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Long-Term Care - Illinois General Assembly

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We have a program that many of our centers participate in that's a community reintegration<br />

program that works with people with disabilities to move them out of nursing homes. There are<br />

disturbing stories among these cases that demonstrate how some placements occur. One<br />

person had severe asthma and had one attack that landed her in the hospital. She didn't have<br />

air conditioning in her apartment, and rather than just look for a way to get her an air<br />

conditioner, she was put in a nursing home.<br />

A young man who suffered a spinal cord injury in an accident ran out of health insurance<br />

coverage for his rehabilitation. This particular young man had been waiting 5 years for that<br />

rehab and it never came.<br />

There is something missing in how we decide who goes into a nursing home. One of the things<br />

that the people who make decisions and policies in our state need to understand is that having<br />

a disability is not the same as being sick. With the right kind of services and supports, if you<br />

have a disability, you still can go out and have a very productive life. That might mean you need<br />

a personal assistant, who comes in and lifts you out of bed every morning and gives you a bath,<br />

but you still can do it.<br />

If you're 25 and you wind up in a nursing home, you tend think the same that it’s the end of your<br />

life, because that's the mindset. You don't go to a nursing home to live. You go there to die. It<br />

doesn't matter how old you are. If that's where you wind up, and you are surrounded by people<br />

who truly are sick and are older, it's not long before you feel that same way.<br />

Some of the problems in our system that we need to look at are things that would be much less<br />

costly than having somebody moved to a nursing home, including home modifications. Some<br />

aging people develop severe arthritis, or something that prevents them from being fully mobile.<br />

They may need a ramp on their house, or bars in the bathroom. It would make more sense to<br />

install these supports than to send these persons to a nursing home.<br />

The disparity of services between people under 60 and over 60 is another thing. If a person is<br />

under 60, they may be able to hire a personal assistant that enables him, or her, to live at home.<br />

This means the person can continue to have a really good life. If you're over 60, this option may<br />

not be available. The person can receive homemaker services, or other supports, but not<br />

personal assistants. That option is no longer available when the disabled person is older than<br />

60.<br />

It's time to return our nursing homes to what they're supposed to be, and to take people who<br />

don't need nursing home care and let them live at home with the supports they need.<br />

Darcia Ferrari<br />

Association of <strong>Illinois</strong> Senior Centers, Putnam County Senior Center<br />

Many people do not know about senior centers. Senior centers encourage independent living<br />

for older adults. They offer educational, informational and recreational programs, health<br />

screenings, physical fitness, social services, hot meal programs, volunteer opportunities and<br />

employment opportunities for senior citizens. They also offer “circuit breaker” assistance,<br />

caregiver support, as well as linking seniors with many other agencies, such as alternatives for<br />

older adults and home healthcare. It is a very cooperative effort.<br />

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