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Bakas 2010 (Continued) Notes Cameron 2009 Trial name or title Optimizing stroke family caregiver support across the care continuum by improving the timing of intervention delivery Methods Multi-province RCT Study design: interventional Study type: allocation randomised Endpoint classification: efficacy study Intervention model: parallel assignment Masking: open label Primary purpose: supportive care Participants Inclusion criteria: participants must speak and read English and be the primary family caregiver of a person who is receiving care for their first hospitalisation for an ischaemic or haemorrhagic stroke and whose anticipated ultimate destination after discharge is a private residence or apartment building. Stroke survivors must exhibit at least minimal disability (i.e. are referred to at least 1 rehabilitation health care professional during acute care) . They may be admitted to short or long-duration inpatient (maximum duration of 6 months) or outpatient rehabilitation or return directly home Exclusion criteria: caregivers of terminally ill stroke survivors or of survivors discharged to complex continuing care, long-term care or assisted retirement residences Interventions Self directed programme versus Timing it Right (TIR) stroke family support person intervention versus no intervention Outcomes Primary outcome: caregiver’s perceived social support, assessed using the Medical Outcomes Study Social Support Scale Secondary outcomes: mental health assessed by the Positive Affect Scale and Centre for Epidemiological Studies Depression Scale Caregivers’ participation in valued activities assessed by the Caregiving Impact Scale Data will be collected at baseline, 3, 6 and 12 months post-stroke Starting date September 2009 Contact information Jill Cameron (Assistant Professor) Department of Occupational Science and Occupational Therapy, University of Toronto, Canada Tel: +1 416 978 2041 Email: jill.cameron@utoronto.ca Notes Non-pharmacological interventions for caregivers of stroke survivors (Review) Copyright © 2011 The Cochrane Collaboration. Published by John Wiley & Sons, Ltd. 38
Díez 2008 Trial name or title Caregivers workshop impact in severe stroke patients Methods RCT Participants Caregiver between 18 to 80 years old; informed consent signature (signed by the caregiver); must be free from disease (invalid) or 2 chronic diseases or 1 mental disease or history of psychiatric problems, stroke survivor must have a discharge mRS of ≥ 2 points Interventions Caregivers workshop versus classical discharge information (i.e. information booklet pre-discharge talk from nurse) Outcomes Caregiver anxiety, stress and depression Starting date 2008 Contact information Dr Sergio Illanes Díez, Departamento de Neurología/Neurocirugía, Santos Dumont 999, sector E. Independencia, Santiago, Chile Email: Sergio.illanes@gmail.com Notes Caregivers’ workshops versus regular caregivers’ information Eames 2010 Trial name or title Evaluation of a post-discharge education and support package for stroke clients and their carers: randomised control trial (Does providing information after stroke help?) Methods Procedures for enrolling a participant and allocating the treatment (allocation concealment procedures) Methods used to generate the sequence in which participants will be randomised (sequence generation) Procedures for preventing knowledge of the allocated intervention Who is/are masked/blinded? Participants Inclusion criteria: patients or caregivers of patients - with a current admission for stroke (first of subsequent) , who are medically stable with good prognosis and aged 18 or over Exclusion criteria: residence in residential care facility prior to admission, or have residential care as a planned discharge destination. Unable to provide informed consent or complete assessments due to inadequate English, cognitive, communication, visual or hearing problems. Carers are eligible to participate even if the stroke survivor meets the exclusion criteria Interventions Intervention: the education and support package consists of a written education booklet that provides tailored information, supplemented by verbal reinforcement and repetition of the information contained therein. This verbal reinforcement will occur both face-to-face (prior to hospital discharge) and over the telephone (after hospital discharge) for up to 3 months post-discharge. The written education booklet contains topics including the definition, causes, warning signs, risk factors, effects, diagnosis and treatment of stroke, as well as rehabilitation, recovery, returning to activities, going home, practical management strategies and services and support available after stroke. Face-to-face contact will be made up to 3 times with intervention participants, each contact estimated to last between 5 and 20 minutes. Telephone support will be initiated up to 3 times over the first 3 months post discharge, with each call estimated to last between 2 and 10 minutes. Additionally, over this time period, intervention participants will have the option to call to ask questions, again same time period Non-pharmacological interventions for caregivers of stroke survivors (Review) Copyright © 2011 The Cochrane Collaboration. Published by John Wiley & Sons, Ltd. 39
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