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ECHIM Final Report

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NETHERLANDS<br />

Data availability by Country Report: 75% of ECHI shortlist indicators are available<br />

as such in international data sources. The ECHI shortlist sections for which there are<br />

most data missing are Health Services and Health Determinants.<br />

Data availability by ECHIM Survey: 95% of ECHIM Survey indicators are available<br />

at national level. Most of the available data for Health Status and Health Care indicators<br />

are from registers. Most of Health Determinants indicators are from regular HIS. There<br />

are a couple of HES indicators for which there is no known regular source.<br />

Data availability in European context: Data availability in the Netherlands is among<br />

the best in Europe. Also data quality can be considered good. Fine-tuning of indicator<br />

definitions at the national level would likely further improve the availability figures.<br />

Overall situation of data sources: The number of data gathering and producing<br />

institutions is extremely large; there are more than 100 different organisations. Record<br />

linkage is possible between hospital data, municipal register and causes of death<br />

register, but it this endangered now by the breakdown of the diagnosis-related hospital<br />

information. Data are mostly not comparable as such, recalculations are needed for e.g.<br />

international databases. A centralised vision on data needs has been developed in the<br />

National Institute of Public Health and Environment (RIVM, www.rivm.nl), driven by<br />

the work on health reporting. However, for the Ministry of Health it is still not a priority<br />

to invest in a central strategy and stewardship concerning sustained data collection.<br />

Health reporting: RIVM is the institution primarily responsible for health reporting.<br />

The National Public Health Compass (www.nationaalkompas.nl; in Dutch only) is<br />

an advanced attempt in regular health reporting, pulling together data from different<br />

sources. The Dutch National Atlas of Public Health (www.zorgatlas.nl; partly in<br />

English) is an extensive collection of indicators from all areas of public health, and<br />

the data are visualised by thematic maps. In addition to the online health reporting<br />

applications, RIVM also publishes a wide range of printed reports, most notably the<br />

Care for Health; The Dutch Public Health Status and Forecasts Report. The Ministry<br />

of Public Health, Welfare and Sports hosts a database (www.zorggegevens.nl; in Dutch<br />

only) with extensive data and metadata, yet with no close ties with the data providers.<br />

Main problems: The hospital data system (ICD-based discharges etc.) is currently<br />

most problematic. The reason is the recent introduction of the unique Dutch approach<br />

DBC (Diagnostics-Treatment-Combination) that merges medical and administrative<br />

information and is not properly compatible with ICD. In the Dutch situation,<br />

primary care registers are considered the best source for the majority of diagnoses. For<br />

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