The hardest thing we have ever done - Palliative Care Australia
The hardest thing we have ever done - Palliative Care Australia
The hardest thing we have ever done - Palliative Care Australia
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Table of Contents<br />
Acknowledgments 2<br />
Foreword 3<br />
Recommendations 7<br />
Executive Summary 8<br />
LITERATURE REVIEW 10<br />
Background 10<br />
Study objectives and methods 10<br />
Contribution of carers to the economy 11<br />
<strong>Care</strong>rs in palliative care 12<br />
Definition and characteristics of carers 12<br />
Tasks performed by carers 14<br />
Characteristics of recipients of care 15<br />
Impact of caring on carers: physical, social & psychological 16<br />
Impact on physical, mental and social <strong>we</strong>llbeing 17<br />
Impact on economic <strong>we</strong>llbeing 20<br />
Positive aspects of caring 21<br />
Coping with caregiving 22<br />
Issues of special groups of carers 23<br />
Women carers 23<br />
<strong>Care</strong>rs in rural and remote areas 23<br />
<strong>Care</strong>rs from culturally and linguistically diverse backgrounds (CALD) 24<br />
Indigenous carers 25<br />
<strong>Care</strong>rs of children and children as carers 26<br />
Older carers 26<br />
<strong>Care</strong>rs of people with neurodegenerative conditions 27<br />
Needs and barriers 28<br />
Information and support needs 28<br />
Barriers to seeking support 29<br />
Financial needs 30<br />
Gaps in service provision and support 31<br />
Gaps in research enhancing knowledge and support for carers 32<br />
Impact of policy on carers’ <strong>we</strong>llbeing 34<br />
Conclusion 37<br />
4 THE HARDEST THING WE HAVE EVER DONE: <strong>The</strong> Social Impact of Caring for Terminally Ill People in <strong>Australia</strong>, 2004
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