Caregiver Support and Well-Being Priority Project - Central East ...

• Please add accessibility under Care Planning. It is important to recognize that sometimes alternatemethods of communication and information sharing are needed for caregivers to get the informationand support they need.• Transition from home to LTC facility.• In home counseling – having an actual person to call anytime during a stressful time.• Support through technology – online inquiries, video conferencing, peer support groups with onlinediscussions, caregiver resource and linkae website.3. What do the caregivers you work with need to stay healthy and independent?• To be taken seriously, the inquiries are not just seen as complaining.• Easy access to information to increase knowledge and confidence of caregivers.• No waiting lists – when they reach out for help, most need it immediately and can’t wait.• Back up plans if respite is cancelled – so often we hear of a scheduled PSW was to come and at thelast minute the plan was cancelled or changed.• A shoulder to lean on.• More consistent training on how to provide illness specific care i.e. post stroke recovery.• More opportunities for respite.• 24 help line like the Kids help phone.• Doctors to be more knowledgeable to the supports within the Community.• Financial assistance, subsidy, etc.• Financial assistance for the expenses of caring for their loved one ie transportation, medicalequipment.• Support for legal/financial advice.• Understand how to cope during transition phases – discharge from hospital, etc.• Support to help educate their family on what is going on.• Education about how to care for themselves.• Respite – time to sleep, do chores, read, and stay at home when in home respite comes in.• A caregiver office or location which has information, opportunities for education, help to deal withanger.• Culturally sensitive information and support – which helps caregivers understand the system ofsupport which is available. Also to understand the social supports available to the client.• More services in the community. – if there isn’t anywhere for people to go for support this is aproblem.• Better communication and coordination between organizations – i.e. organization which supportsthose with hearing loss and other support agencies most don’t think to access each others expertiseand resources.• Programs and services which are for caregivers separately and not just because they accompany aclient.• Acknowledgement.4. Please identify any unmet needs or issues which arise when supporting caregivers.• 24 hour sign language interpreting services.• More respite of any type is needed, short stay, in home and ADP.• An Adult Day program in Whitby.• Equitable access to short stay respite beds.• Seeing a caregiver under stress and not being able to take more time to address their situation. Weneed more resources specific to the caregiver in addition to the client.• Somewhere to call to get support for caregivers who we deal with. Sometimes they need the type ofinformation or education which we do not have.• More types of support groups.• In home respite is generally not available for MHA.75