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ing what to do now. How could we stop<br />
the seizures and make him comfortable.<br />
Watching your child slowing deteriorating<br />
is just as much like grieving as when you<br />
actually lose someone.”<br />
They were able to get a diagnosis of a<br />
START LIVING A FULLER<br />
LIFE WITH BETTER HEARING.<br />
Beth Hoven Au.D., Co-Owner/Audiologist<br />
Allison Kelly Au.D., Co-Owner/Audiologist<br />
Voted Best Hearing<br />
Center 2023!<br />
Opelika-Auburn News Readers’<br />
Choice Awards<br />
condition. It was making him arch backward.<br />
His legs moved constantly, and he<br />
couldn’t control it.<br />
They wanted to get Austin out of the<br />
house and took him to sporting events.<br />
Since the public is not informed on rare diseases,<br />
the Terlings overheard people saying<br />
hurtful things and were told comments,<br />
such as, “hold his head so he won’t bend<br />
backwards.”<br />
As Austin continued to have health problems,<br />
he went into respiratory failure as his<br />
lungs collapsed. He was in ICU at Children’s<br />
Hospital. For his diagnosis to be medically<br />
confirmed, two diagnoses were needed for<br />
the condition. Dr. Ruthledge at UAB was<br />
able to push his diagnosis through.<br />
A trach was inserted, and he had a feeding<br />
tube. The trach had to be changed every<br />
week. Anthony and Lindsey had to learn<br />
how to remove the medical device from<br />
their child. By law, they had to have a to-go<br />
bag next to him at all times. After 40 days<br />
in the hospital, Austin went home with his<br />
parents as his caretakers.<br />
The family was home for a week when<br />
Austin had a full-blown seizure with full<br />
body shaking. They called 911. Then the<br />
seizures began once a week for three weeks<br />
from 1 a.m. until 3 a.m. Meds were needed<br />
to stop the seizures.<br />
“We had a two-hour meeting in January<br />
2022 with his doctors, which were seven<br />
or eight,” Anthony says, “and started askmutation<br />
in the UBA5 gene that showed<br />
them a road map as to why he had the physical<br />
limitations and seizures.<br />
“We wondered if we could provide him<br />
with a quality of life,” says Anthony, “and<br />
we felt we could give him enough. When<br />
Call us today at<br />
334-521-7501<br />
to set up your<br />
hearing consultation.<br />
2415 Moore’s Mill Road, Suite 225, Hamilton Place (next to Publix), Auburn, AL 36830<br />
334.521.7501 l www.hpoal.com<br />
EAST ALABAMA LIVING 43
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