Advanced Effective Communication, Cultural Competence, and ...

A Roadmap for Hospitals
Appendix E: Resource Guide
9. Costello’s 2009 article “Last words, last connections: How
augmentative communication can support children facing
end of life” in the ASHA Leader, focuses on how
augmentative communication can support children facing
end of life. Available at http://www.asha.org/Publications/
leader/2009/091215/LastWordsLastConnections.htm.
Cultural Competency Materials for Specific
Populations or Conditions
1. Department of Health and Human Services’ Web site
Health Professionals: Your Role in Women’s Health discusses
cultural competency and women’s health. Available at
http://www.womenshealth.gov/health-professionals/
cultural-competence/index.cfm.
2. The National Minority AIDS Education and Training
Center, which gives health care professionals a culturally
relevant framework as they provide primary care to various
populations with HIV/AIDS, offers several resources
including the following:
• Be Safe: A Cultural Competency Model for African
Americans discusses the components of the BE SAFE
mnemonic, a framework that uses culturally pluralistic
content and perspectives based on the following six
core elements: barriers to care, ethics, sensitivity of the
provider, assessment, facts, and encounters. Available at
http://www.aidsetc.org/pdf/p02-et/et-17-00/be
_safe.pdf.
• Be Safe: A Cultural Competency Model for Latinos
addresses culturally relevant topics that providers need
to be cognizant of when caring for Latino HIV/AIDS
patients. Available at http://www.aidsetc.org/pdf/p02-
et/et-17-00/be_safe_latino.pdf.
3. National Native American AIDS Prevention Center’s
Clinician’s Guide: Working with Native Americans Living
with HIV is a resource for medical providers who are
confronted with cultural challenges presented by Native
American patients living with or at risk for HIV infection.
Available at http://www.aidsetc.org/pdf/curricula/clin_
guide_native_am.pdf.
4. National Initiative for Children’s Healthcare Quality’s
Improving Cultural Competency in Children’s Health Care:
Expanding Perspectives presents a “change package” of the
most promising practices for achieving culturally
competent care. Available at http://www.nichq.org/
pdf/NICHQ_CulturalCompetencyFINAL.pdf.
5. American Academy of Pediatrics’ guideline Communicating
with Children and Families: From Everyday Interactions to
Skill in Conveying Distressing Information includes
recommendations on cultural consideration, working with
interpreters, and ensuring effective communication in
various situations including informed consent. Available at
http://www.guideline.gov/summary/summary.aspx?view
_id=1&doc_id=13404.
Patient, Family, and Community
Engagement Domain
Encouraging Patient and Family
Engagement
1. The Joint Commission’s “Speak Up” campaign provides
downloadable brochures, written at a low health literacy
level, to provide to patients and their families. The
brochures, available in English and Spanish, are designed
to help patients navigate the health care encounter.
Brochures Available at http://www.jointcommission.org/
PatientSafety/SpeakUp.
2. The Institute for Family-Centered Care provides
leadership to advance the understanding and practice of
patient- and-family-centered care in hospitals and other
health care settings. The institute offers a multitude of
publications, self-assessment tools, an annotated
bibliography, and other resources to advance the practice
of patient- and family-centered care. Available at
http://www.familycenteredcare.org.
3. The Institute for Family-Centered Care’s Partnering with
Patients and Families to Design a Patient- and Familycentered
Health Care System: Recommendations and
Promising Practices provides guidance for advancing
patient- and family-centered care, specifically for creating
partnerships with patients and families in quality
improvement and health care redesign. Available at
http://www.familycenteredcare.org/pdf/Partneringwith
PatientsandFamilies.pdf.
4. Planetree promotes a model of care that supports the
patient and family as active participants in care and
decision making and emphasizes patient and family
education. The Web site provides information that fosters
cultural change in health care organizations and the
creation of healing health care environments for patients,
families, and staff. Available at http://www.planetree.org.
5. The Kenneth B. Schwartz Center seeks to strengthen the
relationship between patients and caregivers through
education, training, and support; advocacy and policy
development; and research. The Center supports
initiatives that promise both immediate and long-term
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