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2004 - 2007 - Cicely Saunders Institute - King's College London

2004 - 2007 - Cicely Saunders Institute - King's College London

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Barbara Gomes BSc MSc<br />

<strong>Cicely</strong> <strong>Saunders</strong> International PhD Research<br />

Training Fellow<br />

Barbara completed her first degree in Psychology and<br />

Health at the University of Porto, Portugal and an MSc in<br />

Palliative Care at <strong>King's</strong> <strong>College</strong> <strong>London</strong>. Having gained<br />

experience in research (in topics such as healthcare<br />

staff training, the integration of vocational guidance in<br />

the school curriculum and family influence on life<br />

expectations), she spent one year as a psychologist in a<br />

Portuguese palliative care unit. Together with Professor<br />

Irene Higginson she has been leading a long-term<br />

project supported by <strong>Cicely</strong> <strong>Saunders</strong> International<br />

aiming to understand where people die and to discover<br />

ways of empowering patients who wish to die at home.<br />

Barbara’s PhD is looking at ways of improving the quality<br />

of palliative care at home and to discover more costeffective<br />

models of home care. Barbara's interests and<br />

projects include: decision-making at the end of life<br />

regarding place of care and death, quality of care and<br />

patient-centred care, cost-effectiveness, the role of the<br />

media on public education about palliative care,<br />

symptom prevalence in advanced disease, understanding<br />

risk, trends analysis and the evaluation of palliative<br />

care services.<br />

Dr Marjolein Gysels MA PhD<br />

Senior Research Fellow<br />

Marjolein completed an MA at the University of Ghent in<br />

Belgium and received a PhD in anthropology at the<br />

University of Amsterdam in 1996. She has carried out<br />

research in the Democratic Republic of the Congo on<br />

Swahili and oral literature. She worked for the TANESA<br />

project on AIDS in Tanzania on female infertility and for<br />

the MRC (UK) Programme on AIDS in Uganda on<br />

commercial sex work. At King’s <strong>College</strong> <strong>London</strong>, she<br />

collaborated on the PROMOTE Project, and she worked<br />

on the Research Evidence Manual which is part of the<br />

NICE Guidance for Supportive and Palliative Care for<br />

those affected by cancer. Since September <strong>2004</strong> she<br />

has been co-managing a programme on breathlessness<br />

in advanced and progressive disease, which is primarily<br />

supported by <strong>Cicely</strong> <strong>Saunders</strong> International. She is<br />

currently also involved in the literature scoping on the<br />

delivery and organisation of generalist services for<br />

adults at the end of life for a project funded by NHS<br />

Service Delivery and Organisation (SDO).<br />

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