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A Guide to Implementing Best Practices in Person ... - cancerview.ca

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Navigation: A <strong>Guide</strong> <strong>to</strong> <strong>Implement<strong>in</strong>g</strong> <strong>Person</strong>-Centred Care September 2012<strong>in</strong>g volunteers. The competency framework<strong>in</strong>cluded three doma<strong>in</strong>s: Self-as-Naviga<strong>to</strong>r,Communi<strong>ca</strong>tion and Knowledge/Information(Lorhan et al., forthcom<strong>in</strong>g).For more <strong>in</strong>formation about the BCCAVolunteer Navigation Position Description,see Appendix L. For more <strong>in</strong>formationabout the BCCA Volunteer NavigationProgram, contact Shaun Lorhan(slorhan@bc<strong>ca</strong>ncer.bc.<strong>ca</strong>)Ongo<strong>in</strong>g support for peer/lay naviga<strong>to</strong>rs isnecessary. In the Canadian programs, supervisionis provided, as are regular debrief<strong>in</strong>g sessions. The cost advantages of us<strong>in</strong>g volunteers<strong>in</strong> this <strong>ca</strong>pacity must be reconciled with the need for professional supervision andsupport. The cost-effectiveness of volunteer Navigation is an area for future study.Evidence and EvaluationThere are few models <strong>to</strong> evaluate whether or how peer/lay Navigation makes a difference<strong>in</strong> people’s treatment experience, quality of life, survival or other aspects of the<strong>ca</strong>ncer journey. Further, little is known about its benefits compared <strong>to</strong> professionalmodels. To date, the evidence does not support one model over another. Giese-Daviset al. (2006) claim evidence from their study shows peer naviga<strong>to</strong>rs help reduce distress.Hohenadel et al. (2007) found that patients from their pilot program reportedimportant impli<strong>ca</strong>tions for emotional and physi<strong>ca</strong>l health. Programs <strong>in</strong> which peer/laynaviga<strong>to</strong>rs have been used <strong>to</strong> recruit participants for screen<strong>in</strong>g have found thatscreen<strong>in</strong>g rates improve (Freeman, 2006; Jandorf et al., 2005; Burhansstipanov et al.,1998). Importantly, evidence from various programs suggests that peer/lay Navigationhelps reduce barriers for marg<strong>in</strong>alized populations (Freeman, 2006; Ste<strong>in</strong>berg et al.,2006; Burhansstipanov et al., 1998).In Canada, evaluation has focussed on feasibility of and satisfaction with peer/laynaviga<strong>to</strong>r tra<strong>in</strong><strong>in</strong>g. The f<strong>in</strong>d<strong>in</strong>gs are limited be<strong>ca</strong>use the peer/lay programs are verysmall and the evaluation <strong>to</strong>ols are variable. More needs <strong>to</strong> be done <strong>to</strong> develop knowledge<strong>in</strong> this field. The Cancer Journey Program Logic Model and the Cancer JourneyQuality Improvement and Evaluation Framework <strong>ca</strong>n be adapted for peer/lay Navigationprograms <strong>to</strong> provide a start<strong>in</strong>g po<strong>in</strong>t for more robust evaluation (see Appendices Band J).ConclusionPeer/lay Navigation programs have, understandably, responded <strong>to</strong> particular needs <strong>in</strong>different contexts without wait<strong>in</strong>g for standardized models and often with limited resources.It seems that the task at hand is <strong>to</strong> cont<strong>in</strong>ue <strong>to</strong> learn from their successes andchallenges and <strong>to</strong> ma<strong>in</strong>ta<strong>in</strong> flexibility <strong>to</strong> differ<strong>in</strong>g needs, even while the service is consolidatedand systematized.22

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