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politics first | Corridors<br />

September / October 2016 | www.politicsfirst.org.uk<br />

Preventing avoidable sight loss<br />

will be the focus this autumn<br />

Securing employment opportunities<br />

for deaf people<br />

Lord Colin Low, Co-Chair of the All-Party Parliamentary Group on Eye<br />

Health and Visual Impairment and a Crossbench Peer<br />

It is a surprising fact that people are needlessly losing<br />

their sight in today’s NHS. That is not down to the<br />

doctors who are working tirelessly, around the clock, to<br />

save the sight of their patients. It is due to the continued<br />

pressure being placed on the system by rising demand<br />

for services.<br />

Dr Eilidh Whiteford, Scottish National Party Group Leader on<br />

Social Justice and SNP MP for Banff and Buchan<br />

Reducing the disability employment gap is a huge<br />

challenge, so all steps to tackle it are welcome.<br />

Progress, however, will require more than a change<br />

in tone from policymakers. Over the last decade, the<br />

disability employment gap has grown whilst the overall<br />

employment rate has increased. That tells us that<br />

something is going badly wrong.<br />

Financial pressures are also having an impact,<br />

with NHS staff being asked to do ever more with<br />

fewer resources - a formidable challenge!<br />

The impact of sight loss on everyday life can<br />

be enormous. It can prevent people from driving<br />

and can lead to social isolation; it can stop them<br />

from continuing in paid employment and having to<br />

rely on benefits; and it can hamper their ability to<br />

self-administer medications for other conditions.<br />

Currently, there are almost two million people<br />

living with sight loss in the UK and this is set to<br />

double to around four million by 2050. The ageing<br />

population is the main reason for that increase,<br />

as the risk of developing a sight threatening eye<br />

condition increases with age. While that puts<br />

pressure on hospital eye departments, it is not<br />

the only factor. The rapid increase in the number<br />

of new eye treatments that are available is the<br />

other factor. That is a welcome development but<br />

it does mean that even more people are in the<br />

NHS system being treated for sight conditions.<br />

Since 2008, the number of new eye treatments<br />

approved for use on the NHS has outstripped<br />

many other specialties. Previously blinding<br />

conditions - many of which are chronic such<br />

as wet Age-related Macular Degeneration and<br />

Glaucoma - can now be treated. Those patients<br />

need to be monitored and treated regularly, often<br />

at four weekly intervals. That explains why there<br />

has been a 30 per cent increase in demand for<br />

hospital eye care services over the past five<br />

years, and why ophthalmology has the second<br />

highest number of outpatient attendances for any<br />

specialty across the NHS.<br />

So what is the impact of the increased<br />

demand on patient care?<br />

It is clear that the number of follow-up<br />

appointments required to manage chronic<br />

eye conditions is putting a strain on eye<br />

departments across the UK. Recent RNIB<br />

research showed that many return patients<br />

experienced hospital initiated delays to their<br />

appointments. So, for example, a number<br />

of wet AMD and Glaucoma patients were<br />

interviewed for the study and reported that<br />

their appointment was rescheduled (29 per<br />

cent of respondents) or cancelled altogether<br />

(12 per cent of respondents) during a 12<br />

month period.<br />

So do those delays result in needless sight<br />

loss?<br />

Evidence suggests that the answer to that<br />

is yes. Data from the National Reporting and<br />

Learning System, which collates patient safety<br />

incident reports, showed an eleven-fold rise in<br />

patients coming to harm between 2013 and<br />

2014. The data means that patients will have<br />

experienced unnecessary sight loss in one<br />

way or another.<br />

This March, The President of the Royal<br />

College of Ophthalmologists commented<br />

on a national study being conducted by the<br />

College. Its aim is to identify patients who have<br />

come to harm due to hospital initiated delays<br />

to follow-up appointments. Preliminary results<br />

indicate that 20 patients per month are coming<br />

to harm, suffering severe and needless sight<br />

loss, as a result of delays.<br />

Clearly, that situation cannot continue and<br />

something must be done.<br />

So far, the eye care sector has responded by<br />

publishing a number of guidelines, frameworks<br />

and calls to action to help address the problem.<br />

They include the recent Royal College of<br />

Ophthalmologists’ three step plan to help<br />

overwhelmed hospital eye departments cope<br />

with demand for services.<br />

Many of those documents, however, do<br />

not offer what providers and commissioners<br />

desperately need - workable solutions which can<br />

be implemented in their area. They want proven<br />

examples of where new models of care have<br />

improved patient outcomes and helped meet<br />

efficiency savings targets.<br />

That is why the All Party Parliamentary Group<br />

on Eye Health and Visual Impairment, which<br />

I co-chair alongside Nusrat Ghani MP, will be<br />

launching an inquiry this autumn. The aim is to<br />

identify practical solutions, share them with NHS<br />

providers and commissioners, and help them<br />

create sustainable improvements for NHS eye<br />

care and patients.<br />

The inquiry, and an upcoming Parliamentary<br />

reception, will provide parliamentarians with the<br />

opportunity to engage with this issue on behalf of<br />

their constituents. I hope they will join me in this<br />

endeavour to protect the sight of people living in<br />

the UK.<br />

People who are deaf or have hearing loss<br />

often face barriers when trying to access<br />

the Labour market. Research by YouGov<br />

commissioned by Action on Hearing Loss<br />

suggests that 35 per cent of businesses would<br />

not feel confident in effectively employing a<br />

person who is deaf or has hearing loss, while<br />

57 per cent of employers surveyed feel that<br />

there is a lack of support for those employing<br />

a person who is deaf or who has hearing loss.<br />

Yet, worryingly, 63 per cent of employers<br />

have never heard of Access to Work – the fund<br />

that is supposed to help employers meet the<br />

extra costs of employing disabled people.<br />

Maybe we should not be too surprised - the<br />

Work and Pensions Select Committee once<br />

dubbed the scheme as the “DWP’s hidden<br />

secret.” It is a missed opportunity. If the<br />

Government is really committed to halving<br />

the disability employment gap, it needs to<br />

provide employers with the support they<br />

need, and needs to publicise more widely<br />

existing measures like Access to Work that<br />

already work well.<br />

The vast majority of disabled people are<br />

able to work and want to work. Enabling them<br />

to access the labour market more easily<br />

should be pushing at an open door, but the<br />

‘one size fits nobody’ approach of recent<br />

years - like the Work Programme - have been<br />

far less successful than tailored, personcentred<br />

employment support services, like<br />

Action of Hearing Loss’s unique “Moving On”<br />

programme, which has delivered a 60 per cent<br />

success rate in leading people who are deaf<br />

or have hearing loss to positive destinations<br />

in employment.<br />

Jobseekers who are deaf or have hearing<br />

loss need personalised employment support,<br />

but the current system fails to provide<br />

adequate tailored support consistently. The<br />

Government’s long awaited new Work and<br />

Health Programme provides an opportunity<br />

to overhaul the barriers to work for many<br />

disabled people, including those who are<br />

deaf. Consideration must be given to the role<br />

that third sector providers - who are able to<br />

offer a more specialist, personalised service<br />

– can play, and their expertise in developing<br />

the new programme.<br />

If good quality employment support for<br />

jobseekers can be matched with quality<br />

support for employers, there is a winwin<br />

situation. There are tangible personal<br />

economic and social benefits to be gained<br />

from employment – but we need to provide<br />

practical support and advice to employers to<br />

improve their confidence in overcoming their<br />

preconceptions and making any adaptations<br />

which might be required. Encouraging<br />

small and medium-sized businesses to take<br />

on more disabled staff will be essential to<br />

reducing the employment gap but will only<br />

happen if the right support is available.<br />

Yet there are threats to progress. By 2018,<br />

employees in receipt of Access to Work grants<br />

will have their awards capped, which will have<br />

a disproportionate impact on people who are<br />

deaf, or have hearing loss. Those people<br />

benefit from Access to Work, providing BSL<br />

interpretation and communication support to<br />

allow them to be actively involved in all types<br />

of business.<br />

The UK Government is due to publish<br />

its long awaited Green paper on disability<br />

employment. The SNP will use this<br />

consultation process to talk about the real<br />

benefits of Access to Work, and tailored,<br />

personalised employment support services<br />

like Moving On. It is time that the UK<br />

Government matched that ambition and<br />

becomes truly committed to providing support<br />

to help disabled people into employment.<br />

In Scotland, we have a unique opportunity<br />

to change the ethos of social security. Our<br />

government has already committed to putting<br />

fairness, dignity and equality at the heart of<br />

our social security service – the devolved<br />

powers in this area may be limited, but it<br />

will be important to use them for maximum<br />

impact.<br />

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