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Consultation Paper on Bioethics - Law Reform Commission

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a clear note of the decisi<strong>on</strong>, the treatment to be refused and the<br />

circumstances in which the decisi<strong>on</strong> will apply;<br />

details of some<strong>on</strong>e who was present when the oral advance decisi<strong>on</strong><br />

was recorded and the role in which they were present (for example,<br />

healthcare professi<strong>on</strong>al or family member); and<br />

whether they heard the decisi<strong>on</strong>, took part in it or are just aware that it<br />

exists.” 13<br />

4.08 The English 2005 Act does not set out formal requirements if the<br />

advance care directive is in writing. However, the Code of Practice for the<br />

English notes that it is “helpful” to include the following informati<strong>on</strong> in a written<br />

advance directive:<br />

“full details of the pers<strong>on</strong> making the advance decisi<strong>on</strong>, including date<br />

of birth, home address and any distinguishing features (in case<br />

healthcare professi<strong>on</strong>als need to identify an unc<strong>on</strong>scious pers<strong>on</strong>, for<br />

example);<br />

the name and address of the pers<strong>on</strong>‟s GP and whether they have a<br />

copy of the document;<br />

a statement that the document should be used if the pers<strong>on</strong> ever lacks<br />

capacity to make treatment decisi<strong>on</strong>s;<br />

a clear statement of the decisi<strong>on</strong>, the treatment to be refused and the<br />

circumstances in which the decisi<strong>on</strong> will apply;<br />

the date the document was written (or reviewed);<br />

the pers<strong>on</strong>‟s signature (or the signature of some<strong>on</strong>e the pers<strong>on</strong> has<br />

asked to sign <strong>on</strong> their behalf and in their presence);<br />

the signature of the pers<strong>on</strong> witnessing the signature, if there is <strong>on</strong>e (or<br />

a statement directing somebody to sign <strong>on</strong> the pers<strong>on</strong>‟s behalf).” 14<br />

4.09 While the Mental Capacity Act 2005 provides for both oral and written<br />

advance care directive, it has been suggested that “this apparent flexibility is<br />

somewhat illusory”. 15 Bartlett argues that regardless of what the 2005 Act may<br />

say “a practiti<strong>on</strong>er or a court will be hesitant to rely <strong>on</strong> a refusal without clear<br />

evidence that it was meant to be taken seriously”. 16 Bartlett argues that while a<br />

13 Mental Capacity Act 2005 - Code of Practice at paragraph 9.23.<br />

14 Mental Capacity Act 2005 – Code of Practice at paragraph 9.19.<br />

15 Bartlett Blackst<strong>on</strong>e‟s Guide to the Mental Capacity Act 2005, 2 nd ed. (Oxford,<br />

16 Ibid.<br />

2008) at paragraph 3.116.<br />

92

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