The hardest thing we have ever done - Palliative Care Australia

Conclusions based on public submissions by carers and service providers 61
References 63
Appendix: List of Contributors to the National Inquiry 69
Service providers 69
Individual carers 69
Newsletters and other printed material 70
Glossary of Terms 71
List of Figures
Table 1: Profile of primary carers 13
Figure 1: Tasks performed by carers of terminally ill people 15
Table 2: The ten most common health conditions of recipients of care 15
Table 3:
A selection of recent national and international studies/reviews
on carers in cancer and palliative care 17
Table 4: Effects of caring on the physical health of carers 18
Table 5: Effects of caring on the mental health of carers 19
Table 6: Effect of caring on life opportunities 19
Table 7: Effect of caring on the employment and financial status of carers 20
Table 8:
Carers’ way of coping with stress on their own or involving
informal or formal support 22
6 THE HARDEST THING WE HAVE EVER DONE: The Social Impact of Caring for Terminally Ill People in Australia, 2004