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ECHIM Final Report

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LUXEMBOURG<br />

Data availability by Country Report: 69% of ECHI shortlist indicators are available<br />

in international data sources. The ECHI shortlist sections for which there are most data<br />

missing are Health Status and Health Determinants.<br />

Data availability by ECHIM Survey: 58% of ES indicators are available at the national<br />

level. Data availability is significantly low regarding Health Status section. The main<br />

reason for this is that there has not been nationally representative HIS in Luxembourg,<br />

and the ES calls for prevalence data for most of those indicators. In Luxembourg, data<br />

are mostly incidence, since hospital discharges are the main source of data. In addition<br />

to that, data for various musculoskeletal disorders are lacking almost completely.<br />

While there has not been HES either, Health Determinants indicators are also poorly<br />

available.<br />

Data availability in European context: Data availability in Luxembourg is significantly<br />

lower than European average by ES, especially regarding the sections Health Status and<br />

Health Determinants. The obvious reason is that no national level HES or even HIS<br />

have been conducted in Luxembourg. On the other hand, data availability by the CR<br />

is very close to European average. Health Care data have higher scoring of availability,<br />

since there are register data available.<br />

Overall situation of data sources: The administrative structure of statistical system is<br />

decentralised, responsibilities are shared by the Ministry of Health (www.ms.etat.lu),<br />

the Social Insurance System, the Ministry of Social Security via its General Inspection<br />

of Social Security (IGSS, www.mss.public.lu) and the National Statistical Institute<br />

(STATEC, www.statec.lu). IGSS hosts most registers, but the Cancer Register<br />

(www.cancer-registry.lu) is a separate organisation. Other organisations include e.g.<br />

Luxembourg Information Network on Drugs and Drug Additions (RELIS, www.relis.lu).<br />

Implementation of EHIS is planned to start in 2009, as a part of the first national HIS.<br />

Record linkage is not possible because most of the registers (causes of death, perinatal<br />

health) do not register the personal identification number. It is possible to link different<br />

health data sources with the personal identification number (matricule) but a special<br />

authorisation is required by the National Commission for Data Protection. Linking<br />

health registers with use of personal identification number would surely improve the<br />

quality of information but the data protection law makes it difficult at the moment.<br />

Health reporting: Different organisations publish various topic specific reports online,<br />

but in French or German only: Ministry of Social Security (Social Security report),<br />

Ministry of Health (Causes of Death, Health Behaviour in School-aged Children 2001<br />

(on WHO methodology, in German)), RELIS (Drug report), Cancer Register (various<br />

studies and statistics, also in English).<br />

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