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Tel: (045) 839-4040 Emergency: (A/H) 083-272-0955 ° Editorial: sonjar@timesmedia.co.za - advertising: charodinev@timesmedia.co.za<br />
THE REPRESENTATIVE <strong>31</strong> <strong>March</strong> 2017<br />
Fundraising drive<br />
for rehab project<br />
NPO on board to assist with Komani venture<br />
ABONGILE SOLUNDWANA<br />
RESTORE SONKE managing director<br />
Charlene Williams is on a mission to<br />
make her dream of opening a drug<br />
rehabilitation centre in Komani a<br />
realit y.<br />
Williams has partnered with<br />
Across Culture Foundation (ACF), a<br />
registered South African-based<br />
non-profit organisation that tackles<br />
issues in society by assisting with<br />
fundraising.<br />
ACF operating officer Minnie<br />
Murphy, with her husband Laurence,<br />
from Cape Town, will be hosting a<br />
party to raise funds for the rehab at<br />
the Wesley Methodist hall in Ebden<br />
Street, on April 15.<br />
Williams said, “This is for people<br />
to know the Restore Sonke centre is<br />
real and that we need sponsorship<br />
STANDING TOGETHER: Johan and Marlene Stals and<br />
their children Mikaylah, left, and Hayleigh<br />
for this R6-million dream. People<br />
can come and join us.”<br />
Williams said the centre currently<br />
only offered counselling to youth<br />
who suffered from drug addiction<br />
from her home office in Victoria<br />
Pa r k .<br />
“I have a long list of clients who<br />
can not benefit from counselling<br />
alone, but who need to participate<br />
in a detox programme followed by a<br />
rehabilitation programme, which I<br />
can not do. I have one client who<br />
used to spend R800 on drugs per<br />
day. Some women sell themselves<br />
to their dealers who dictate who<br />
they should sleep with in order to<br />
get drugs.”<br />
Williams is so determined to<br />
achieve her goal that she has<br />
already secured a place at Palloti<br />
Farm, a Catholic property located<br />
Family’s desperate bid to help daughter<br />
SONJA RAASCH<br />
A FORMER Komani woman is involved<br />
in a massive battle to raise both<br />
awareness of Fanconi Anaemia (FA)<br />
and funds to help her eight-year-old<br />
daughter, Hayleigh, who is battling the<br />
genetic condition.<br />
Although Marlene Stals now lives in<br />
East London, she still returns to<br />
Komani to participate in the Twizza<br />
Bonkolo marathon and Longhill<br />
Challenge.<br />
She was born here and attended<br />
Balmoral Girls’ Primary School, Girls’<br />
High School and Ikhala College (then<br />
the Queenstown Technical College).<br />
Her parents still live here and<br />
Marlene said she, husband Johan and<br />
their two daughters – Hayleigh and<br />
Mikaylah – return regularly for runs or<br />
cycling events in the area.<br />
“<strong>The</strong> best part about Queenstown is<br />
going through for a weekend, popping<br />
in to a shop or going to a sporting<br />
event and people still chat to you as if<br />
you’ve never left, there’s always<br />
someone to give you a ‘hello’ hug. It<br />
will always be home.”<br />
near Royden. “<strong>The</strong> farm was<br />
previously used for retreats and<br />
church events. We are going to pay<br />
rent. <strong>The</strong>y have a place for 500<br />
people in different buildings with<br />
beds and linen.”<br />
She had reached an agreement<br />
with the owners that the farm<br />
workers from the area would receive<br />
employment when the project<br />
started operating. Williams said<br />
they would run a garden which<br />
would be serviced by patients<br />
unable to afford rehab.<br />
“<strong>The</strong>y will earn an income which<br />
they will learn to use without<br />
spending it on drugs.”<br />
Patients will be given woodwork<br />
skills to make furniture from pallets<br />
which they can use to earn a living<br />
after completion of the time in<br />
rehab.<br />
<strong>The</strong> Stals’ peaceful family life was<br />
disrupted when, two weeks before her<br />
eighth birthday earlier this year,<br />
Hayley was diagnosed with a rare<br />
genetic condition, Fanconi Anemia.<br />
<strong>The</strong> condition leads to bone marrow<br />
failure, leukemia and other forms of<br />
c a n c e r.<br />
“It is a recessive disorder. If both<br />
parents carry a defect [mutation] in<br />
the same FA gene, each of their<br />
children has a 25% chance of<br />
inheriting the defective gene from both<br />
parents. When this happens, the child<br />
will have FA.”<br />
Although it is considered to be<br />
primarily a blood disease, FA can<br />
affect all systems of the body with<br />
many patients eventually developing<br />
acute myeloid leukemia at an early<br />
age.<br />
Patients are also likely to develop<br />
head and neck, gynaecological, and/or<br />
gastrointestinal cancers, again at a<br />
much earlier age than the general<br />
p o p u l at i o n .<br />
Patients who have had a successful<br />
bone marrow transplant and are cured<br />
of the blood problem associated with<br />
FOR THE GREATER GOOD: Laurence Murphy with his wife, Across Culture<br />
Foundation operating officer Minnie, from Cape Town, are due to host their<br />
70th birthday celebration to raise funds for Restore Sonke rehabilitation<br />
centre in Komani<br />
Picture: ABONGILE SOLUNDWANA<br />
FA, must stil have regular<br />
examinations to watch for signs of<br />
c a n c e r.<br />
“As it stands now, Hayleigh will<br />
need a bone marrow transplant to<br />
cure the bone marrow failure<br />
associated with FA.”<br />
<strong>The</strong> Stals family found out that their<br />
daughter was suffering from FA when<br />
her blood would not clot during an<br />
operation earlier this year.<br />
She is currently in Grade 2 at<br />
Stirling Primary School but is being<br />
schooled at home until her transplant<br />
has been completed.<br />
“We realise we can’t tackle this<br />
huge journey of recovery for her<br />
without the support of our family,<br />
friends and community. Our aim is to<br />
raise funds to cover the medical costs<br />
associated with this disease that are<br />
not covered by medical aid, together<br />
with treatments and trips to Cape<br />
Town to start and complete the bone<br />
marrow transplant process. “<br />
Hayleigh will be away from home for<br />
four months during the transplant and<br />
will be accompanied by a parent.<br />
Her younger sister has proven to be<br />
a good match, but the transplant team<br />
has since extended the search to the<br />
Bone Marrow Registry<br />
(www.sunflower fund.org.za). Two<br />
potential donors have been found.<br />
Stals said she had been inundated<br />
with people asking if they could be<br />
tested to see if they were a match for<br />
H ay l e i g h .<br />
“We ’ve said if they’re so passionate<br />
about it, they should register with the<br />
fund anyway, they may be able to save<br />
someone else’s life. <strong>The</strong> statistics on<br />
people waiting for bone marrow<br />
matches in South Africa are scary.”<br />
<strong>The</strong> family are trying to create<br />
awareness and raise funds for the<br />
Fanconi Anemia Research Foundation<br />
to assist with research and would like<br />
to have more people register as bone<br />
marrow donors. <strong>The</strong>y are also waiting<br />
for medical aid approval for Hayleigh’s<br />
transplant and related donor costs.<br />
“We are asking individuals and<br />
businesses who would like to make a<br />
donation or assist with fundraising, to<br />
please contact us via e-mail on<br />
marlene.stals@gmail.com or<br />
j jstals@yahoo.com.”<br />
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