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Caregiver Support and Well-Being Priority Project - Central East ...

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• M<strong>and</strong>ate regular education <strong>and</strong> training to service providers to assist them in communicating withcaregivers <strong>and</strong> underst<strong>and</strong>ing their needs• Recommend that health service providers view <strong>and</strong> assess the needs of the caregiver separatelyfrom the needs of the care receiver.3) Respite<strong>Caregiver</strong>s need time off from their care giving responsibilities in order to avoid burnout. Respite can takeany number of forms, as long as it meets the caregiver's self-defined needs for relief, time off, a breakfrom caregiver responsibilities <strong>and</strong>/or the experience of some rejuvenation <strong>and</strong> peace of mind. v Thefollowing recommendations enhance the opportunities for respite for caregivers with the CE LHIN:• Implement st<strong>and</strong>ard admission timelines <strong>and</strong> processes to simplify <strong>and</strong> shorten the admission toAdult Day Programs, or equivalent, across the CE LHIN.• Review the dem<strong>and</strong> <strong>and</strong> supply for Adult Day Programs, or equivalent, ensuring equitable accessacross the CE LHIN.• Fund more subsidized in-home respite across the CE LHIN, particularly throughout the underservicedareas <strong>and</strong> sectors, ensuring equitable access.• Implement a common assessment tool for the Community <strong>Support</strong> Services providing in-home respite– i.e. InterRAI CHA (Community Home Assessment form )1. Simplify the admission process for short stay beds.2. Provide more short stay beds within <strong>Central</strong> <strong>East</strong> LHIN.3. Increase funding to community support agencies to provide more subsidized Instrumental Activities ofDaily Living (IADL) services, to ensure equitable access across the CE LHIN.4) Compensation <strong>Support</strong>• Explore self-directed funding options that would assist caregivers in paying for in-home respite, dayprograms or other support costs <strong>and</strong> allow them the flexibility to spend the funds on what they needmost.• Establish a subsidy program allowing caregivers to apply for financial assistance to purchase or leasecaregiving supplies <strong>and</strong> equipment.The project team has worked tirelessly to ensure the message is clear, caregivers are an essential part ofthe healthcare system. Without caregivers, the system would certainly not be able to manage the carethat is needed.Nobody thinks they will become a family caregiver. One day you are a daughter or son,occasionally helping your parents. Seemingly overnight you become a case manager, diseasespecialist, chauffeur, researcher, care advocate – all in support of an aging parent. How did ithappen? I am the third of five children, one son <strong>and</strong> four daughters. I’m responsible, caring,sensitive, an achiever, prime caregiver material. I took on the caregiver role unknowingly;never in a million years did I expect to become a parent to my parent <strong>and</strong> never have I had somuch trouble underst<strong>and</strong>ing how to get help vi .7

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