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human rights and legislation who resource book on mental health

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<strong>mental</strong>ly ill offender. Countries may also choose to legislate that family groups should be<br />

represented <strong>on</strong> review bodies (see subsecti<strong>on</strong> 13.2.1 below).<br />

Legislati<strong>on</strong> can also ensure that family members are involved in the development of <strong>mental</strong><br />

<strong>health</strong> policy <str<strong>on</strong>g>and</str<strong>on</strong>g> <str<strong>on</strong>g>legislati<strong>on</strong></str<strong>on</strong>g>, as well as <strong>mental</strong> <strong>health</strong> service planning. In the United States,<br />

Public Law 99-660, the Health Care Quality Improvement Act (1986), m<str<strong>on</strong>g>and</str<strong>on</strong>g>ates that each state<br />

should establish a “planning council” that must c<strong>on</strong>sist of at least 51% users <str<strong>on</strong>g>and</str<strong>on</strong>g> relatives. This<br />

planning council is to be resp<strong>on</strong>sible for the creati<strong>on</strong> <str<strong>on</strong>g>and</str<strong>on</strong>g> <strong>on</strong>going m<strong>on</strong>itoring of an annual statewide<br />

service system plan that must be approved by the council.<br />

An exhaustive coverage of all situati<strong>on</strong>s where families’ involvement becomes necessary is<br />

impossible. Instead, <str<strong>on</strong>g>legislati<strong>on</strong></str<strong>on</strong>g> can codify the principle that family members <str<strong>on</strong>g>and</str<strong>on</strong>g> family<br />

organizati<strong>on</strong>s are important stakeholders in the <strong>mental</strong> <strong>health</strong> system, <str<strong>on</strong>g>and</str<strong>on</strong>g> may therefore be<br />

represented in all forums <str<strong>on</strong>g>and</str<strong>on</strong>g> agencies where strategic decisi<strong>on</strong>s regarding <strong>mental</strong> <strong>health</strong><br />

services are made.<br />

Families <str<strong>on</strong>g>and</str<strong>on</strong>g> carers of people with <strong>mental</strong> disorders: Key issues<br />

• It is comm<strong>on</strong> for families <str<strong>on</strong>g>and</str<strong>on</strong>g> carers to assume major resp<strong>on</strong>sibility for looking after<br />

pers<strong>on</strong>s with <strong>mental</strong> disorders, <str<strong>on</strong>g>and</str<strong>on</strong>g> <str<strong>on</strong>g>legislati<strong>on</strong></str<strong>on</strong>g> needs to reflect this.<br />

• Legislati<strong>on</strong> should not arbitrarily refuse informati<strong>on</strong> merely <strong>on</strong> the ground of<br />

c<strong>on</strong>fidentiality – though the extent of an individual’s right to c<strong>on</strong>fidentiality is likely to vary<br />

from culture to culture.<br />

• Families <str<strong>on</strong>g>and</str<strong>on</strong>g> carers can play an important role in c<strong>on</strong>tributing to the formulati<strong>on</strong> <str<strong>on</strong>g>and</str<strong>on</strong>g><br />

implementati<strong>on</strong> of a treatment plan for the patient, especially if the patient is incapable of<br />

doing this al<strong>on</strong>e.<br />

• Legislati<strong>on</strong> can ensure that families <str<strong>on</strong>g>and</str<strong>on</strong>g> carers have access to the support <str<strong>on</strong>g>and</str<strong>on</strong>g> services they<br />

require in caring for a pers<strong>on</strong> with a <strong>mental</strong> disorder.<br />

• Legislati<strong>on</strong> can ensure involvement of families <str<strong>on</strong>g>and</str<strong>on</strong>g> carers in many aspects of <strong>mental</strong> <strong>health</strong><br />

services, as well as the legal processes such as involuntary admissi<strong>on</strong> <str<strong>on</strong>g>and</str<strong>on</strong>g> appeal.<br />

• Legislati<strong>on</strong> can also ensure that family members <str<strong>on</strong>g>and</str<strong>on</strong>g> carers are involved in the development<br />

of <strong>mental</strong> <strong>health</strong> policy <str<strong>on</strong>g>and</str<strong>on</strong>g> <str<strong>on</strong>g>legislati<strong>on</strong></str<strong>on</strong>g>, as well as <strong>mental</strong> <strong>health</strong> service planning.<br />

7. Competence, capacity <str<strong>on</strong>g>and</str<strong>on</strong>g> guardianship<br />

Most pers<strong>on</strong>s with <strong>mental</strong> disorders retain the ability to make informed choices <str<strong>on</strong>g>and</str<strong>on</strong>g> decisi<strong>on</strong>s<br />

regarding important matters affecting their lives. However, in those with severe <strong>mental</strong> disorders,<br />

this ability might be impaired. In these circumstances, <str<strong>on</strong>g>legislati<strong>on</strong></str<strong>on</strong>g> must have suitable provisi<strong>on</strong>s<br />

that allow managing the affairs of people with <strong>mental</strong> disorders in their best interests.<br />

Two c<strong>on</strong>cepts that are central to decisi<strong>on</strong>s about whether or not a pers<strong>on</strong> may make choices<br />

c<strong>on</strong>cerning various issues are “competence” <str<strong>on</strong>g>and</str<strong>on</strong>g> “capacity”. These c<strong>on</strong>cepts affect treatment<br />

decisi<strong>on</strong>s in civil <str<strong>on</strong>g>and</str<strong>on</strong>g> criminal cases, <str<strong>on</strong>g>and</str<strong>on</strong>g> the exercise of civil <str<strong>on</strong>g>rights</str<strong>on</strong>g> by pers<strong>on</strong>s with <strong>mental</strong><br />

disorders. Legislati<strong>on</strong> may therefore need to define capacity <str<strong>on</strong>g>and</str<strong>on</strong>g> competence, state the criteria<br />

for determining them, lay down the procedure for assessing them, <str<strong>on</strong>g>and</str<strong>on</strong>g> identify the acti<strong>on</strong>s that<br />

need to be taken when there is a finding of lack of capacity <str<strong>on</strong>g>and</str<strong>on</strong>g>/or competence.<br />

7.1 Definiti<strong>on</strong>s<br />

There is a tendency to use the terms “capacity” <str<strong>on</strong>g>and</str<strong>on</strong>g> “competence” interchangeably in relati<strong>on</strong><br />

to <strong>mental</strong> <strong>health</strong>; however, they are not the same. Generally, capacity refers specifically to the<br />

presence of <strong>mental</strong> abilities to make decisi<strong>on</strong>s or to engage in a course of acti<strong>on</strong> (see subsecti<strong>on</strong><br />

3.3 c<strong>on</strong>cerning the c<strong>on</strong>cept of “<strong>mental</strong> incapacity”), while competence refers to the legal<br />

c<strong>on</strong>sequences of not having the <strong>mental</strong> capacity.<br />

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