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Selwyn Times: November 07, 2017

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8 Wednesday <strong>November</strong> 8 <strong>2017</strong><br />

Latest Christchurch news at www.star.kiwi<br />

The Maddie story<br />

SELWYN TIMES<br />

Pages 8, 9 & 10<br />

Family’s long journey to give their<br />

It has been nearly nine years since West Melton<br />

teenager Maddie Collins was diagnosed with kidney<br />

disease. Bridget Rutherford reports on the battle to<br />

give the 13-year-old a better life before it is too late<br />

IT WAS a normal day at the end<br />

of October 2008 and the Collins<br />

family was preparing to go<br />

camping at Okains Bay.<br />

But five-year-old Maddie woke<br />

up that morning with puffy eyes.<br />

Her parents Sarah and Adam<br />

didn’t think anything of it.<br />

They had just moved to West<br />

Melton from Spreydon, wanting<br />

a more rural lifestyle.<br />

“We thought ‘great, we’ve just<br />

moved rural and she’s allergic to<br />

grass and hay’,” Mrs Manson-<br />

Collins said.<br />

UNWELL: Maddie Collins in<br />

hospital as a child.<br />

They took Maddie to their GP,<br />

who said she may have something<br />

called nephrotic syndrome<br />

– a kidney disease which causes<br />

the body to excrete too much<br />

protein in urine.<br />

“I just said ‘oh, don’t be silly,<br />

just give us some antihistamines,<br />

we’re going camping tomorrow’.<br />

And he said ‘I’m very serious,<br />

you need to take her to the hospital<br />

now’.”<br />

The family didn’t go camping.<br />

And they haven’t been since.<br />

Since then, the 13-year-old has<br />

undergone more than 50 operations,<br />

been on life support twice,<br />

had both kidneys removed, one<br />

failed transplant and undergoes<br />

dialysis every night.<br />

She has been in hospital more<br />

than 300 times – the longest<br />

stint was for four months – and<br />

travels to Auckland’s Starship<br />

Hospital routinely every seven or<br />

eight weeks.<br />

“I do dialysis 12 hours a night,<br />

every night,” Maddie said.<br />

“When we go away we don’t<br />

typically take the machine, so we<br />

DOG LOVER: Maddie wants to become a vet, and has already had a lot of practice looking after<br />

the family’s dogs – Jilly, Grace, Mary and Coco.<br />

PHOTO: MARTIN HUNTER<br />

do manual bags – four over the<br />

day. It’s annoying because you<br />

can’t have sleepovers, unless you<br />

want to do manual bags, but I’m<br />

not allowed to do it.”<br />

Maddie’s parents and a family<br />

friend are the only people who<br />

can operate her dialysis machine.<br />

They have two generators just in<br />

case there is a power cut.<br />

The first time Maddie was put<br />

on life support was six months<br />

after her diagnosis.<br />

She had been on steroids and<br />

low-dose chemotherapy drugs,<br />

then one night, she woke with a<br />

sore tummy and they took her to<br />

hospital.<br />

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