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I and A Mag Oct19

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Here’s to Dementia<br />

A FREINDLY FUTURE<br />

might become difficult, keeping in touch can bring feelings of<br />

happiness <strong>and</strong> comfort, especially as the ‘emotional memory’<br />

remains with them long after the memory of the visit may have<br />

gone.”<br />

While getting support from health <strong>and</strong> care services is vitally<br />

important to a person with dementia, it’s not the whole picture.<br />

Those affected by this challenging condition will only be able<br />

to live well if people <strong>and</strong> organisations from right across<br />

society come together to help.<br />

What is a ‘dementia-friendly community’?<br />

“We want to make Knaresborough a town where<br />

people living with dementia feel understood,<br />

respected, supported <strong>and</strong> confident, so that they<br />

can contribute to life in the community.” So<br />

says Alison Wrigglesworth, Services Manager<br />

for Harrogate <strong>and</strong> Knaresborough Alzheimer’s<br />

Society.<br />

The Yorkshire town of Knaresborough is one of the latest in<br />

a long line of UK towns to declare themselves a ‘dementiafriendly<br />

Community’ (DFC). Dementia is not, as many people<br />

believe, a natural consequence of old age (although the<br />

older you are, the more likely you are to be affected) <strong>and</strong> it<br />

is predicted that the number of UK residents with dementia<br />

will increase to over one million by 2025. That figure is set to<br />

double by 2051.<br />

Given these statistics, it’s seems likely that in future our public<br />

health <strong>and</strong> social care services could struggle to care for people<br />

who develop the condition. Dementia-friendly initiatives<br />

therefore serve a dual purpose: helping people stay at home<br />

for as long as possible <strong>and</strong> relieving some of the burden that<br />

would otherwise be placed on our public care providers.<br />

What are the issues?<br />

Things we all take for granted, such as using technology,<br />

getting served in shops <strong>and</strong> banks, going on holiday, spending<br />

time with friends <strong>and</strong> family or enjoying hobbies, are difficult<br />

when you have dementia, but they can become even harder<br />

when the individuals around you don’t know how to respond<br />

appropriately.<br />

For this reason it’s not uncommon for people to shut<br />

themselves away as their condition progresses, even though<br />

this can make them feel isolated <strong>and</strong> depressed. According to<br />

the Alzheimer’s Society, over two-thirds of those polled have<br />

reported feeling lonely.<br />

Alison Wrigglesworth admits that public anxieties about<br />

dementia can often make the situation worse. “Many people<br />

are worried about ‘saying the wrong thing’ to someone with<br />

dementia, yet a friendly face or listening ear can make the<br />

world of difference,” she told radio station Stray FM at the<br />

launch of the Knaresborough initiative earlier this year. “Even<br />

in the later stages of dementia when having a conversation<br />

A dementia-friendly community is a place where people with<br />

dementia are understood, respected <strong>and</strong> supported. It can be<br />

a street, village, town, city or region, an organisation, a group<br />

or even a virtual community. A DFC can be as small or as large<br />

as the group of people it serves, but its impact is obviously<br />

much greater when a town or city becomes involved.<br />

The concept was first was developed during the 1990s in<br />

Japan, a country where the proportion of citizens aged 65 or<br />

older has quadrupled over four decades. Rather than exclude<br />

a significant proportion of its population from society, the<br />

Japanese began to develop programmes designed to make it<br />

easier for those living with dementia to continue to enjoy some<br />

independence.<br />

What does ‘dementia-friendly’ look like?<br />

There are no hard <strong>and</strong> fast rules to follow when setting up a<br />

DFC of your own. Instead, local communities are encouraged<br />

to decide what works best for them, turning to grassroots<br />

organisations with relevant experience to show the way.<br />

While flexibility is encouraged, there are certain measures that<br />

are regularly adopted by towns <strong>and</strong> cities who want to become<br />

DFCs. Businesses that regularly come into contact with older<br />

people, such as banks <strong>and</strong> taxi firms, are asked to provide extra<br />

support for customers with dementia, while museums <strong>and</strong> art<br />

galleries are encouraged to offer dementia-friendly activities.<br />

Other initiatives include ‘dementia cafes’ <strong>and</strong> drop-in centres.<br />

Doctors’ surgeries, shops <strong>and</strong> offices use special signs,<br />

combining easy-to-read text with an image, to help people<br />

with dementia navigate their way around a building. Many<br />

dementia-friendly towns have extended this idea to their<br />

public realm planning, using clear signage <strong>and</strong> creating welldefined<br />

open spaces with public toilets, seats, shelters <strong>and</strong><br />

good lighting.<br />

Most DFCs are keen to engage local people as ‘Dementia<br />

Friends’. These are individuals willing to promote the aims of<br />

the DFC, from spreading awareness about the condition to<br />

volunteering to spend time with a person who has dementia.<br />

Currently almost three million have signed up to this initiative<br />

on the Dementia Friends website (dementiafriends.org.uk).<br />

The Alzheimer’s Society has estimated that one in six people<br />

aged over 80 in the United Kingdom currently has dementia,<br />

<strong>and</strong> a further 225,000 people will be diagnosed this year.<br />

There’s clearly no time to lose, so it’s reassuring to see that<br />

new dementia-friendly communities, just like the one in<br />

Knaresborough, are appearing every day.<br />

by Kate McLell<strong>and</strong><br />

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