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Guidelines for a Palliative Approach in Residential Aged Care

Guidelines for a Palliative Approach in Residential Aged Care

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therapy, blood glucose monitor<strong>in</strong>g, PEG/nasogastric feed<strong>in</strong>g, and unnecessary medications.<br />

There is no s<strong>in</strong>gle description of an <strong>in</strong>dividual’s last hours of life, and the aged care team needs<br />

to be alert to <strong>in</strong>dividual differences and the resident’s reactions to their impend<strong>in</strong>g death. The<br />

family may also require more support at this time and the aged care team needs to be able to<br />

provide this. The aged care team is <strong>in</strong> a unique position to assist families <strong>in</strong> cop<strong>in</strong>g with the loss<br />

of a relative dur<strong>in</strong>g the dy<strong>in</strong>g process and after death has occurred [373] (Level QE). This support<br />

may need to be practical as well as emotional [399] (Level QE). (See Chapters 8 ‘Family support’,<br />

and 15, ‘Bereavement support’, <strong>for</strong> further <strong>in</strong><strong>for</strong>mation).<br />

The follow<strong>in</strong>g story highlights some of the responses residents and their families may have when<br />

fac<strong>in</strong>g imm<strong>in</strong>ent death.<br />

Vignette 17: Ann and Mr Wells’ family<br />

Ann, the nurse <strong>in</strong> charge, was aware that Mr Well’s death was imm<strong>in</strong>ent and she phoned<br />

the family accord<strong>in</strong>gly. Know<strong>in</strong>g the family, through her many discussions with them<br />

over the previous year, she was aware of the difference of op<strong>in</strong>ion between some family<br />

members regard<strong>in</strong>g the palliative approach to care and she knew that one daughter was<br />

concerned about the recent <strong>in</strong>troduction of opioids. Ann’s colleague thought it was “too<br />

late” to call a family meet<strong>in</strong>g: “Anyway, it’s not our bus<strong>in</strong>ess to get <strong>in</strong>volved <strong>in</strong> their family<br />

dispute!” Ann knew otherwise and gave the family this option: “You realise your father’s<br />

condition is deteriorat<strong>in</strong>g, and as I’ve expla<strong>in</strong>ed be<strong>for</strong>e, we can never predict precisely<br />

when death will occur. I’m aware some of you are uncom<strong>for</strong>table with the morph<strong>in</strong>e<br />

<strong>in</strong>fusion, so I wonder if you’d like to meet with the doctor and myself about 2.30p.m. It’s<br />

important that the whole team, which <strong>in</strong>cludes the family, agrees with the plan of care. It’s<br />

also important, particularly at this stage, to ask ourselves aga<strong>in</strong>, what is <strong>in</strong> your father’s<br />

best <strong>in</strong>terests? This meet<strong>in</strong>g will give you the opportunity to openly discuss any questions<br />

and concerns.”<br />

14.3 MEDICATION ISSUES<br />

Practical com<strong>for</strong>t measures are very important <strong>in</strong> manag<strong>in</strong>g end-of-life symptoms, and are<br />

often more effective than other <strong>in</strong>terventions. Medical <strong>in</strong>tervention is, however, frequently<br />

required <strong>for</strong> specific symptoms. Several medications are recommended <strong>in</strong> the next section, but<br />

<strong>for</strong> specific <strong>in</strong><strong>for</strong>mation such as dose levels relevant resources such as the Therapeutic <strong>Guidel<strong>in</strong>es</strong>:<br />

<strong>Palliative</strong> <strong>Care</strong> [109] or the Australian Medic<strong>in</strong>e Handbook Drug Companion <strong>Aged</strong> <strong>Care</strong> [147] should<br />

be consulted.<br />

RACFs, <strong>in</strong> consultation with GPs and local pharmacies, should develop strategies to ensure that<br />

residents who are approach<strong>in</strong>g death have ready access to common term<strong>in</strong>al phase medications.<br />

It is best to have the relevant medication orders and prescriptions ready <strong>for</strong> possible symptoms<br />

<strong>in</strong> the end-of-life phase. [109] For example, restlessness, delirium and excessive respiratory<br />

secretions are common symptoms that can develop quickly, so relevant medications should be<br />

readily available, with sufficient ranges of dose to deal with a worsen<strong>in</strong>g of symptoms; these<br />

should be ordered by the GP.<br />

When the resident is approach<strong>in</strong>g death, the use of oral medications should be reviewed. Some<br />

medications, such as hypoglycaemics, anticoagulants and antihypertensives, may no longer<br />

164 <strong>Guidel<strong>in</strong>es</strong> <strong>for</strong> a <strong>Palliative</strong> <strong>Approach</strong> <strong>in</strong> <strong>Residential</strong> <strong>Aged</strong> <strong>Care</strong>

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