The hardest thing we have ever done - Palliative Care Australia

PUBLIC SUBMISSIONS 39
Introduction and overview 39
The impact of caring through the voice of carers 40
The mental and emotional impact of caring 40
The physical impact of caring 41
The social impact of caring 42
The impact of caring on work opportunities 43
The financial impact of caring 44
The impact of caring in rural areas 45
The need for support services 46
Positive feedback about palliative care and other services 47
Positive feedback about the role of caring 49
Seeking community recognition: suggestions to publicise the impact of caring 50
Summary of carers’ suggestions to ease the burden of caring 50
Information and Education 50
Support services and respite 50
Financial support 51
Support from workplaces 51
Support for rural people 51
Community recognition 51
The needs of carers through the voice of service providers 52
Description of impact of caring for dying people on carers by service providers 52
Gaps in services and recommendations by service providers 53
Information and education 53
Financial and employment difficulties 54
Support service funding and access 55
Recognition 56
Issues for special groups 56
People in regional and rural Australia 56
Aged people 57
Young people 57
People with haematological conditions 57
People with neurodegenerative conditions 58
Indigenous people 59
People from culturally and linguistically diverse backgrounds (CALD) 60
THE HARDEST THING WE HAVE EVER DONE: The Social Impact of Caring for Terminally Ill People in Australia, 2004
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