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Family Road Map Guide

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The Five-Point Guiding Star to Navigating Systems<br />

The process of finding your way through all the complicated procedures and paperwork to get services for your child is<br />

called "navigating a system." Over the years, most families travel through many systems with very different rules, providers,<br />

and procedures. Plus, systems themselves keep changing as new programs come and go. How do you navigate<br />

through a confusing world where the landmarks keep shifting? The answer is to use your Guiding Star.<br />

The five points on the Guiding Star are five tasks that will keep you oriented and on the right road--no matter<br />

what system you are navigating. The Guiding Star can help you sort through the confusion and chunk up a big job into<br />

tasks you can handle. It can also help you get respect from the providers on your team, and better results in any system.<br />

This book is organized around step-by-step ways to navigate a system, using all five points of the Guiding Star*.<br />

1<br />

Set<br />

GOALS<br />

Decide what you are looking for based on the strengths and<br />

concerns of your child or youth, and your family (including<br />

yourself). Life is simpler when everyone on your team understands<br />

your child’s or youth's--and your family’s--priorities.<br />

5<br />

Find<br />

SUPPORT<br />

Find people and<br />

resources to help you<br />

cope with challenges<br />

and create the future<br />

you want for your<br />

family.<br />

2<br />

Learn<br />

SYSTEM<br />

BASICS<br />

Become familiar with key words,<br />

procedures, and provider<br />

roles so you understand what<br />

choices you have, where to find<br />

services, and how to get those<br />

services.<br />

4<br />

Manage<br />

INFORMATION<br />

Keep good records. Observe and<br />

report on your child’s or youth’s<br />

progress. Insist on clear explanations<br />

for any data (such as test scores) that<br />

are used to make decisions about<br />

treatment or services.<br />

3Build RELATIONSHIPS<br />

Communicate clearly, and show you<br />

expect to be included in all decisions as<br />

a full partner. Find people who can help<br />

you meet goals, handle system barriers,<br />

and solve problems.<br />

(Special thanks to Team Up for Families/<strong>Family</strong> <strong>Road</strong> <strong>Map</strong> Learning Collaborative Administrator and Certified Trainer Angela Lassiter, who named this five-point process<br />

our "Guiding Star.”)<br />

5

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