Gone are the Good 'Ole Days - Tybee Breeze

A Fundraiser will be held for
Reid at the American Legion
on September 30 th from
3-9pm! There will be a fish fry
and a silent auction with
fabulous gifts donated from
Tybee & Savannah
businesses!
Reid Schaaf is 5 years old
and was diagnosed with
Cystic Fibrosis. Reid is the
son of Walt & Nikki Schaaf,
grandson of Jim & Becky
Heflin, Walter & Joan
Schaaf, Tony & Jean
Agonosski, and nephew of
Tommy & Erika Barlow.
Cystic Fibrosis is a life-
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Tybee Breeze
threatening disorder that
causes severe lung damage
and nutritional deficiencies.
There is no cure and
respiratory failure is
the most dangerous
consequence of CF.
The Katie Beckett waiver
program acts as supplemental
insurance so families can care
for severely ill and disabled
children at home. The family
was informed in Atlanta that
they would not be eligible for
this Medicaid program. This
due to new and stricter federal
standards the state is using.
“State blindsided on cuts for kids – AJC
Friday, January 20, 2006
Funding was cut and it’s the state’s fault that
hundreds, perhaps thousands of families, will no
longer receive the government assistance they had
come to rely on for therapy and medical expenses.
The department dropped hundreds of families from
the program for disabled and medically fragile
children after it tightened its eligibility rules in
November 2004 to match the federal government’s
requirements. Under new and stricter federal
standards the state is using, some 1,900 children
no longer qualify for assistance. Upset parents
flooded lawmakers and the governor’s office with
complaints, saying their children were suffering
because they couldn’t afford the therapy and
medication that previously had been covered…”
The most important part of Reid’s daily treatment
regimen is clearing mucus from his lungs. In order
to keep his airways clear, a $16,000 piece of
equipment called The Vest Airway Clearance
System was purchased. This consists of an
inflatable vest connected by tubes to an air-pulse