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Understanding Clinical Trial Design - Research Advocacy Network

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36<br />

VI.<br />

Acknowledgements<br />

UNDERSTANDING CLINICAL TRIAL DESIGN: A TUTORIAL FOR RESEARCH ADVOCATES<br />

Funding for this tutorial was provided by the Department of Defense Center of<br />

Excellence Grant in Breast Cancer <strong>Research</strong> at Indiana University to the <strong>Research</strong><br />

<strong>Advocacy</strong> <strong>Network</strong> Advocate Institute. Copies can be downloaded from the<br />

<strong>Research</strong> <strong>Advocacy</strong> <strong>Network</strong> website at www.researchadvocacy.com.<br />

Reviewers:<br />

We gratefully acknowledge the important role and dedication of significant time<br />

to review the tutorial:<br />

• Connie Cirrincione, MS, Cancer and Leukemia Group B Staff Statistician<br />

• Mary Elliott, Breast Cancer Advocate<br />

• Susan Nathanson, PhD, Breast Cancer Advocate and former Executive Director,<br />

Y-ME National Breast Cancer Organization<br />

• Anne O’Neill, MS, Eastern Cooperative Oncology Group<br />

• Elda Railey, Co-Founder <strong>Research</strong> <strong>Advocacy</strong> <strong>Network</strong><br />

• Mary Lou Smith, JD, MBA, Co-Founder <strong>Research</strong> <strong>Advocacy</strong> <strong>Network</strong><br />

Appreciation is also expressed to the following for additional feedback and advice<br />

to the author:<br />

• Dan Hayes, MD, University of Michigan<br />

• Marion Perlmutter, PhD, University of Michigan<br />

• Don Berry, PhD, MD Anderson Cancer Center<br />

<strong>Research</strong> <strong>Advocacy</strong> <strong>Network</strong><br />

The <strong>Research</strong> <strong>Advocacy</strong> <strong>Network</strong> is a non-profit organization working to<br />

bring together all participants in the medical research process with the focus<br />

on education, support and connecting patient advocates with the research<br />

community to improve patient care. The <strong>Research</strong> <strong>Advocacy</strong> <strong>Network</strong> has<br />

started the Advocate Institute to educate and equip patient advocates with<br />

basic scientific knowledge and a better understanding of the research system.<br />

The Institute employs the newest technologies to facilitate knowledge<br />

transfer.<br />

Jane Perlmutter, PhD<br />

Jane Perlmutter is a consultant-evaluator for the Higher Learning<br />

Commission and a frequent facilitator for its Academic Quality Improvement<br />

Program Strategy Forums and other programs. She has numerous publications<br />

and a Distinguished Teaching Award. Her formal education includes<br />

Masters degrees in Educational Psychology and Computer Science, and a<br />

Ph.D. in Cognitive Psychology from the University of Massachusetts in<br />

Amherst. She also received an MBA from New York University’s Executive<br />

Program. Jane is a long-term breast cancer survivor and research advocate.<br />

She can be contacted at janep@gemini-grp.com.

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