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NEWS<br />

National data collection<br />

standards will contribute<br />

to the delivery of safe<br />

and reliable health and<br />

social care<br />

HIQA has published Information management standards<br />

for national health and social care data collections, which,<br />

when implemented, will improve the quality of<br />

national health <strong>in</strong>formation and data, contribut<strong>in</strong>g to<br />

the delivery of safe and reliable healthcare.<br />

The 10 new standards focus on the <strong>in</strong>formation<br />

governance practices and the management of national<br />

health and social care data collections <strong>in</strong> Ireland. These<br />

standards will apply to all health and social care data<br />

collections established and ma<strong>in</strong>ta<strong>in</strong>ed on a national<br />

basis, provid<strong>in</strong>g a framework of best practice <strong>in</strong> the<br />

collection of health and social care data.<br />

Each national health and social care data collection<br />

holds a rich source of data. These <strong>in</strong>formation sources<br />

are used <strong>in</strong> many ways to <strong>in</strong>form decision-mak<strong>in</strong>g,<br />

monitor diseases, organise services and measure,<br />

monitor and report on health and social care related<br />

activities and outcomes. The HSE uses <strong>in</strong>dicators<br />

derived from these data collections through its service<br />

plan to monitor its performance on the quality of<br />

care. The Department of Health also collates these<br />

<strong>in</strong>dicators <strong>in</strong> an annual National Healthcare Quality<br />

Report<strong>in</strong>g system report to provide a national overview<br />

of the quality of healthcare <strong>in</strong> Ireland. These standards<br />

will improve the quality of the data collected.<br />

National health and social care data collections<br />

are national repositories of rout<strong>in</strong>ely collected health<br />

and social care data <strong>in</strong> Ireland. They play a crucial<br />

role by provid<strong>in</strong>g a national overview of a particular<br />

health or social care service. National data collections,<br />

which play a role <strong>in</strong> provid<strong>in</strong>g a national overview<br />

of particular health and social care services, <strong>in</strong>clude<br />

the National Cancer Registry of Ireland (NCRI),<br />

Immunisation Uptake Statistics and the Computerised<br />

Infectious Disease Report<strong>in</strong>g (CIDR) System. They<br />

enable the assessment of key <strong>in</strong>dicators of the health<br />

service, <strong>in</strong>clud<strong>in</strong>g <strong>in</strong>fluenza vacc<strong>in</strong>e uptake, breast<br />

cancer screen<strong>in</strong>g rates and <strong>in</strong>formation <strong>in</strong> relation to<br />

hospital-acquired <strong>in</strong>fections such as MRSA rates.<br />

HIQA will develop a structured programme of<br />

assess<strong>in</strong>g compliance with the Information management<br />

standards for national health and social care data collections<br />

with<strong>in</strong> its legislative remit. Recognis<strong>in</strong>g that these<br />

standards are new, <strong>in</strong>formation sessions will be<br />

held to support national health and social care data<br />

collections to comply with these standards. HIQA plans<br />

to <strong>in</strong>itiate a review programme dur<strong>in</strong>g 2017, which will<br />

commence with the distribution of a ‘self-assessment<br />

tool’ to national health and social care data collections<br />

with<strong>in</strong> its remit. This programme will be phased and<br />

HIQA will cont<strong>in</strong>ue to engage with national health<br />

and social care data collections <strong>in</strong> advance of the<br />

commencement of the process.<br />

Huge rise <strong>in</strong> liver<br />

cancer rates<br />

shows need<br />

to Get Cancer<br />

through reduc<strong>in</strong>g<br />

our risk<br />

The startl<strong>in</strong>g <strong>in</strong>crease <strong>in</strong> the number of people<br />

diagnosed with liver cancer <strong>in</strong> Ireland highlights the<br />

urgent need for us all to Get Cancer by reduc<strong>in</strong>g our<br />

risk of contract<strong>in</strong>g this devastat<strong>in</strong>g disease, the Irish<br />

Cancer Society has said.<br />

Latest figures from the National Cancer Registry<br />

of Ireland (NCRI) show a 300% rise <strong>in</strong> liver cancer<br />

diagnoses <strong>in</strong> Ireland <strong>in</strong> the past two decades. The<br />

average number of new cases each year has gone from<br />

60 <strong>in</strong> the mid-1990s to more than 270 <strong>in</strong> 2014. Of those<br />

diagnosed, less than one <strong>in</strong> five (17%) survive their<br />

disease for five years or more. In 2013, 306 people <strong>in</strong><br />

Ireland died from liver cancer, compared to an average<br />

of just 40 people per year <strong>in</strong> the late 1990s.<br />

The NCRI po<strong>in</strong>ts to high alcohol consumption <strong>in</strong><br />

recent decades as one of the biggest reasons for this<br />

four-fold <strong>in</strong>crease.<br />

Comment<strong>in</strong>g on the figures, Irish Cancer Society<br />

Head of Research Dr Robert O’Connor said,<br />

“Alcohol is the cause of around 900 <strong>in</strong>cidences<br />

of cancer <strong>in</strong> Ireland each year, and 500 of these<br />

patients will die of their disease. Overall, one <strong>in</strong> 10<br />

of all cancers <strong>in</strong> men and one <strong>in</strong> 33 <strong>in</strong> women are<br />

caused by alcohol. Liver cancer is one of seven cancer<br />

types of which can be caused by alcohol. The high<br />

<strong>in</strong>cidence rates of the disease that Ireland is currently<br />

experienc<strong>in</strong>g is a result of decades of people <strong>in</strong> Ireland<br />

simply dr<strong>in</strong>k<strong>in</strong>g too much.<br />

“One <strong>in</strong> five of all alcohol-related deaths are due to<br />

cancer but our consumption of alcohol is <strong>in</strong>creas<strong>in</strong>g –<br />

<strong>in</strong> 2010 it was 145% higher than the average amount<br />

drank <strong>in</strong> 1960. Irish people dr<strong>in</strong>k more than the<br />

European average, which stands at 11 litres of pure<br />

alcohol per person per year.”<br />

To speak to a cancer nurse on any aspect of cancer,<br />

contact the Cancer Nursel<strong>in</strong>e on Freephone 1800 200<br />

700, email cancernursel<strong>in</strong>e@irishcancer.ie or drop<br />

<strong>in</strong>to a Daffodil Centre <strong>in</strong> hospitals nationwide.<br />

Visit www.cancer.ie for cancer <strong>in</strong>formation and<br />

support services.<br />

62<br />

IPUREVIEW FEBRUARY 2017

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