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The hardest thing we have ever done - Palliative Care Australia

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Dawson, S., & Kristjanson, L. (2003). Mapping <strong>The</strong> Journey: Family <strong>Care</strong>rs’ Perceptions of<br />

Issues Related to End-Stage <strong>Care</strong> of Individuals with Muscular Dystrophy or Motor Neurone<br />

Disease. Journal of <strong>Palliative</strong> <strong>Care</strong>, 19(1), 36-42.<br />

Deeley, L., Stallard, P., Lewis, M., & Lenton, S. (1998). <strong>Palliative</strong> care services for children must<br />

adopt a family centred approach. British Medical Journal, 317, 284.<br />

Denham, SA. (1999). Part 2: Family health during and after death of a family member.<br />

J Family Nursing, 5(2): 160-183.<br />

Dodson, M. (1995). Indigenous Health. Aboriginal and Torres Strait Islander Social Justice<br />

Commission Report. Canberra: <strong>Australia</strong>n Government Publishing Service.<br />

Emanuel, E., Fairclough, D., Slutsman, J., & Emanuel, L. (2000). Understanding Economic and<br />

Other Burdens of Terminal Illness: <strong>The</strong> Experience of Patients and <strong>The</strong>ir <strong>Care</strong>givers. Annals of<br />

Internal Medicine, 132(6), 451-459.<br />

Federation of Ethnic Communities Councils of <strong>Australia</strong> (2003). Submission to <strong>Palliative</strong> care<br />

<strong>Australia</strong> in response to the National Inquiry into the Social Impact of Caring for the<br />

Terminally-Ill.<br />

Fisher, C. (2003). <strong>The</strong> invisible dimension: Abuse in palliative care families. Journal of<br />

<strong>Palliative</strong> Medicine 6 (2): 257-264.<br />

Folkman, S. (1997). Positive psychological states and coping with s<strong>ever</strong>e stress. Soc Sci Med<br />

45(8): 1207-21.<br />

Fried, O. (2003). Why worry about Indigenous palliative care? Proceedings of the 7th<br />

<strong>Australia</strong>n <strong>Palliative</strong> <strong>Care</strong> Conference, Adelaide, September 2003.<br />

Fried, O. (2001). Women in <strong>Palliative</strong> <strong>Care</strong>. Proceedings of the Fourth Women’s Health<br />

Conference. Adelaide.<br />

Given, BA., Given, GW. & Stommel, M. (1994). Family and out-of-pocket costs for women<br />

with breast cancer. Cancer Practice 2 (3):189-93.<br />

Grande, GE., Addington-Hall, JM. & Todd, CJ (1998). Place of death and access to home care<br />

services: Are certain patients groups at a disadvantage? Social Science Medicine 47(5):<br />

565-579.<br />

Grbich, C., Parker, D., & Maddocks, I. (2001). <strong>The</strong> Emotions and Coping Strategies of<br />

<strong>Care</strong>givers of Family Members with a Terminal Cancer. Journal of <strong>Palliative</strong> <strong>Care</strong>, 17(1),<br />

30-36.<br />

Harding, R., & Higginson, I. (2003). What is the best way to help caregivers in cancer and<br />

palliative care? A systematic literature review of interventions and their effectiveness.<br />

<strong>Palliative</strong> Medicine, 17: 63-74.<br />

Henwood, M. (1998). Ignored and invisible? <strong>Care</strong>rs experience of the NHS, <strong>Care</strong>rs National<br />

Association, London.<br />

Hudson, P. (in press). A critical review of supportive interventions for family caregivers of<br />

palliative stage cancer patients. Journal of Psychosocial Oncology.<br />

Hudson, P. (2004). Positive aspects and challenges associated with caring for a dying relative<br />

at home. International journal of <strong>Palliative</strong> Nursing, 10(2):58-66.<br />

Hudson, P. (2003). Home-based support for palliative care families: challenges and<br />

recommendations. Medical Journal of <strong>Australia</strong>, 179: S35-S37.<br />

Hudson, P. (1998). <strong>The</strong> educational needs of lay carers. European Journal of <strong>Palliative</strong> <strong>Care</strong><br />

5(6):183-186.<br />

64 THE HARDEST THING WE HAVE EVER DONE: <strong>The</strong> Social Impact of Caring for Terminally Ill People in <strong>Australia</strong>, 2004

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