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Guidelines for a Palliative Approach in Residential Aged Care

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The reasons <strong>for</strong> malnutrition <strong>in</strong> older persons are multi-faceted and can even be associated<br />

with the process of age<strong>in</strong>g, which affects food <strong>in</strong>take and body weight and can be <strong>in</strong>tensified<br />

by illness or disease [176] (Level II). Depression and adverse medication side effects are the most<br />

common treatable causes of malnutrition. [181] Given the prevalence of depression <strong>for</strong> residents<br />

of RACFs and the high medication rates, these factors warrants specific attention [181] (Level<br />

IV). Advanced dementia, apathy, fatigue, and late-life paranoia (e.g. where the resident believes<br />

that he / she is be<strong>in</strong>g poisoned via food or fluid <strong>in</strong>take) are other potential factors <strong>in</strong>volved <strong>in</strong><br />

poor nutritional and hydration status of older persons. [176] There are also specific issues relat<strong>in</strong>g<br />

to eat<strong>in</strong>g, feed<strong>in</strong>g and nutrition <strong>for</strong> those with particular diseases or diagnoses. For example,<br />

Kumlien and Axelsson (2002) [182] (Level QE) reported that a quarter of stroke patients suffered<br />

from dysphagia and 30% had poor food <strong>in</strong>take and poor appetite. Older persons who have had<br />

a hip fracture tend to have a poor nutritional status, as do residents with COPD or Park<strong>in</strong>son’s<br />

Disease [183,184] (Level EO; Level III-3).<br />

The traditional practice associated with a palliative approach is that when <strong>in</strong>terest <strong>in</strong> food and<br />

fluid becomes m<strong>in</strong>imal the <strong>in</strong>dividual should not be <strong>for</strong>ced to receive them. [185] Indeed, eat<strong>in</strong>g<br />

and dr<strong>in</strong>k<strong>in</strong>g may no longer be relevant to the resident who has already withdrawn and whose<br />

attention is now more <strong>in</strong>ward. [186] For example, a study of 32 <strong>in</strong>dividuals receiv<strong>in</strong>g a palliative<br />

approach explored whether the provision of limited food and fluids (only <strong>in</strong> response to a<br />

request from the <strong>in</strong>dividual) would have an adverse effect on quality of life [185] (Level IV). The<br />

results <strong>in</strong>dicated that 60% (n = 20) reported that they never experienced any hunger or thirst<br />

and that most (n = 27) rema<strong>in</strong>ed ‘com<strong>for</strong>table’ requir<strong>in</strong>g only sips of water.<br />

The difficulties the aged care team experiences are often due to different views on basic human<br />

rights and whether <strong>in</strong>terventions to ma<strong>in</strong>ta<strong>in</strong> hydration and nutrition are <strong>in</strong>appropriate<br />

active medical <strong>in</strong>terventions <strong>in</strong>stead of a palliative approach [185] (Level IV). Family members<br />

may request that everyth<strong>in</strong>g possible be done <strong>for</strong> their relative, <strong>in</strong>clud<strong>in</strong>g treatments that are<br />

considered by care providers as <strong>in</strong>vasive or potentially burdensome, contribut<strong>in</strong>g to <strong>in</strong>creased<br />

suffer<strong>in</strong>g and discom<strong>for</strong>t <strong>for</strong> the resident. [185] The aged care team needs to be able to <strong>in</strong>itiate<br />

discussions with residents and their families about the pros and cons of artificial feed<strong>in</strong>g and<br />

hydration [187,188] (Level EO; Level EO). Additionally, the aged care team needs to be aware<br />

that the family may require support when they are faced with mak<strong>in</strong>g such decisions on their<br />

relative’s behalf [185] (Level IV).<br />

Adequate discussion with the resident and their family regard<strong>in</strong>g nutritional and hydration<br />

needs may help to alleviate the psychological and social distress often experienced. The aged<br />

care team member assist<strong>in</strong>g with feed<strong>in</strong>g should be seated at eye-level with the resident and take<br />

time to establish and ma<strong>in</strong>ta<strong>in</strong> a relationship with the resident to create an atmosphere that is<br />

conducive to relax<strong>in</strong>g the resident. This approach to feed<strong>in</strong>g enhances the resident’s nutritional<br />

<strong>in</strong>take and improves his / her social well-be<strong>in</strong>g [104] (Level III-1).<br />

Nonetheless, many people who are dy<strong>in</strong>g often receive <strong>in</strong>travenous fluids when they are no<br />

longer able to ma<strong>in</strong>ta<strong>in</strong> a normal fluid balance. [189] The ma<strong>in</strong> reason <strong>for</strong> this appears to be<br />

a belief that dehydration <strong>in</strong> a person close to death is distress<strong>in</strong>g. However, professionals<br />

provid<strong>in</strong>g a palliative approach generally consider that artificial nutrition and hydration may be<br />

detrimental. [185,186,189,190]<br />

88 <strong>Guidel<strong>in</strong>es</strong> <strong>for</strong> a <strong>Palliative</strong> <strong>Approach</strong> <strong>in</strong> <strong>Residential</strong> <strong>Aged</strong> <strong>Care</strong>

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