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Client-Centred Rehabilitation - Arthritis Community Research ...

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27<br />

3.2 Focus Group Results<br />

Table 1 summarizes the demographics of the<br />

focus group participants. The main themes<br />

that emerged from the focus groups were:<br />

individualization; participation in goal<br />

setting and decision-making, lack of<br />

preparation for life in the real world, the<br />

need for emotional support, and systems<br />

issues.<br />

Individualization vs routinized group work<br />

When participants were talking specifically<br />

about client-centred care they were usually<br />

talking about their rehabilitation programs<br />

being individualized and tailored to their<br />

particular needs.<br />

“but she (therapist) was very much<br />

into what was wrong with me and<br />

how she could tailor her help to<br />

make me better. So I felt she was<br />

very client-centred” ARTH #1<br />

“Well, I think they were very clientcentred.<br />

They were specific to me<br />

and specific to the need at the<br />

particular time” HIP/KNEE<br />

This theme of individualization applied not<br />

only to each person’s individual goals and<br />

needs but also to a consideration of the<br />

person’s condition.<br />

“As wonderful place as it is, I think<br />

that they have a very set way of<br />

doing things whereas they have<br />

physiotherapy, they have<br />

occupational therapy, they have pool<br />

therapy, they’ve got everything set<br />

up and it’s kind of for everybody.<br />

It’s very open. It’s not specifically<br />

for this type of problem.” ARTH #2<br />

In contrast, when they were talking about<br />

programs not being client-centred, they were<br />

often referring to routinized group work.<br />

“…everybody is doing the same<br />

thing, which is what they were doing<br />

before….so obviously it’s not clientcentred<br />

there. It’s management<br />

centred. It’s easier for them if<br />

everybody does the same thing then<br />

they don’t have to worry, oh you’re<br />

on that machine, you’re doing this.<br />

Maybe the number of repetitions<br />

change. But that’s obviously not<br />

client-centred”. MS #1<br />

“It’s not really patient based, it is<br />

sort of organization based. They’ve<br />

got the facility and they’re trying to<br />

fit you into their program.” ARTH<br />

#1<br />

<strong>Client</strong>s felt that lack of individualization to<br />

their specific condition was often related to<br />

lack of expertise on the part of staff,<br />

particularly for conditions such as ABI,<br />

<strong>Arthritis</strong> and MS. There was little or no<br />

questioning of the expertise of staff in SCI.<br />

The problem with us is that (ABI) is<br />

an unknown entity and it makes it so<br />

much more difficulty to obtain the<br />

correct treatment. How to get it.<br />

Where to get it. When to get it.<br />

How much to get – the whole thing.<br />

The physicians ought to know. ABI<br />

#1<br />

So I didn’t have a good experience<br />

with him because I don’t think he<br />

was knowledgeable about<br />

rheumatoid arthritis. HIPKNEE<br />

You see the problem is there aren’t<br />

enough professionals who have MS

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