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ECHIM Final Report

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ICELAND<br />

Data availability by Country Report: 46% of ECHI shortlist indicators are available<br />

in international data sources. Much data are missing in all ECHI shortlist sections,<br />

but the availability is particularly poor concerning Health Status indicators, above all<br />

prevalences of various diseases and functional limitations.<br />

Data availability by ECHIM Survey: 60% of ES indicators are available at a national<br />

level. Health Status and Health Determinants data are largely missing, resulting from<br />

the fact that HIS have been very limited, and HES have not been conducted at all. For<br />

Health Care data availability is slightly better.<br />

Data availability in European context: Data availability in Iceland is among the lowest<br />

in Europe according to both CR and ES. The obvious reasons are the lack of HES and<br />

narrow HIS.<br />

Overall situation of data sources: Directorate of Health (www.landlaeknir.is),<br />

Statistics Iceland (www.statice.is), Social Security Institute, The Cancer Institute and<br />

The Icelandic Heart Association (www.hjartarannsokn.is) are the main public health<br />

data producers. In general their functionality and co-operation are fairly good. The<br />

exceptions are data collection from private practising specialists and in outpatient care.<br />

Data collection from private practising specialists is however under way at the moment.<br />

Health care centres, hospitals and nursing homes on the other hand routinely provide<br />

data. There has been a lack of standardised routine HIS in the past, one such survey<br />

was however conducted in 2007 by the Public Health Institute. The implementation of<br />

EHIS is still unclear. Record linkage is possible for the purposes of scientific research.<br />

However, permissions need to be obtained from the Data Protection Authority and<br />

The National Bioethics Committee before any links are made. The situation is likely to<br />

improve so that the permissions will be easier to obtain.<br />

Health reporting: The Directorate of Health collects data and compiles statistics on<br />

a number of health care issues, such as the utilisation of hospital and primary health<br />

care services. It also produces statistics on communicable diseases, other diseases and<br />

causes of death, on surgical procedures, induced abortions and sterilisations, as well as<br />

collecting data on prescription drug use, patient complaints and maintaining a national<br />

register on accidents. The data can be downloaded in English. Several institutions, such<br />

as the Social Insurance Institute publish annual statistics pertaining to their activities.<br />

They include statistics on the number of contacts with private practising specialists,<br />

disability benefits, cost of drugs etc.<br />

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