The hardest thing we have ever done - Palliative Care Australia

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Full Report of the National Inquiry into the Social Impact of Caring for Terminally Ill People Incorporating a Literature Review and Analysis of Public Submissions The hardest thing we have ever done Prepared by Dr Samar Aoun for Palliative Care Australia May 2004
Page 1: The Social Impact of Caring for Ter
Page 5 and 6: Foreword This report is presented b
Page 7 and 8: PUBLIC SUBMISSIONS 39 Introduction
Page 9 and 10: Recommendations A systematic review
Page 11 and 12: • information and education • f
Page 13 and 14: searches were supplemented with man
Page 15 and 16: defined a carer as someone who, wit
Page 17 and 18: Figure 1: Tasks performed by carers
Page 19 and 20: Table 3: A selection of recent nati
Page 21 and 22: Table 5: Effects of caring on the m
Page 23 and 24: Caregiving is also reported to have
Page 25 and 26: Issues of Special Groups of Carers
Page 27 and 28: Beliefs and values have a direct be
Page 29 and 30: 96 years. A combination of loss, pr
Page 31 and 32: Such educational material was recen
Page 33 and 34: Findings from ‘Caring Costs’ co
Page 35 and 36: • How is family-centered care pra
Page 37 and 38: Federal policy development has occu
Page 39 and 40: Conclusion This literature review h
Page 41 and 42: Public Submissions Introduction and
Page 43 and 44: Carer for father with prostate canc
Page 45 and 46: The impact of caring on work opport
Page 47 and 48: added costs are in excess of $6,000
Page 49 and 50: Carer for husband with Multiple Mye
Page 51 and 52: Positive feedback about the role of
Page 53 and 54:
Support services and respite Carers
Page 55 and 56:
This financial pressure may mean th
Page 57 and 58:
Support service funding and access
Page 59 and 60:
Aged people From the aged care pers
Page 61 and 62:
Indigenous people The experiences o
Page 63 and 64:
Conclusions based on public submiss
Page 65 and 66:
References Aranda, S., & Hayman-Whi
Page 67 and 68:
Hudson, P., Aranda, S. & Kristjanso
Page 69 and 70:
Palliative Care Australia (2000). A
Page 71 and 72:
Appendix: List of Contributors to t
Page 73 and 74:
Glossary of Terms CALD CALD stands
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