Long-Term Care - Illinois General Assembly
Long-Term Care - Illinois General Assembly
Long-Term Care - Illinois General Assembly
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We have a program that many of our centers participate in that's a community reintegration<br />
program that works with people with disabilities to move them out of nursing homes. There are<br />
disturbing stories among these cases that demonstrate how some placements occur. One<br />
person had severe asthma and had one attack that landed her in the hospital. She didn't have<br />
air conditioning in her apartment, and rather than just look for a way to get her an air<br />
conditioner, she was put in a nursing home.<br />
A young man who suffered a spinal cord injury in an accident ran out of health insurance<br />
coverage for his rehabilitation. This particular young man had been waiting 5 years for that<br />
rehab and it never came.<br />
There is something missing in how we decide who goes into a nursing home. One of the things<br />
that the people who make decisions and policies in our state need to understand is that having<br />
a disability is not the same as being sick. With the right kind of services and supports, if you<br />
have a disability, you still can go out and have a very productive life. That might mean you need<br />
a personal assistant, who comes in and lifts you out of bed every morning and gives you a bath,<br />
but you still can do it.<br />
If you're 25 and you wind up in a nursing home, you tend think the same that it’s the end of your<br />
life, because that's the mindset. You don't go to a nursing home to live. You go there to die. It<br />
doesn't matter how old you are. If that's where you wind up, and you are surrounded by people<br />
who truly are sick and are older, it's not long before you feel that same way.<br />
Some of the problems in our system that we need to look at are things that would be much less<br />
costly than having somebody moved to a nursing home, including home modifications. Some<br />
aging people develop severe arthritis, or something that prevents them from being fully mobile.<br />
They may need a ramp on their house, or bars in the bathroom. It would make more sense to<br />
install these supports than to send these persons to a nursing home.<br />
The disparity of services between people under 60 and over 60 is another thing. If a person is<br />
under 60, they may be able to hire a personal assistant that enables him, or her, to live at home.<br />
This means the person can continue to have a really good life. If you're over 60, this option may<br />
not be available. The person can receive homemaker services, or other supports, but not<br />
personal assistants. That option is no longer available when the disabled person is older than<br />
60.<br />
It's time to return our nursing homes to what they're supposed to be, and to take people who<br />
don't need nursing home care and let them live at home with the supports they need.<br />
Darcia Ferrari<br />
Association of <strong>Illinois</strong> Senior Centers, Putnam County Senior Center<br />
Many people do not know about senior centers. Senior centers encourage independent living<br />
for older adults. They offer educational, informational and recreational programs, health<br />
screenings, physical fitness, social services, hot meal programs, volunteer opportunities and<br />
employment opportunities for senior citizens. They also offer “circuit breaker” assistance,<br />
caregiver support, as well as linking seniors with many other agencies, such as alternatives for<br />
older adults and home healthcare. It is a very cooperative effort.<br />
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