Caregiver Support and Well-Being Priority Project - Central East ...

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• Huge gap of culturally and linguistically relevant caregivers education and support programs forimmigrant population. These caregivers encounter challenges such as language barriers and diversecultural values.• Lack of informal support mechanisms for immigrant families.• Lack of knowledge of what is available.• Caregivers not being able to afford in home services.• Other than ConnexOntario, there is currently no coordinated access to MHA services other thansupportive housing and case management.Question 5-7 is for those organizations which provide RESPITE services(We are specifically looking at admission and referral processesPlease indicated the type(s) of Respite Care providedShort StayAdult Day ProgramIn-HomeEmergency or Alternate5. Please identify the referral process for each type of respite offered (use back of page if necessary)Adult Day Program –Durham RegionAll referrals come through CECCAC. Anyone can contact day program directly for information, tour, butspecific referral must come through CCAC. Intake and assessment done by CECCAC case managerusing the RAI assessment form.Fees: different depending upon agencyScarboroughSelf referral, physician, other health care professionals. Individual or caregiver calls specific organizationand makes appointment to come in for an assessment. Intake and assessment policies differ – somehave Client services coordinator who determine eligibility for admissionPeterboroughCCAC assessment and referral, fee varied, multi sited6. Please indicate the type of assessment used (include/attach a copy if possible)Adult Day Program –Durham/ Peterborough – RAI assessment tool – then agency intake assessment formAll other areas of LHIN – individual organization assessment tool7. Identify some opportunities for change with the admission and referral process(es)ADP which utilize CCAC for intake and Assessment:76
• More community awareness of CECCAC. Many people have never heard of it and are constantlyconfused with community Care Durham. Doctors need to be aware of the community resources.• Referrals from CCAC to Adult Day program are not a priority to Case managers/system. It takes aminimum of 2-6 weeks to receive actual paperwork from CCAC. We get many phone calls during thewaiting period. This adds to the already stressed out caregiver.• Too much paperwork. 30 page plus referral that is faxed and sometimes faxed numerous times onsame referral. Most of the information on intake assessment is irrelevant to what we require.• Would eliminate stress for caregiver not having to go thru CCAC for referral and then again interviewprocess at day program – double process for caregivers and potential day program client.• Most times, not able to contact Case manager or CCAC designate – mostly voice mail and thereforea lot of phone tag and internal waiting when already squeezed for time.• Case managers could keep the wait lists and allow individual day programs to do the intake andassessment using a standard assessment form which has been developed in collaboration with Dayprograms and CCAC, understanding what information Day programs need. This information could betransferred to the RAI assessment form if needed.• Leave the intake and assessment with the CCAC because they are the central point of access, butmake the assessment form more streamlined to capture the information needed by Day programsand also have more staff at CCAC doing these intakes.• We have found that not all case managers are aware of the Day programs. Why is this?• Allow us as a Day Program to move forward with our intake process while the CCAC is assigningcase managers and sending referral. This would allow us to serve a client we feel is appropriate forthe program while they are waiting for their home visit.• Day programs receive up to 35 pages of an assessment from CCAC, most information is not needed.An additional assessment is needed from the family for our agency. Our assessment is morepersonal to cover the ADL’s that the member will need while in our Day program.• CCAC and Day program coordinators meet regularly to ensure that waitlist are managed. Clients caneither come directly to Day program to be assessed and then the assessment is sent back to CCAC.• This would speed things up.ADP which do not utilize CCAC for intake and assessment• Make inter-agency referral process less cumbersome – CCAC referral to CSS agencies or vice versa.• When clients are familiar with an organization allow them to by pass an intake process with CCAC.• Standardize the package of caregiver information across the LHIN. Make all fees, admission policiesuniform across the CE LHIN. Very difficult to advise families who are trying to access service outsideour immediate geographical area.• Common intake and assessment process across the CE LHIN.• We need some consistency to prevent one day program from accessing clients with “lighter” careneeds.• Program content can be standardized based upon Best Practice.• Clients don’t know about CCAC, may effect utilization of program. Will our program remain full?8. After reviewing the ‘Caregiver Supports Definition and Component Chart’, what would you envision a‘Caregiver Support Centre’ being? Please do so from perspective of your organization and also forthe caregivers that you service• One stop shop, person on the phone.• Support to not only the caregiver but information source for agencies supporting caregivers.• Drop in centre – offering workshops with community agency experts.Thank you very much for your feedback! Your input will help our group to understand the needsin order to make recommendations to enhance supports for caregivers throughout the CentralEast LHIN. Please send your comments to Susan Locke at susan.locke@ce.ccac-ont.ca or by FAXto 905-430-7019 or if you wish to - mail to CECCAC, 209 Dundas Street, Whitby ON, L1N 7H8.77
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Caregiver Support andWell-Being Pri
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ACKNOWLEDGEMENTSMany thanks to the
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The “Defining” group identified
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• Mandate regular education and t
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• Caregivers provide the invisibl
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INFORMATION-GATHERING PROCESSIn ord
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Data CollectionData was also collec
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FindingsSources include caregivers,
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RespiteDefinitionRespite is the pro
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Provincial Recommendations:1. Provi
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Findings1. In order to keep a loved
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Provincial Recommendations:1. Advoc
Page 25 and 26: CAREGIVER SUPPORT MODELPlanning Fra
Page 27 and 28: This accountability includes:a) A c
Page 29 and 30: Caregiver Support Component ChartTh
Page 31 and 32: Central East Caregiver Support Cent
Page 33 and 34: Zone Specific Advisory GroupsZone-s
Page 35 and 36: Volunteers:Supportive interaction -
Page 37 and 38: Caregivers’ contributions need to
Page 39 and 40: Appendix 1Project Team NameCaregive
Page 41 and 42: Collaboratives: Durham East Collabo
Page 43 and 44: • Whether or not particular famil
Page 45 and 46: consumers, caregivers and service p
Page 47 and 48: Goals, Objectives & Performance Mea
Page 53 and 54: Project CostsFiscal Yr:08-09Fiscal
Page 55 and 56: Project TeamTeam Member,Organizatio
Page 57 and 58: Project/InitiativeInterdependency &
Page 59 and 60: Project RisksThreat:Risk Likelihood
Page 61 and 62: VON Canada. (2005). VON Canada Care
Page 63 and 64: Appendix 4Caregiver Support and Wel
Page 65 and 66: Appendix 5Community Engagement Surv
Page 67 and 68: • Somewhere to go where I can get
Page 69 and 70: week for personal care. I live over
Page 71 and 72: 1. Indicate using point form the su
Page 73 and 74: 7. Identify some opportunities for
Page 75: • Please add accessibility under
Page 80 and 81: ReferencesCompensation of Caregiver
Page 82 and 83: U.S.National Family Caregiver Suppo
Page 84: xxx MOHLTC, February 2009, Caring a
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Caregiver Support and Well-Being Priority Project - Central East ...

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