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Guidelines for a Palliative Approach in Residential Aged Care

Guidelines for a Palliative Approach in Residential Aged Care

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• Has the resident had a recent decl<strong>in</strong>e <strong>in</strong> functional status (e.g. bath<strong>in</strong>g, dress<strong>in</strong>g, mobility,<br />

verbal communication, energy level, and mood)?<br />

At some po<strong>in</strong>t the severity and number of symptoms may <strong>in</strong>crease, with the resident’s<br />

condition rapidly deteriorat<strong>in</strong>g. These situations may not allow <strong>for</strong> slower-paced discussions<br />

with the resident and their family. Nevertheless, the pr<strong>in</strong>ciples of symptom management<br />

should be followed to ensure that the resident is able to receive optimum com<strong>for</strong>t and relief of<br />

symptom distress (see Chapter 6, ‘Physical symptom assessment and management’). Regular<br />

communication with the resident’s other care providers becomes particularly important, and<br />

documentation of who is <strong>in</strong>volved <strong>in</strong> provid<strong>in</strong>g care needs to be current.<br />

Members of the aged care team also need sound <strong>in</strong>terpersonal skills and good listen<strong>in</strong>g abilities<br />

to help the resident talk through issues such as their wishes and hopes <strong>for</strong> the future <strong>in</strong> the<br />

context of their advanc<strong>in</strong>g illness. The transition through the decision-mak<strong>in</strong>g process may<br />

also be stressful and the resident and family should ideally be <strong>in</strong>volved <strong>in</strong> this process. Conflict<br />

between the resident and family members may surface or may even be exacerbated dur<strong>in</strong>g these<br />

times. The aged care team needs to help the resident’s family accept the decision of the resident<br />

whenever appropriate, because <strong>in</strong> most <strong>in</strong>stances the decision to accept a palliative approach<br />

should be the resident’s [39] (Level QE). However, the views of the family are also relevant and<br />

need to be understood [40] (Level EO).<br />

Guidel<strong>in</strong>e:<br />

When should a palliative approach be implemented?<br />

Ref No.<br />

Evidence level<br />

1. Methods used to identify survival time, such as physicians’ cl<strong>in</strong>ical<br />

predictions, have limitations <strong>in</strong> accuracy and precision result<strong>in</strong>g<br />

<strong>in</strong> overestimat<strong>in</strong>g survival. There<strong>for</strong>e, rely<strong>in</strong>g only on these<br />

methods to determ<strong>in</strong>e when to start a palliative approach is not<br />

recommended. <strong>Aged</strong> care team members need to be aware of<br />

this tendency to overestimate survival, to reduce residents’ and<br />

families’ potential distress.<br />

2. Attention to residents’ transition from active curative care to<br />

palliative care (with com<strong>for</strong>t care and symptom management)<br />

requires that aged care team members provide the resident and<br />

their families with sufficient <strong>in</strong><strong>for</strong>mation about the transition<br />

process to facilitate decision mak<strong>in</strong>g. This provision of <strong>in</strong><strong>for</strong>mation<br />

can reduce residents’ and families’ concerns and <strong>in</strong>crease their<br />

satisfaction regard<strong>in</strong>g the appropriateness of a palliative approach.<br />

38 IV<br />

24, 35 QE<br />

2.3 WHERE CAN A PALLIATIVE APPROACH BE<br />

PROVIDED?<br />

A palliative approach can be used <strong>in</strong> any sett<strong>in</strong>g, [41] and should ideally be provided wherever<br />

people who require this approach reside. There<strong>for</strong>e, RACFs may be an appropriate care<br />

sett<strong>in</strong>g because residents <strong>in</strong> RACFs face many of the same issues as others with a life-limit<strong>in</strong>g<br />

condition [42] (Level QE).<br />

<strong>Guidel<strong>in</strong>es</strong> <strong>for</strong> a <strong>Palliative</strong> <strong>Approach</strong> <strong>in</strong> <strong>Residential</strong> <strong>Aged</strong> <strong>Care</strong> 41

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