Navigation: A <strong>Guide</strong> <strong>to</strong> <strong>Implement<strong>in</strong>g</strong> <strong>Person</strong>-Centred Care September 2012Relational cont<strong>in</strong>uityA therapeutic relationshipbetween a patientand at least one provider,who developsaccumulated knowledgeof the patient as a person,and bridges past,<strong>to</strong> current and future<strong>ca</strong>re.(Haggerty et al., 2003)- Initiat<strong>in</strong>g and ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g an ongo<strong>in</strong>g relationshipwith the <strong>ca</strong>ncer patient- Be<strong>in</strong>g easily accessible through the <strong>ca</strong>ncercont<strong>in</strong>uum- Mapp<strong>in</strong>g on the <strong>ca</strong>ncer trajec<strong>to</strong>ry how theprofessional naviga<strong>to</strong>r is <strong>in</strong>volved and untilwhen- Be<strong>in</strong>g part of an oncology team- Be<strong>in</strong>g trusted by health providers and team(s)membersSupportive and therapeutic relationshipsEngag<strong>in</strong>g <strong>in</strong> <strong>ca</strong>r<strong>in</strong>g and therapeutic relationshipswith <strong>in</strong>dividual patients and their familiesRelationships are supportive and sensitive <strong>to</strong>chang<strong>in</strong>g physi<strong>ca</strong>l and psychosocial-spiritualresponsesTo establish a therapeutic relationship withpatients/families by be<strong>in</strong>g a consistent l<strong>in</strong>kbetween the patient, the health team, thehospital, and community services throughoutthe <strong>ca</strong>ncer cont<strong>in</strong>uum To build a therapeutic relationship throughthe use of communi<strong>ca</strong>tion skills and engag<strong>in</strong>g<strong>in</strong> conversations that explore fears and concernsrelated <strong>to</strong> liv<strong>in</strong>g with <strong>ca</strong>ncer diseaseprogression , mortality, dy<strong>in</strong>g and sexualhealth issues Mak<strong>in</strong>g referrals <strong>to</strong> other health professionalsas appropriate Serves as a key contact for patients andfamilies at different phases of the patientjourney*Note: Doma<strong>in</strong>s of practice from Canadian Association of Nurses <strong>in</strong> Oncology (CANO)Dimension 2: Patient and family empowermentThe patient perceives the <strong>ca</strong>re providers as supportive partners <strong>in</strong> <strong>ca</strong>reConcepts Key Functions Doma<strong>in</strong>s of Practice* Core CompetenciesActive cop<strong>in</strong>gProcess of tak<strong>in</strong>g active steps <strong>to</strong>try <strong>to</strong> remove or circumvent thestressor or <strong>to</strong> ameliorate its effects.(Carver et al., 1989)- Assist<strong>in</strong>g the patient/family <strong>to</strong> activelyobta<strong>in</strong> <strong>in</strong>formation, support, and referralthey needed- Enhanc<strong>in</strong>g or re<strong>in</strong>forc<strong>in</strong>g the patient/family’ssenses of au<strong>to</strong>nomy (self<strong>ca</strong>re),and self-determ<strong>in</strong>ation through edu<strong>ca</strong>tionand support <strong>to</strong> ma<strong>in</strong>ta<strong>in</strong> their senseof control and quality of life- Enhanc<strong>in</strong>g recognition of patient/family’s<strong>in</strong>ner resources- Re<strong>in</strong>forc<strong>in</strong>g active cop<strong>in</strong>g- Facilitat<strong>in</strong>g problem solv<strong>in</strong>g- Facilitat<strong>in</strong>g decision mak<strong>in</strong>g- Sett<strong>in</strong>g and prioritiz<strong>in</strong>g goalsTeach<strong>in</strong>g and coach<strong>in</strong>gPrepar<strong>in</strong>g <strong>in</strong>dividuals with <strong>ca</strong>ncer and theirfamilies for the many different aspects ofthe <strong>ca</strong>ncer experienceProvid<strong>in</strong>g edu<strong>ca</strong>tion, psychosocial-spiritualsupport and counsel<strong>in</strong>g across the cont<strong>in</strong>uumof <strong>ca</strong>reDecision-mak<strong>in</strong>g and advo<strong>ca</strong>cyIn collaboration with other <strong>in</strong>terprofessionalteam members, facilitates selfdeterm<strong>in</strong>ationand <strong>in</strong>formed decisionmak<strong>in</strong>gfor <strong>in</strong>dividual and family. Advo<strong>ca</strong>teon behalf of the patient/family by communi<strong>ca</strong>t<strong>in</strong>gand document<strong>in</strong>g their preferredapproach <strong>to</strong> <strong>ca</strong>reTo provide <strong>in</strong>dividualized <strong>in</strong>formation andedu<strong>ca</strong>tion, based on their need, edu<strong>ca</strong>tionlevel and situation us<strong>in</strong>g evidence basedstrategies <strong>to</strong> help patients and familiescope Assess <strong>in</strong>dividuals read<strong>in</strong>ess <strong>to</strong> learn,learn<strong>in</strong>g styles, preferred depth of , androle <strong>in</strong>, decision-mak<strong>in</strong>g Be aware of different aspects of the <strong>ca</strong>ncerexperience and provide relevant“just <strong>in</strong> time” edu<strong>ca</strong>tion as well as re<strong>in</strong>forc<strong>in</strong>gedu<strong>ca</strong>tion given by others Possess sufficient knowledge <strong>to</strong> discuss <strong>in</strong>depth aspects of treatment options andside effects, disease process, and managementwith<strong>in</strong> various cl<strong>in</strong>i<strong>ca</strong>l and socialcontexts Possess negotiation and collaborationskills <strong>to</strong> enable appropriate advo<strong>ca</strong>cy onbehalf of patient\family Help patient mobilize their own resourcesand explore new ones Mobilize resources and services with<strong>in</strong><strong>ca</strong>ncer organizations and communities <strong>to</strong>address needs84
Navigation: A <strong>Guide</strong> <strong>to</strong> <strong>Implement<strong>in</strong>g</strong> <strong>Person</strong>-Centred Care September 2012Cancerself-managementSupport<strong>in</strong>g the person/family andre<strong>in</strong>forc<strong>in</strong>g his/her ability <strong>to</strong> acceptthe illness and rega<strong>in</strong> control,regardless of prognosis.(Bulsara et al., 2006)Supportive CareProvid<strong>in</strong>g the necessary servicesas def<strong>in</strong>ed by those liv<strong>in</strong>g with oraffected by <strong>ca</strong>ncer <strong>to</strong> meet theirphysi<strong>ca</strong>l, <strong>in</strong>formational, practi<strong>ca</strong>l,emotional, psychologi<strong>ca</strong>l, social,and spiritual needs. (Fitch, 2008)- Assess<strong>in</strong>g and moni<strong>to</strong>r<strong>in</strong>g symp<strong>to</strong>ms- Provid<strong>in</strong>g or facilitat<strong>in</strong>g symp<strong>to</strong>mmanagement- Assist<strong>in</strong>g and re<strong>in</strong>forc<strong>in</strong>g the patient <strong>in</strong>adjust<strong>in</strong>g <strong>to</strong> and manag<strong>in</strong>g their alteredhealth state and symp<strong>to</strong>ms pro-actively,not reactively, though timely and tailored<strong>in</strong>formation and self-<strong>ca</strong>re <strong>in</strong>structions- Re<strong>in</strong>forc<strong>in</strong>g self-<strong>ca</strong>re behaviors- Assist<strong>in</strong>g <strong>in</strong> follow<strong>in</strong>g <strong>in</strong>dividualizedtreatment and <strong>ca</strong>re plans- Support<strong>in</strong>g the patient/family <strong>in</strong> decisionmak<strong>in</strong>g and <strong>ca</strong>ncer transition(palliative <strong>ca</strong>re)- Support<strong>in</strong>g the patient/family on how <strong>to</strong>negotiate <strong>ca</strong>re (advo<strong>ca</strong>cy role)- Optimiz<strong>in</strong>g self-<strong>ca</strong>re <strong>ca</strong>pabilities/skills- Edu<strong>ca</strong>t<strong>in</strong>g, model<strong>in</strong>g and coach<strong>in</strong>g <strong>to</strong> facilitatepatient/family and team(s) membersbehavioral changes <strong>to</strong>ward patientcentered<strong>ca</strong>re (hospital and communityresources)- Provid<strong>in</strong>g access <strong>to</strong> supportive <strong>ca</strong>rethrough screen<strong>in</strong>g, assessment, direct<strong>ca</strong>re/<strong>in</strong>tervention, and referral- Screen<strong>in</strong>g for distress and conduct<strong>in</strong>gcomprehensive supportive <strong>ca</strong>re needs andresources assessment- Identify<strong>in</strong>g unmet supportive <strong>ca</strong>re needs- Edu<strong>ca</strong>t<strong>in</strong>g on distress and distressmanagement- Assess<strong>in</strong>g available support andre<strong>in</strong>forc<strong>in</strong>g it- Support<strong>in</strong>g patient/family <strong>to</strong> mobilizetheir own resources and <strong>to</strong> explorenew ones- Provid<strong>in</strong>g transitional support- Identify<strong>in</strong>g policies or structural barrierslimit<strong>in</strong>g access <strong>to</strong> supportive <strong>ca</strong>re and suggest<strong>in</strong>gways <strong>to</strong> address it- Assist<strong>in</strong>g and facilitat<strong>in</strong>g the developmen<strong>to</strong>f community and health <strong>ca</strong>re resources(leadership)- Referr<strong>in</strong>g (mobiliz<strong>in</strong>g resources and serviceswith<strong>in</strong> the <strong>ca</strong>ncer <strong>ca</strong>re organizationand the community <strong>to</strong> address unmet supportive<strong>ca</strong>re needs)Management of <strong>ca</strong>ncer symp<strong>to</strong>ms andtreatment side effectsIntegrat<strong>in</strong>g and apply<strong>in</strong>g <strong>in</strong>-depth knowledgeof <strong>ca</strong>ncer pathophysiology, diseaseprogression, treatment modalities, treatmentside effects and compli<strong>ca</strong>tions andsymp<strong>to</strong>m problems <strong>to</strong> assess plan, implementand evaluate the outcomes of bestpractices/evidence-based <strong>ca</strong>re and othercl<strong>in</strong>i<strong>ca</strong>l <strong>in</strong>terventionSupportive and therapeutic relationshipsEngagement <strong>in</strong> <strong>ca</strong>r<strong>in</strong>g and therapeuticrelationships with <strong>in</strong>dividuals who have<strong>ca</strong>ncer and their families. These relationshipsare supportive and sensitive <strong>to</strong>changes <strong>in</strong> physi<strong>ca</strong>l, psychosocial-spiritualresponsesTo work with the patient and family <strong>to</strong>understand and manage the <strong>ca</strong>re plan andassociated side-effects, symp<strong>to</strong>ms andcompli<strong>ca</strong>tions To understand the <strong>ca</strong>ncer experience and<strong>to</strong> engage <strong>in</strong> conversations comfortablyabout different needs, feel<strong>in</strong>gs, fears,concerns, losses that the <strong>in</strong>dividual andfamily may encounter throughout the<strong>ca</strong>ncer journey Prepares the patient/family <strong>to</strong> selfmanageand anticipate problems andissues associated with treatment sideeffects and symp<strong>to</strong>ms of standardtreatments Uses best practice/evidence based<strong>in</strong>terventions <strong>to</strong> prevent or m<strong>in</strong>imizeproblems/symp<strong>to</strong>ms as they occurTo identify multiple physi<strong>ca</strong>l, psychologi<strong>ca</strong>l,social, sexual and spiritual needs ofclients throughout the <strong>ca</strong>ncer cont<strong>in</strong>uumand provide supportive <strong>ca</strong>re <strong>in</strong>terventionsand referrals <strong>in</strong> a collaborative multidiscipl<strong>in</strong>aryapproach <strong>to</strong> <strong>ca</strong>re To identify, validate and prioritizepotential and actual physi<strong>ca</strong>l, psychologi<strong>ca</strong>l,social, sexual and spiritual needsthrough rout<strong>in</strong>e screen<strong>in</strong>g and assessmen<strong>to</strong>f clients Collaborate with all members of thehealth <strong>ca</strong>re team <strong>to</strong> facilitate theprovision of physi<strong>ca</strong>l and emotional<strong>ca</strong>re\support <strong>to</strong> patients and families Utilize communi<strong>ca</strong>tion skills and applyknowledge of family dynamics and diseaseprogression dur<strong>in</strong>g <strong>in</strong>teractions withpatient and family85