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Guidelines for a Palliative Approach in Residential Aged Care

Guidelines for a Palliative Approach in Residential Aged Care

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CHAPTER 12<br />

SPIRITUAL SUPPORT<br />

De<strong>in</strong> and Stygall (1997) [364] (Level EO) explored whether be<strong>in</strong>g religious helped or h<strong>in</strong>dered<br />

<strong>in</strong> cop<strong>in</strong>g with a chronic illness, and dist<strong>in</strong>guished between religion and spirituality. Their<br />

review showed that religion is a common cop<strong>in</strong>g mechanism that may have a positive effect.<br />

The importance of an effective cop<strong>in</strong>g mechanism is that it could reduce the psychological<br />

morbidity associated with chronic and term<strong>in</strong>al illness, and there<strong>for</strong>e, to overlook the spiritual<br />

component of a palliative approach by ignor<strong>in</strong>g spiritual matters would be an omission of<br />

care [365] (Level EO).<br />

Spirituality’s role as a cop<strong>in</strong>g mechanism was supported by a review of studies deal<strong>in</strong>g with<br />

religion and spirituality [366] (Level EO). The reviewers found that most studies have shown<br />

that religious <strong>in</strong>volvement and spirituality seem to be associated with positive health outcomes.<br />

Six themes associated with spirituality have been identified: needs <strong>for</strong> religion, need <strong>for</strong><br />

companionship, need <strong>for</strong> <strong>in</strong>volvement and control, need to f<strong>in</strong>ish bus<strong>in</strong>ess, need to experience<br />

nature and need <strong>for</strong> a positive outlook [367,368] (Level QE; Level EO).<br />

Spirituality was found to be an important predictor of the quality of life of <strong>in</strong>dividuals receiv<strong>in</strong>g<br />

a palliative approach [367,369,370] (Level QE; Level QE; Level QE). Indeed, impend<strong>in</strong>g death is<br />

considered a powerful stimulus <strong>for</strong> reflection on the significance of life and dest<strong>in</strong>y <strong>for</strong> residents<br />

<strong>in</strong> RACFs [371] (Level IV). Provid<strong>in</strong>g spiritual support is a responsibility of the aged care team<br />

that must be fulfilled to enhance a resident’s quality of life [367] (Level QE).<br />

Research <strong>in</strong>dicates that people are receptive to carefully worded <strong>in</strong>quiries about their spiritual<br />

and religious beliefs [372] (Level QE) and that provid<strong>in</strong>g spiritual support was an area identified<br />

as important by families [373] (Level QE). Aspects of spiritual support <strong>in</strong>cluded staff talk<strong>in</strong>g<br />

about religion and spiritual matters, visits from clergy, and prayers. [373] Additionally, early<br />

assessment of the spiritual needs of residents is important and should not be relegated to a later<br />

stage of the illness.<br />

12.1 ASSESSMENT<br />

Spiritual assessment is an ongo<strong>in</strong>g process. Understand<strong>in</strong>g the resident’s current or desired<br />

practices, attitudes, experiences and beliefs assists <strong>in</strong> meet<strong>in</strong>g their spiritual needs [367] (Level<br />

QE). Un<strong>for</strong>tunately few spiritual assessment tools have been validated; however, one tool that<br />

has been validated is the System of Belief Inventory (SBI). [374] The SBI is a self-report <strong>in</strong>ventory<br />

that measures two doma<strong>in</strong>s: 1) Presence and importance of religious and spiritual beliefs and<br />

practices, and 2) the value of support from a religious / spiritual community. [374]<br />

The SBI orig<strong>in</strong>ally conta<strong>in</strong>ed 54 questions and was developed <strong>for</strong> use with cancer patients;<br />

however, the tool was revised to broaden the applicability to people with non-cancer diagnoses<br />

and to shorten the number of questions to 15 (SBI-15R) to reduce participant burden [375]<br />

<strong>Guidel<strong>in</strong>es</strong> <strong>for</strong> a <strong>Palliative</strong> <strong>Approach</strong> <strong>in</strong> <strong>Residential</strong> <strong>Aged</strong> <strong>Care</strong> 151

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