INFORMATION-GATHERING PROCESSIn ord
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Data CollectionData was also collec
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FindingsSources include caregivers,
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RespiteDefinitionRespite is the pro
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Provincial Recommendations:1. Provi
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Findings1. In order to keep a loved
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Provincial Recommendations:1. Advoc
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CAREGIVER SUPPORT MODELPlanning Fra
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This accountability includes:a) A c
Page 29 and 30: Caregiver Support Component ChartTh
Page 31 and 32: Central East Caregiver Support Cent
Page 33 and 34: Zone Specific Advisory GroupsZone-s
Page 35 and 36: Volunteers:Supportive interaction -
Page 37 and 38: Caregivers’ contributions need to
Page 39 and 40: Appendix 1Project Team NameCaregive
Page 41 and 42: Collaboratives: Durham East Collabo
Page 43 and 44: • Whether or not particular famil
Page 45 and 46: consumers, caregivers and service p
Page 47 and 48: Goals, Objectives & Performance Mea
Page 53 and 54: Project CostsFiscal Yr:08-09Fiscal
Page 55 and 56: Project TeamTeam Member,Organizatio
Page 57 and 58: Project/InitiativeInterdependency &
Page 59 and 60: Project RisksThreat:Risk Likelihood
Page 61 and 62: VON Canada. (2005). VON Canada Care
Page 63 and 64: Appendix 4Caregiver Support and Wel
Page 65 and 66: Appendix 5Community Engagement Surv
Page 67 and 68: • Somewhere to go where I can get
Page 69 and 70: week for personal care. I live over
Page 71 and 72: 1. Indicate using point form the su
Page 73 and 74: 7. Identify some opportunities for
Page 75 and 76: • Please add accessibility under
Page 77: • More community awareness of CEC
Page 82 and 83: U.S.National Family Caregiver Suppo
Page 84: xxx MOHLTC, February 2009, Caring a
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