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First EFIC® Symposium Societal Impact of Pain - SIP

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Sergi Blancafort<br />

Sergi Blancafort<br />

Training Manager at the University <strong>of</strong> Patients.<br />

Josep Laporte Foundation Autonomous University<br />

<strong>of</strong> Barcelona, sergi.blancafort@uab.es<br />

Degree in Biology at the University <strong>of</strong> Barcelona<br />

(1997). He is currently finishing his doctoral<br />

thesis in Sociology at the Autonomous University<br />

<strong>of</strong> Barcelona. He has also completed postgraduate<br />

courses in non-pr<strong>of</strong>it organization<br />

management and training management.<br />

He worked for seven years in clinical research<br />

(1997-2004). Since 2004 he has been the<br />

training manager at the Josep Laporte Foundation<br />

at the Autonomous University <strong>of</strong><br />

Barcelona. Between 2004 and 2007 he was<br />

the director <strong>of</strong> the Spanish Patients’ Forum.<br />

He has been involved in several national and<br />

international projects related with public health<br />

and clinical practice guidelines. He has published<br />

several articles and given several presentations<br />

on different topics related with patients’<br />

organizations advocacy and training<br />

programs in self-management. He has completed<br />

the certification as Master Trainer <strong>of</strong><br />

the Chronic Disease Self-Management Program<br />

at Stanford University (US).<br />

Benefits <strong>of</strong> self-management programs<br />

Health systems are facing deep social changes,<br />

such as the rise <strong>of</strong> a new model <strong>of</strong> patient and<br />

a transition <strong>of</strong> the patient-health pr<strong>of</strong>essional<br />

relationship towards a new deliberative model.<br />

Health administrations and institutions are promoting<br />

the joint responsibility <strong>of</strong> patients and<br />

users in self care, as well as an adequate use<br />

<strong>of</strong> health services and resources.<br />

The lack <strong>of</strong> health literacy is a common fact in<br />

developed countries, and it makes it difficult<br />

for patients and users to get involved in health<br />

decisions. However, there are few studies that<br />

have quantified and measured the prevalence<br />

and costs <strong>of</strong> low health literacy, particularly in<br />

Europe, as well as the effect <strong>of</strong> low literacy on<br />

the creation <strong>of</strong> inequalities in access to health<br />

care, particularly within vulnerable population<br />

groups such as the elderly, the disabled, lowincome<br />

people, and those who are at risk <strong>of</strong><br />

social exclusion.<br />

Self-management programs have shown benefits<br />

related to chronic patients’ health and<br />

daily life (managing symptoms <strong>of</strong> disease, acquisition<br />

<strong>of</strong> healthy life-styles, quality <strong>of</strong> life improvement,<br />

communication with health pr<strong>of</strong>essionals),<br />

as well as benefits related with health<br />

services and resources (better adherence to<br />

treatments, less visits to primary care and hospitals,<br />

shorter stays in hospitals).<br />

The University <strong>of</strong> Patients (UP) is an academic<br />

project promoted by Josep Laporte Foundation<br />

and the University Autonomous <strong>of</strong> Barcelona<br />

(UAB) in order to carry out training and research<br />

activities, and provide access to highquality<br />

health information to patients and users.<br />

Training programs <strong>of</strong> the UP are aimed at promoting<br />

responsiveness and self-care <strong>of</strong> chronic<br />

diseases, at achieving the necessary skills to<br />

talk and interact with health pr<strong>of</strong>essionals, and<br />

at helping patients, relatives and carers to<br />

navigate through the health system.<br />

Patients and users’ health, welfare and quality<br />

<strong>of</strong> life depend on healthcare, but also on their<br />

knowledge and skills related to the self-management<br />

<strong>of</strong> disease. Accordingly, people affected<br />

with chronic diseases are mainly responsible<br />

for the management <strong>of</strong> their health,<br />

and trained patients can help other patients<br />

to manage their chronic disease.<br />

Health literacy and training programs in selfmanagement<br />

<strong>of</strong> chronic diseases can become<br />

an essential part <strong>of</strong> the social capital <strong>of</strong> a population,<br />

can help reduce health inequalities and<br />

can be one <strong>of</strong> the most important contributions<br />

to the modernisation <strong>of</strong> health systems.<br />

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