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Tel: (045) 839-4040 Emergency: (A/H) 083-272-0955 ° Editorial: sonjar@timesmedia.co.za - advertising: charodinev@timesmedia.co.za<br />

THE REPRESENTATIVE <strong>31</strong> <strong>March</strong> 2017<br />

Fundraising drive<br />

for rehab project<br />

NPO on board to assist with Komani venture<br />

ABONGILE SOLUNDWANA<br />

RESTORE SONKE managing director<br />

Charlene Williams is on a mission to<br />

make her dream of opening a drug<br />

rehabilitation centre in Komani a<br />

realit y.<br />

Williams has partnered with<br />

Across Culture Foundation (ACF), a<br />

registered South African-based<br />

non-profit organisation that tackles<br />

issues in society by assisting with<br />

fundraising.<br />

ACF operating officer Minnie<br />

Murphy, with her husband Laurence,<br />

from Cape Town, will be hosting a<br />

party to raise funds for the rehab at<br />

the Wesley Methodist hall in Ebden<br />

Street, on April 15.<br />

Williams said, “This is for people<br />

to know the Restore Sonke centre is<br />

real and that we need sponsorship<br />

STANDING TOGETHER: Johan and Marlene Stals and<br />

their children Mikaylah, left, and Hayleigh<br />

for this R6-million dream. People<br />

can come and join us.”<br />

Williams said the centre currently<br />

only offered counselling to youth<br />

who suffered from drug addiction<br />

from her home office in Victoria<br />

Pa r k .<br />

“I have a long list of clients who<br />

can not benefit from counselling<br />

alone, but who need to participate<br />

in a detox programme followed by a<br />

rehabilitation programme, which I<br />

can not do. I have one client who<br />

used to spend R800 on drugs per<br />

day. Some women sell themselves<br />

to their dealers who dictate who<br />

they should sleep with in order to<br />

get drugs.”<br />

Williams is so determined to<br />

achieve her goal that she has<br />

already secured a place at Palloti<br />

Farm, a Catholic property located<br />

Family’s desperate bid to help daughter<br />

SONJA RAASCH<br />

A FORMER Komani woman is involved<br />

in a massive battle to raise both<br />

awareness of Fanconi Anaemia (FA)<br />

and funds to help her eight-year-old<br />

daughter, Hayleigh, who is battling the<br />

genetic condition.<br />

Although Marlene Stals now lives in<br />

East London, she still returns to<br />

Komani to participate in the Twizza<br />

Bonkolo marathon and Longhill<br />

Challenge.<br />

She was born here and attended<br />

Balmoral Girls’ Primary School, Girls’<br />

High School and Ikhala College (then<br />

the Queenstown Technical College).<br />

Her parents still live here and<br />

Marlene said she, husband Johan and<br />

their two daughters – Hayleigh and<br />

Mikaylah – return regularly for runs or<br />

cycling events in the area.<br />

“<strong>The</strong> best part about Queenstown is<br />

going through for a weekend, popping<br />

in to a shop or going to a sporting<br />

event and people still chat to you as if<br />

you’ve never left, there’s always<br />

someone to give you a ‘hello’ hug. It<br />

will always be home.”<br />

near Royden. “<strong>The</strong> farm was<br />

previously used for retreats and<br />

church events. We are going to pay<br />

rent. <strong>The</strong>y have a place for 500<br />

people in different buildings with<br />

beds and linen.”<br />

She had reached an agreement<br />

with the owners that the farm<br />

workers from the area would receive<br />

employment when the project<br />

started operating. Williams said<br />

they would run a garden which<br />

would be serviced by patients<br />

unable to afford rehab.<br />

“<strong>The</strong>y will earn an income which<br />

they will learn to use without<br />

spending it on drugs.”<br />

Patients will be given woodwork<br />

skills to make furniture from pallets<br />

which they can use to earn a living<br />

after completion of the time in<br />

rehab.<br />

<strong>The</strong> Stals’ peaceful family life was<br />

disrupted when, two weeks before her<br />

eighth birthday earlier this year,<br />

Hayley was diagnosed with a rare<br />

genetic condition, Fanconi Anemia.<br />

<strong>The</strong> condition leads to bone marrow<br />

failure, leukemia and other forms of<br />

c a n c e r.<br />

“It is a recessive disorder. If both<br />

parents carry a defect [mutation] in<br />

the same FA gene, each of their<br />

children has a 25% chance of<br />

inheriting the defective gene from both<br />

parents. When this happens, the child<br />

will have FA.”<br />

Although it is considered to be<br />

primarily a blood disease, FA can<br />

affect all systems of the body with<br />

many patients eventually developing<br />

acute myeloid leukemia at an early<br />

age.<br />

Patients are also likely to develop<br />

head and neck, gynaecological, and/or<br />

gastrointestinal cancers, again at a<br />

much earlier age than the general<br />

p o p u l at i o n .<br />

Patients who have had a successful<br />

bone marrow transplant and are cured<br />

of the blood problem associated with<br />

FOR THE GREATER GOOD: Laurence Murphy with his wife, Across Culture<br />

Foundation operating officer Minnie, from Cape Town, are due to host their<br />

70th birthday celebration to raise funds for Restore Sonke rehabilitation<br />

centre in Komani<br />

Picture: ABONGILE SOLUNDWANA<br />

FA, must stil have regular<br />

examinations to watch for signs of<br />

c a n c e r.<br />

“As it stands now, Hayleigh will<br />

need a bone marrow transplant to<br />

cure the bone marrow failure<br />

associated with FA.”<br />

<strong>The</strong> Stals family found out that their<br />

daughter was suffering from FA when<br />

her blood would not clot during an<br />

operation earlier this year.<br />

She is currently in Grade 2 at<br />

Stirling Primary School but is being<br />

schooled at home until her transplant<br />

has been completed.<br />

“We realise we can’t tackle this<br />

huge journey of recovery for her<br />

without the support of our family,<br />

friends and community. Our aim is to<br />

raise funds to cover the medical costs<br />

associated with this disease that are<br />

not covered by medical aid, together<br />

with treatments and trips to Cape<br />

Town to start and complete the bone<br />

marrow transplant process. “<br />

Hayleigh will be away from home for<br />

four months during the transplant and<br />

will be accompanied by a parent.<br />

Her younger sister has proven to be<br />

a good match, but the transplant team<br />

has since extended the search to the<br />

Bone Marrow Registry<br />

(www.sunflower fund.org.za). Two<br />

potential donors have been found.<br />

Stals said she had been inundated<br />

with people asking if they could be<br />

tested to see if they were a match for<br />

H ay l e i g h .<br />

“We ’ve said if they’re so passionate<br />

about it, they should register with the<br />

fund anyway, they may be able to save<br />

someone else’s life. <strong>The</strong> statistics on<br />

people waiting for bone marrow<br />

matches in South Africa are scary.”<br />

<strong>The</strong> family are trying to create<br />

awareness and raise funds for the<br />

Fanconi Anemia Research Foundation<br />

to assist with research and would like<br />

to have more people register as bone<br />

marrow donors. <strong>The</strong>y are also waiting<br />

for medical aid approval for Hayleigh’s<br />

transplant and related donor costs.<br />

“We are asking individuals and<br />

businesses who would like to make a<br />

donation or assist with fundraising, to<br />

please contact us via e-mail on<br />

marlene.stals@gmail.com or<br />

j jstals@yahoo.com.”<br />

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