Caregiver Support and Well-Being Priority Project - Central East ...

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Service Delivery ModelMany countries provide examples of managing the needs of caregivers through a network ofindependently managed Caregiver Support Centres. These centres have a “one stop shop” approach,offering assistance to address the support components outlined in this report - Recognition, CopingSupport, Information and Education, Daily Living Support, Links to Financial and Legal Support and CarePlanning. A Caregiver Support Centre network would lead to expanding communication networks andincreased opportunities to connect to caregivers (i.e. telephone support lines, website, navigationalsupport or face to face interaction). These support centres offer access to information, support, andeducation for any type of caregiving situation.The following are examples of centralized networks of supports, found through the project’s literaturereview of best practices.• The CUSS Cavendish Caregiver Centre in Montreal Quebec offers direct and easy access to servicesand flexible and varied types of responses; this Centre encourages the active participation ofcaregivers in its operation, decision-making process and in a wide variety of activities. lv• The Saskatoon Caregiver Information Centre is a project of the Saskatoon Council on Aging Inc.Funded by “Population Health Fund” from Health Canada, the centre is a “one stop” information andsupport centre. This centre offers information, navigational support, referral to services, a telephoneinformation line, and social and emotional support. lvi• Through the Year 1 Aging at Home funding with the Hamilton Niagara Haldiman Brant LHIN,Haldiman Abilities Centre is investigating the concept of a centralized “hub” of resources to supportclients and caregivers within the community. lvii• The Calgary Family Caregiver Centre, an initiative of the Calgary Health Region in partnership withthe Calgary Health Trust, opened in February 2000, in response to the need for a coordinated sourceof information, education and support to enable caregivers in their caregiving role. lviii• The Family Caregiver Network Centre of BC is a not-for-profit society established in 1989 whosemission is to inform, support and educate on issues of concern to family caregivers. FCNC isgoverned by a volunteer Board of Trustees, 60% of who are or have been family caregiversthemselves. lix• Veterans Independence program in Canada is designed to assist veteran clients and their caregiversto remain healthy and independent in their own homes and communities. Support and assistance isprovided through a website, a telephone support line and a variety of office support centre locations. lx• The state of California has a system of regionally based Caregiver Support Centres which receiveoperational funding from the California Department of Mental Health. These non-profit organizationsare authorized under state law (reference) to provide a single point of entry for support services forcaregivers. The services offered include navigational information and support, resource educationand information, counselling and emotional support. lxi• In the United Kingdom, the Princess Royal Trust for Carers has developed a network of 144independently managed Carer Centres. Along with interactive websites, this network provides supportto over 350,000 annually. lxii• Carers Australia is a nationally funded organization which operates 8 Carer Resource Centresthroughout the states of Australia. These centres are a single point of contact to enable carers to findsupport. lxiii30
Central East Caregiver Support Centre Service ModelThe service model illustrates a structure of service delivery: what to deliver and how to deliver it. Thismodel outlines the key components which are necessary in order to improve and enhance supports forcaregivers within the Central East LHIN.PlanningPlanningCollaborativesCentral East CaregiverSupportSteering CommitteeCollaborativesPlanningZoneSpecificCaregiverSupportZoneSpecificCaregiverSupportZoneSpecificCaregiverSupportCaregiver supportCentral Coordination SiteRecognitionCoping SupportRespiteInfo /EducationDaily Living SupportsFinancial/LegalCare PlanningZoneSpecificCaregiverSupportZoneSpecificCaregiverSupportZoneSpecificCaregiverSupportPlanningCollaborativesZoneSpecificCaregiverSupportZoneSpecificCaregiverSupportCollaborativesCentral East Caregiver Support Steering CommitteeThe Steering Committee:• Has a membership of 14, comprised of a CE LHIN representative, caregivers (at least 50%) andservice providers from representation across the CE LHIN.• It is the first point of contact for the CE LHIN, the three LHIN Health Interest Networks and otherstakeholders with regards to caregiver support and wellbeing issues.• Provides advice to the CE LHIN on the strategic priorities, goals, and objectives/strategies needed toimprove the system of support for caregivers.• Is supported by the Caregiver Support Coordinator (see outline of job in recommendations forstaffing).• With the Caregiver Support Coordinator, responds to the recommendations outlined within this reporton supporting caregivers.• Works with the LHIN to review and respond to provincial strategies/guidelines which impactcaregivers.• Acts as a resource to guide the work of the Caregiver Support Coordinator.• Assesses and prioritizes the barriers to achieving effective and efficient caregiver support.• Wworks with the CE LHIN to develop specific performance indicators which would be built into theMulti Sector Service Accountability Agreements (MSAA) of the organizations funded to deliverservices in zone specific centres.• It is a forum for communication/ collaboration/ knowledge exchange/innovation.31
Page 1 and 2: Caregiver Support andWell-Being Pri
Page 3 and 4: ACKNOWLEDGEMENTSMany thanks to the
Page 5 and 6: The “Defining” group identified
Page 7 and 8: • Mandate regular education and t
Page 9 and 10: • Caregivers provide the invisibl
Page 11 and 12: INFORMATION-GATHERING PROCESSIn ord
Page 13 and 14: Data CollectionData was also collec
Page 15 and 16: FindingsSources include caregivers,
Page 17 and 18: RespiteDefinitionRespite is the pro
Page 19 and 20: Provincial Recommendations:1. Provi
Page 21 and 22: Findings1. In order to keep a loved
Page 23 and 24: Provincial Recommendations:1. Advoc
Page 25 and 26: CAREGIVER SUPPORT MODELPlanning Fra
Page 27 and 28: This accountability includes:a) A c
Page 29: Caregiver Support Component ChartTh
Page 33 and 34: Zone Specific Advisory GroupsZone-s
Page 35 and 36: Volunteers:Supportive interaction -
Page 37 and 38: Caregivers’ contributions need to
Page 39 and 40: Appendix 1Project Team NameCaregive
Page 41 and 42: Collaboratives: Durham East Collabo
Page 43 and 44: • Whether or not particular famil
Page 45 and 46: consumers, caregivers and service p
Page 47 and 48: Goals, Objectives & Performance Mea
Page 53 and 54: Project CostsFiscal Yr:08-09Fiscal
Page 55 and 56: Project TeamTeam Member,Organizatio
Page 57 and 58: Project/InitiativeInterdependency &
Page 59 and 60: Project RisksThreat:Risk Likelihood
Page 61 and 62: VON Canada. (2005). VON Canada Care
Page 63 and 64: Appendix 4Caregiver Support and Wel
Page 65 and 66: Appendix 5Community Engagement Surv
Page 67 and 68: • Somewhere to go where I can get
Page 69 and 70: week for personal care. I live over
Page 71 and 72: 1. Indicate using point form the su
Page 73 and 74: 7. Identify some opportunities for
Page 75 and 76: • Please add accessibility under
Page 77: • More community awareness of CEC
Page 80 and 81:
ReferencesCompensation of Caregiver
Page 82 and 83:
U.S.National Family Caregiver Suppo
Page 84:
xxx MOHLTC, February 2009, Caring a
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