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human rights and legislation who resource book on mental health

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10.1 Major medical <str<strong>on</strong>g>and</str<strong>on</strong>g> surgical procedures<br />

MI Principles: Major medical or surgical procedures<br />

A major medical or surgical procedure may be carried out <strong>on</strong> a pers<strong>on</strong> with <strong>mental</strong> illness <strong>on</strong>ly<br />

where it is permitted by domestic law, where it is c<strong>on</strong>sidered that it would best serve the <strong>health</strong><br />

needs of the patient <str<strong>on</strong>g>and</str<strong>on</strong>g> where the patient gives informed c<strong>on</strong>sent, except that, where the<br />

patient is unable to give informed c<strong>on</strong>sent, the procedure shall be authorized <strong>on</strong>ly after<br />

independent review.<br />

(Principle 11(13), MI Principles)<br />

Major medical or surgical procedures <strong>on</strong> patients with <strong>mental</strong> disorders should generally <strong>on</strong>ly be<br />

performed after obtaining free <str<strong>on</strong>g>and</str<strong>on</strong>g> informed c<strong>on</strong>sent. The ethical st<str<strong>on</strong>g>and</str<strong>on</strong>g>ards governing these<br />

treatments should apply both to n<strong>on</strong>-<strong>mental</strong>-<strong>health</strong> patients <str<strong>on</strong>g>and</str<strong>on</strong>g> <strong>mental</strong> <strong>health</strong> patients alike. If<br />

a patient lacks the capacity to give informed c<strong>on</strong>sent, <str<strong>on</strong>g>legislati<strong>on</strong></str<strong>on</strong>g> may permit such procedures<br />

<strong>on</strong>ly under excepti<strong>on</strong>al circumstances <str<strong>on</strong>g>and</str<strong>on</strong>g> with adequate safeguards.<br />

Medical <str<strong>on</strong>g>and</str<strong>on</strong>g> surgical procedures without c<strong>on</strong>sent may be permitted if they are deemed to be life<br />

saving, <str<strong>on</strong>g>and</str<strong>on</strong>g> if delay due to waiting for restorati<strong>on</strong> of the patient’s capacity to c<strong>on</strong>sent would put<br />

that patient’s life at risk. In rare cases of <strong>mental</strong> illness or profound <strong>mental</strong> retardati<strong>on</strong>, where the<br />

patient’s lack of capacity to c<strong>on</strong>sent is likely to be permanent, medical <str<strong>on</strong>g>and</str<strong>on</strong>g> surgical interventi<strong>on</strong>s<br />

may also be necessary without c<strong>on</strong>sent. In these situati<strong>on</strong>s, the proposed medical or surgical<br />

treatment may be authorized either by an independent review body or, in countries where the<br />

law permits, a proxy c<strong>on</strong>sent by a guardian, relative or pers<strong>on</strong>al representative. In other<br />

instances, medical <str<strong>on</strong>g>and</str<strong>on</strong>g> surgical treatment must be delayed until the patient’s <strong>mental</strong> state<br />

improves to a point where he/she has the capacity to make a treatment decisi<strong>on</strong>.<br />

Where emergency medical <str<strong>on</strong>g>and</str<strong>on</strong>g> surgical treatment is necessary to save a patient’s life or prevent<br />

irreparable deteriorati<strong>on</strong> in his/her physical <strong>health</strong>, a pers<strong>on</strong> with a <strong>mental</strong> disorder should be<br />

entitled to the same treatment available to other pers<strong>on</strong>s without <strong>mental</strong> disorders <str<strong>on</strong>g>who</str<strong>on</strong>g> are not<br />

able to c<strong>on</strong>sent (e.g. unc<strong>on</strong>scious patients). Legislati<strong>on</strong> governing emergency medical <str<strong>on</strong>g>and</str<strong>on</strong>g><br />

surgical treatment given without c<strong>on</strong>sent to all pers<strong>on</strong>s should thus also cover pers<strong>on</strong>s with<br />

<strong>mental</strong> disorders. Medical services carry the resp<strong>on</strong>sibility of providing <str<strong>on</strong>g>and</str<strong>on</strong>g> justifying the<br />

appropriateness of such emergency medical <str<strong>on</strong>g>and</str<strong>on</strong>g> surgical treatment.<br />

10.2 Psychosurgery <str<strong>on</strong>g>and</str<strong>on</strong>g> other irreversible treatments<br />

MI Principles: Psychosurgery <str<strong>on</strong>g>and</str<strong>on</strong>g> other intrusive <str<strong>on</strong>g>and</str<strong>on</strong>g> irreversible treatments<br />

Psychosurgery <str<strong>on</strong>g>and</str<strong>on</strong>g> other intrusive <str<strong>on</strong>g>and</str<strong>on</strong>g> irreversible treatments for <strong>mental</strong> illness shall never be<br />

carried out <strong>on</strong> a patient <str<strong>on</strong>g>who</str<strong>on</strong>g> is an involuntary patient in a <strong>mental</strong> <strong>health</strong> facility <str<strong>on</strong>g>and</str<strong>on</strong>g>, to the<br />

extent that domestic law permits them to be carried out, they may be carried out <strong>on</strong> any other<br />

patient <strong>on</strong>ly where the patient has given informed c<strong>on</strong>sent <str<strong>on</strong>g>and</str<strong>on</strong>g> an independent external body<br />

has satisfied itself that there is genuine informed c<strong>on</strong>sent <str<strong>on</strong>g>and</str<strong>on</strong>g> that the treatment best serves the<br />

<strong>health</strong> needs of the patient.<br />

(Principle 11(14), MI Principles)<br />

Psychosurgery <str<strong>on</strong>g>and</str<strong>on</strong>g> other irreversible <strong>mental</strong> <strong>health</strong> treatments generally should not be permitted<br />

to be performed <strong>on</strong> people unable to give informed c<strong>on</strong>sent. In view of the irreversible nature of<br />

certain treatments, <str<strong>on</strong>g>legislati<strong>on</strong></str<strong>on</strong>g> may provide an additi<strong>on</strong>al level of protecti<strong>on</strong> to c<strong>on</strong>senting<br />

patients by making it m<str<strong>on</strong>g>and</str<strong>on</strong>g>atory that an independent review body, or similar safeguard, sancti<strong>on</strong><br />

the treatment. The review body (or other safeguarding structure) should interview the patient,<br />

ensure that the patient has the capacity to give, <str<strong>on</strong>g>and</str<strong>on</strong>g> has in fact given, informed c<strong>on</strong>sent, <str<strong>on</strong>g>and</str<strong>on</strong>g><br />

review the patient’s medical/psychiatric history <str<strong>on</strong>g>and</str<strong>on</strong>g> records. The review body/safeguard must be<br />

63

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