Education and Training in Developmental Disabilities - Division on ...
Education and Training in Developmental Disabilities - Division on ...
Education and Training in Developmental Disabilities - Division on ...
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was very important to complet<str<strong>on</strong>g>in</str<strong>on</strong>g>g the FAP.<br />
The parents <str<strong>on</strong>g>in</str<strong>on</strong>g>dicated the FAPs would be difficult<br />
(if not impossible) to create without<br />
technical assistance <str<strong>on</strong>g>and</str<strong>on</strong>g> support. Although<br />
parents were not overwhelmed by the technology,<br />
<strong>on</strong>ly <strong>on</strong>e parent reported that she had<br />
created an edited movie prior to the project.<br />
Therefore, parents were <str<strong>on</strong>g>in</str<strong>on</strong>g> agreement that<br />
hav<str<strong>on</strong>g>in</str<strong>on</strong>g>g some<strong>on</strong>e who knew how to work with<br />
the technology was critically important to creat<str<strong>on</strong>g>in</str<strong>on</strong>g>g<br />
quality multimedia products.<br />
Parents enjoyed the pers<strong>on</strong>al freedom to<br />
make decisi<strong>on</strong>s about the c<strong>on</strong>tent of the FAP.<br />
Overall, they were satisfied <str<strong>on</strong>g>and</str<strong>on</strong>g> positive about<br />
the procedures used to develop FAPs. However,<br />
they did provide some c<strong>on</strong>structive suggesti<strong>on</strong>s<br />
for changes <str<strong>on</strong>g>in</str<strong>on</strong>g> the procedures. Suggesti<strong>on</strong>s<br />
<str<strong>on</strong>g>in</str<strong>on</strong>g>cluded giv<str<strong>on</strong>g>in</str<strong>on</strong>g>g parents more specific<br />
guidel<str<strong>on</strong>g>in</str<strong>on</strong>g>es <str<strong>on</strong>g>and</str<strong>on</strong>g> written <str<strong>on</strong>g>in</str<strong>on</strong>g>structi<strong>on</strong>s <strong>on</strong> what<br />
type of <str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong> to <str<strong>on</strong>g>in</str<strong>on</strong>g>clude when record<str<strong>on</strong>g>in</str<strong>on</strong>g>g<br />
video. Also, written <str<strong>on</strong>g>in</str<strong>on</strong>g>structi<strong>on</strong>s <strong>on</strong> specific<br />
technical aspects of the process (e.g., how<br />
to record the voice <str<strong>on</strong>g>in</str<strong>on</strong>g>put for the DVD) would<br />
have been helpful. In additi<strong>on</strong>, parents menti<strong>on</strong>ed<br />
the need for support when updat<str<strong>on</strong>g>in</str<strong>on</strong>g>g<br />
<str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong> <str<strong>on</strong>g>in</str<strong>on</strong>g> the FAP <str<strong>on</strong>g>in</str<strong>on</strong>g> the future, as the<br />
child grows <str<strong>on</strong>g>and</str<strong>on</strong>g> changes. With young children,<br />
certa<str<strong>on</strong>g>in</str<strong>on</strong>g> <str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong> <str<strong>on</strong>g>in</str<strong>on</strong>g> the FAP becomes<br />
outdated <str<strong>on</strong>g>in</str<strong>on</strong>g> a relatively short period of time.<br />
When asked about the social validity of the<br />
outcome, parents were very positive <str<strong>on</strong>g>and</str<strong>on</strong>g> satisfied<br />
with the three comp<strong>on</strong>ents of the FAP<br />
(i.e., scrapbook, DVD, <str<strong>on</strong>g>and</str<strong>on</strong>g> webpage). The<br />
book was portable <str<strong>on</strong>g>and</str<strong>on</strong>g> <str<strong>on</strong>g>in</str<strong>on</strong>g>cluded essential <str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong>,<br />
the movie was novel <str<strong>on</strong>g>and</str<strong>on</strong>g> showed<br />
children as they were <str<strong>on</strong>g>in</str<strong>on</strong>g> their natural envir<strong>on</strong>ments,<br />
<str<strong>on</strong>g>and</str<strong>on</strong>g> the webpage was someth<str<strong>on</strong>g>in</str<strong>on</strong>g>g that<br />
could be updated most easily <str<strong>on</strong>g>and</str<strong>on</strong>g> therefore<br />
has the potential to provide the most current<br />
<str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong>. Accord<str<strong>on</strong>g>in</str<strong>on</strong>g>g to the parents, FAPs<br />
provide different types of <str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong> than<br />
the st<str<strong>on</strong>g>and</str<strong>on</strong>g>ardized assessments typically used <str<strong>on</strong>g>in</str<strong>on</strong>g><br />
special educati<strong>on</strong>. When FAPs are used <str<strong>on</strong>g>in</str<strong>on</strong>g> c<strong>on</strong>juncti<strong>on</strong><br />
with traditi<strong>on</strong>al assessment <str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong>,<br />
a more holistic view of the child is presented.<br />
Parents reported us<str<strong>on</strong>g>in</str<strong>on</strong>g>g the FAP with<br />
IEP teams <str<strong>on</strong>g>and</str<strong>on</strong>g> meet<str<strong>on</strong>g>in</str<strong>on</strong>g>gs with new therapists or<br />
care providers (e.g., respite workers). Parents<br />
reported that reacti<strong>on</strong>s from people who<br />
viewed FAPs have been overwhelm<str<strong>on</strong>g>in</str<strong>on</strong>g>g positive.<br />
In additi<strong>on</strong>, after shar<str<strong>on</strong>g>in</str<strong>on</strong>g>g FAPs parents<br />
felt empowered <str<strong>on</strong>g>and</str<strong>on</strong>g> respected by educators<br />
because the FAP revealed how knowledgeable<br />
426 / <str<strong>on</strong>g>Educati<strong>on</strong></str<strong>on</strong>g> <str<strong>on</strong>g>and</str<strong>on</strong>g> <str<strong>on</strong>g>Tra<str<strong>on</strong>g>in</str<strong>on</strong>g><str<strong>on</strong>g>in</str<strong>on</strong>g>g</str<strong>on</strong>g> <str<strong>on</strong>g>in</str<strong>on</strong>g> <str<strong>on</strong>g>Developmental</str<strong>on</strong>g> <str<strong>on</strong>g>Disabilities</str<strong>on</strong>g>-September 2009<br />
they were about their child <str<strong>on</strong>g>and</str<strong>on</strong>g> how <str<strong>on</strong>g>in</str<strong>on</strong>g>vested<br />
they were <str<strong>on</strong>g>in</str<strong>on</strong>g> their child’s educati<strong>on</strong>. Parents<br />
also menti<strong>on</strong>ed that they have shared the<br />
FAPs with many others outside the educati<strong>on</strong>al<br />
system to communicate <str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong><br />
about their child, <str<strong>on</strong>g>in</str<strong>on</strong>g>clud<str<strong>on</strong>g>in</str<strong>on</strong>g>g sibl<str<strong>on</strong>g>in</str<strong>on</strong>g>gs, extended<br />
family members, babysitters, respite workers,<br />
friends, other families who have children with<br />
similar disabilities, <str<strong>on</strong>g>and</str<strong>on</strong>g> members of their religious<br />
communities.<br />
A few parents had c<strong>on</strong>cerns related to the<br />
use of the FAPs. One parent menti<strong>on</strong>ed that<br />
there was not enough time to view the DVD<br />
dur<str<strong>on</strong>g>in</str<strong>on</strong>g>g a meet<str<strong>on</strong>g>in</str<strong>on</strong>g>g with teachers <str<strong>on</strong>g>and</str<strong>on</strong>g> FAPs were<br />
better shared before a meet<str<strong>on</strong>g>in</str<strong>on</strong>g>g as opposed to<br />
at a meet<str<strong>on</strong>g>in</str<strong>on</strong>g>g. In additi<strong>on</strong>, a few parents menti<strong>on</strong>ed<br />
that they are not sure if/how the teachers<br />
utilized the <str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong> from the FAP to<br />
guide their teach<str<strong>on</strong>g>in</str<strong>on</strong>g>g (“if the teachers d<strong>on</strong>’t<br />
use it, there is no po<str<strong>on</strong>g>in</str<strong>on</strong>g>t for us to do it.” “They<br />
might use it, but I d<strong>on</strong>’t know about it”).<br />
Parents suggested hav<str<strong>on</strong>g>in</str<strong>on</strong>g>g a follow-up meet<str<strong>on</strong>g>in</str<strong>on</strong>g>g<br />
with teachers/therapists to answer any questi<strong>on</strong>s<br />
they have about their child <str<strong>on</strong>g>and</str<strong>on</strong>g> FAP <str<strong>on</strong>g>and</str<strong>on</strong>g><br />
to f<str<strong>on</strong>g>in</str<strong>on</strong>g>d out how the teachers/therapist use the<br />
<str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong>.<br />
Parent questi<strong>on</strong>naires. F<str<strong>on</strong>g>in</str<strong>on</strong>g>d<str<strong>on</strong>g>in</str<strong>on</strong>g>gs from parent<br />
questi<strong>on</strong>naires (Tables 2 <str<strong>on</strong>g>and</str<strong>on</strong>g> 3) corroborate<br />
the f<str<strong>on</strong>g>in</str<strong>on</strong>g>d<str<strong>on</strong>g>in</str<strong>on</strong>g>gs from the <str<strong>on</strong>g>in</str<strong>on</strong>g>terviews. All parents<br />
<str<strong>on</strong>g>in</str<strong>on</strong>g>dicated <str<strong>on</strong>g>in</str<strong>on</strong>g> the questi<strong>on</strong>naires that they<br />
agree that the FAP is an important tool for<br />
families of children with disabilities <str<strong>on</strong>g>and</str<strong>on</strong>g> that<br />
the FAP is needed <str<strong>on</strong>g>in</str<strong>on</strong>g> the field of special educati<strong>on</strong>.<br />
Parents also agreed that the FAPs enhance<br />
positive home-school communicati<strong>on</strong><br />
<str<strong>on</strong>g>and</str<strong>on</strong>g> help communicate <str<strong>on</strong>g>in</str<strong>on</strong>g>formati<strong>on</strong> about<br />
their child. When asked about the procedures<br />
used to develop the FAP, all parents <str<strong>on</strong>g>in</str<strong>on</strong>g>dicated<br />
that they were satisfied with the process of<br />
develop<str<strong>on</strong>g>in</str<strong>on</strong>g>g the FAPs, but two parents felt that<br />
develop<str<strong>on</strong>g>in</str<strong>on</strong>g>g the FAP was time c<strong>on</strong>sum<str<strong>on</strong>g>in</str<strong>on</strong>g>g <str<strong>on</strong>g>and</str<strong>on</strong>g><br />
required a lot of effort. Seven of the parents<br />
felt that to develop a good FAP, parents<br />
needed access to technical assistance.<br />
Similar to the <str<strong>on</strong>g>in</str<strong>on</strong>g>terview data, all parents<br />
<str<strong>on</strong>g>in</str<strong>on</strong>g>dicated <str<strong>on</strong>g>in</str<strong>on</strong>g> the questi<strong>on</strong>naires that they were<br />
satisfied with the f<str<strong>on</strong>g>in</str<strong>on</strong>g>al product of the FAP <str<strong>on</strong>g>and</str<strong>on</strong>g><br />
felt that the FAP is an effective tool that will<br />
<str<strong>on</strong>g>in</str<strong>on</strong>g>fluence the services <str<strong>on</strong>g>and</str<strong>on</strong>g> <str<strong>on</strong>g>in</str<strong>on</strong>g>terventi<strong>on</strong> a child<br />
will receive. The <strong>on</strong>ly outlier to this f<str<strong>on</strong>g>in</str<strong>on</strong>g>d<str<strong>on</strong>g>in</str<strong>on</strong>g>g<br />
was <str<strong>on</strong>g>in</str<strong>on</strong>g> regard to the follow<str<strong>on</strong>g>in</str<strong>on</strong>g>g negatively<br />
worded item: “It is unlikely that the FAP will<br />
<str<strong>on</strong>g>in</str<strong>on</strong>g>fluence special educati<strong>on</strong> services <str<strong>on</strong>g>and</str<strong>on</strong>g> <str<strong>on</strong>g>in</str<strong>on</strong>g>ter-