The hardest thing we have ever done - Palliative Care Australia

McGrath, P. (2001b). Returning Home after Specialist Treatment for Hematological
Malignancies: An Australian Study. Fam Community Health, 24, 36-48.
McGrath, P. (2001c). Identifying Support Issues of Parents of Children with Leukemia. Cancer
Practice, 9(4), 198-205.
McGrath, P. (2001d). Trained volunteers for families coping with a child with life-limiting
condition. Child and Family Social Work, 6, 23-29.
McGrath, P. (2000a). “It’s horrendous – but really, what can you do?” Preliminary findings on
financial impact of relocation for specialist treatment. Australian Health Review, 23(3), 94-
103.
McGrath, P. (2000b). Post-treatment support for patients with haematological malignancies:
findings from regional, rural and remote Queensland. Australian Health Review, 23(4), 142-
150.
McIntyre, R. (1999). Support for family and carers. In J. Lugton & M. Kindlen (Eds.), Palliative
care: the nursing role. Edinburgh: Churchill Livingstone.
Mental Health Council of Australia (2000). Carers of people with mental illness project- final
report. The Mental Health Council of Australia in partnership with the Carers Association of
Australia. Canberra.
Morris, M., Robinson, J., Simpson, J., et al (1999). The changing nature of home care and its
impact on women’s vulnerability to poverty. Canadian Research Institute for the Advancement
of Women. www.dsp-psd.communications.gc.ca/collection/sw21-42-1999-1E.pdf
Nankervis, J., Waxman, P., O’Hara, D. & Burbidge, M. (2002). Caring for family carers in
general practice. Medical Journal of Australia 177 (8): 408-410.
National Alliance for Caregivers and the American Association for Retired Persons (1997).
Family caregiving in the US: Findings from a national survey.
http://www.caregiving.org/content/repsprods.asp
Navaie-Waliser, M., Feldman, P., Gould, D., Levine, C., Kuerbis, A. & Donelan, K. (2002). When
the caregiver needs care: the plight of vulnerable caregivers. American Journal of Public
Health, 92 (3): 409-413.
Nay, R. (1997). Relatives’ experiences of nursing home life: characterised by tension.
Australian Journal on Ageing, 16: 24-29.
Nikoletti, S., Kristjanson, L., Tataryn, D., McPhee, I., & Burt, L. (2003). Information Needs and
Coping Styles of Primary Family Caregivers of Women Following Breast Cancer Surgery.
Oncology Nursing Forum, 30(6), 987-996
NSW Health Palliative Care Working Party (1998). Report New South Wales: Department of
Health.
O’Connell, B., Bailey, S., & Walker, A. (2003). Promoting the health and well being of older
carers: A proactive strategy. Australian Health Review, 26(2), 78-86.
Office of Women’s Affairs (1994). The Price of Care: A Progress Report on Women as Carers:
Office of Women’s Affairs, Victoria.
Oldham L & Kristjanson LJ (2004). Developing and testing a pain management program for
family carers of advanced cancer patients. International Journal of Palliative Nursing,10
(2):1-9.
Palliative Care Australia (2003). Palliative care service provision in Australia: A planning
guide-second edition. Canberra: PCA.
66 THE HARDEST THING WE HAVE EVER DONE: The Social Impact of Caring for Terminally Ill People in Australia, 2004