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Bulletin Spring 2018

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THAT’S LIFE<br />

WITH NARELLE<br />

NARELLE TAYLOR, MSWA MEMBER<br />

MSWA has arranged and provided me with so much<br />

assistance, in so many forms, since I joined 22 years ago. I’ve<br />

had lots of support workers who have helped me be good at<br />

whatever role I was enacting at the time. I’ve grown fond of,<br />

become grateful to, and been respectful of them, as I’m sure<br />

they must have come to be of me, and now some of them hold<br />

places in my memory like friends, or family members.<br />

When I was alone at home, my children had married and<br />

moved out, my husband had died, I was swanning about in<br />

a place that was far too big for just one person. The support<br />

workers would come more frequently because I needed their<br />

help more frequently. It dawned on me that a ‘care facility’<br />

would do everything the carers were doing, and I’d be able to<br />

go out and come back, the bed would be made, the washing<br />

would be done, the food would be cooked, and I would not<br />

have had to supervise any of it.<br />

My support worker comes here now as ‘social support,’ and<br />

the staff here do all the other stuff. It suits me very well.<br />

Some support workers at home had been coming for years.<br />

One even came to be ‘social support’ at this facility when I<br />

had moved here. My transition away from home, because I’d<br />

chosen to do it, was not as confounding and worrisome for<br />

me, as it seems to be for so many of the other residents here.<br />

Ageing alone separates the individual a little bit from the<br />

mainstream of society and then, for them to be locked into<br />

a place like this, for their own safety of course, is so far from<br />

their understanding. It’s so often a topic of conversation with<br />

them. Even those residents that are now spoon-fed and in<br />

a ‘transporter chair’ will sometimes grizzle that they could<br />

manage at home alone and will talk of their inability to fathom<br />

why they’ve been incarcerated.<br />

I speak with them about it as if I am dealing with a child.<br />

Because of their attitude, I then file them in the category of<br />

those residents whom I’m not going to include as a close<br />

friend. I still like them, but it’s one-way traffic. They’re out of<br />

time with life’s background music.<br />

One resident who has Parkinson’s, but is walking, came with<br />

me to a nearby coffee shop. We made our way there, me in my<br />

power-chair, and her holding on to the back of it. We crossed<br />

two roads then arrived and enjoyed our cake and cuppa.<br />

The young table attendant then helped us negotiate safely<br />

past other tables and chairs, back out onto the footpath. Doris<br />

resumed her position behind my chair and the waiter said,<br />

“well, there you are ladies, all set to go. What are you going<br />

to do today?”<br />

I thought, “we’ve just done it!”<br />

I said, “well, Doris and I spend a lot of time in the laboratory,”<br />

he just nodded his head. He knew it wasn’t true and I hope<br />

he realised that his question was not suitable for Doris<br />

and I. He’s always very nice to me now and I usually go there<br />

for morning tea with my support worker and he always serves<br />

us with a pleasant alacrity.<br />

I am proud of the way my support worker and I can get around.<br />

We can go almost anywhere. The world is becoming more<br />

wheelchair-friendly. It’s my oyster! Comparatively speaking,<br />

we are so good. I heard recently of young sportsmen, soccer<br />

players actually, who each needed to be sedated and wrapped<br />

up like parcels in order to get back on track and go home. I’m<br />

sure they’d be impressed with our form.<br />

MSWA BULLETIN SPRING <strong>2018</strong> | 27

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