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Miracle Foundation Palliative Care Center:<br />

It’s All About Quality <strong>of</strong> Life<br />

Patients living with a<br />

serious illness can find<br />

pain relief <strong>and</strong> address<br />

symptom management<br />

at home, in the company <strong>of</strong><br />

their loved ones, courtesy <strong>of</strong> the<br />

Miracle Foundation Palliative<br />

Care Center.<br />

“<strong>The</strong> Miracle Foundation<br />

Palliative Care Center dialogues<br />

with patients <strong>and</strong> families<br />

living with advanced illnesses<br />

about treatment options,<br />

<strong>of</strong>fers emotional support <strong>and</strong><br />

makes them as com<strong>for</strong>table<br />

as possible,” said Maureen<br />

Hinkelman, chief executive<br />

<strong>of</strong>ficer <strong>of</strong> the Hospice Care<br />

Network, part <strong>of</strong> the North<br />

Shore-LIJ Health System.<br />

Palliative care is<br />

comprehensive, individualized<br />

medical treatment that<br />

complements curative<br />

therapies <strong>for</strong> patients with<br />

life-threatening illness. In<br />

February <strong>and</strong> April 2011,<br />

Governor Cuomo passed two<br />

important pieces <strong>of</strong> legislation<br />

to address it. <strong>The</strong> Palliative<br />

Care In<strong>for</strong>mation Act requires<br />

that attending physicians<br />

<strong>and</strong> nurse practitioners<br />

<strong>of</strong>fer terminally ill patients<br />

in<strong>for</strong>mation <strong>and</strong> counseling<br />

concerning palliative care<br />

<strong>and</strong> appropriate end-<strong>of</strong>-life<br />

options. According to the<br />

New York State Department <strong>of</strong><br />

Health, the law helps to ensure<br />

that patients are fully in<strong>for</strong>med<br />

<strong>of</strong> their options when they face<br />

a terminal illness or condition.<br />

82 Summer 2012<br />

Jim Kennedy<br />

<strong>The</strong> second law, the<br />

Palliative Care Access<br />

Act, requires hospitals,<br />

nursing homes, home care<br />

agencies <strong>and</strong> assisted living<br />

residences to provide access to<br />

in<strong>for</strong>mation <strong>and</strong> counseling<br />

about palliative care to<br />

patients with advanced,<br />

life-limiting conditions <strong>and</strong><br />

illnesses. <strong>The</strong>se providers<br />

must also facilitate access to<br />

palliative care consultation<br />

<strong>and</strong> services that are<br />

consistent with the patient’s<br />

needs <strong>and</strong> preferences.<br />

“We are always looking <strong>for</strong><br />

better ways to serve the patients<br />

<strong>and</strong> families in our community.<br />

Many families have told us that<br />

they wished they had known<br />

sooner about palliative care <strong>and</strong><br />

hospice service options. <strong>The</strong><br />

Miracle Foundation Palliative<br />

Care Center addresses this<br />

concern by providing a useful<br />

venue to help physicians attend<br />

to the new requirements,” said<br />

Ms. Hinkelman.<br />

This unique center<br />

is generously funded by a<br />

$500,000 grant from the<br />

Miracle Foundation, an<br />

organization founded by<br />

Patti <strong>and</strong> Michael Tenaglia<br />

<strong>and</strong> dedicated to improving<br />

the lives <strong>of</strong> those diagnosed<br />

with cancer <strong>and</strong> other lifethreatening<br />

diseases.<br />

Above: With a live-in aide <strong>and</strong><br />

regular visits from palliative care<br />

nurse Laurie Alonso, NP, left,<br />

102-year-old George Wittmer is<br />

able to remain in his home.

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