dr. ronald e. mcnair acknowledgements - University of St. Thomas

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UST McNair Scholars Program Research Journal 16 Section two Understand musicians: Section three Patient Resilience Section three Understand that the show must go on: Section three Patients would have like more information “Yeah, I guess, maybe if they [doctors] can put in their mind, kind of move musicians in the same category as athletes, and that you really have to think about all the possible physical, I mean obviously they know the anatomy and what’s connected to what and that obviously is going to affect your playing.” “I just feel like, um, the medical community needs to have a little more understanding of what quality of life is for an individual person, not just the treatment but the… or the fact that, okay, yeah! You’re going to live, but are you going to live with the quality or with what you need to survive. Because living and surviving and being successful are really different things to everybody. You know what I mean. There are different qualities and different aspects that have to go into all those things. You know. Yeah, you can live but if you’re not living the quality of life or the success that you need for your life, then it seems a lot pointless.” The following quotes below reflect what patients wanted doctors to understand. The patients wanted to get back to their music as soon as possible and wanted the doctors to understand and aid them in this. “They told me after the biopsy, they said… no, you’re not going to want to go back to work. Well, fortunately I had a winter break so that wasn’t a problem. But then after the surgery, he said you’re not going to want to go back for a while. But I had a winter break, so I had a week off. But then I was right back at school on Monday. They couldn’t believe it. They’re like; you’ve got to be kidding. I said… No, I’ve got to work. So I did.” “I said well how long it is going to take to recover. She said most people lay up for about a week. I said, no I can’t do that. So I had the surgery on Friday and I was back at school on Monday. She couldn’t believe it. I was walking like bent over, but I was determined that I had to be back. So I guess I’m crazy, but that was pretty amazing.” “I wish they had told me maybe a little bit more about how bad chemo could really get. But they wouldn’t know that because everybody is different, some people breeze through chemo and I was, I flunked everything about chemo. I was the worst chemo patient ever. Everything that could go wrong did. I wish they had prepared me for that a little bit more.” “After surgery nobody told me that you can’t lift you arm. I mean they sort of said yea you might have a little stiffness, well hell I couldn’t put the dishes away, you know. The bowls that went up on the high shelf, I couldn’t put them away. They weren’t real big on telling me the treatment effects, they were just so focused on getting rid of the breast.” They would say here are some exercises, and here is a sling, goodbye, and see you later. They were kind of not real, maybe that’s not their job. They weren’t real specific on the fact that they were going to take lymph nodes out. It seems like everybody is real focused on their job. The surgeon is a surgeon and the radiologist is the radiologist. They can’t really do their job well if they don’t talk to the next guy, because it is all connected. You need all of them as the team. They often don’t seem to interact with each other. You just get sent to the next person for the next thing that was already found and they ask you the same questions.
Oluwademilade Adediran Psychology Mattering Section four More attention to survivorship Section four Long term care options The quotes below reflects a collective voice of the participant in the study. The women were experiencing difficulties such as neuropathy or chest pains after they were supposed to be cured. The women wanted long term care targeted at these issues which persist after treatments were over. “I don’t find a lot of attention to long term care and how are you and not that I think doctors have a lot of time to surround, mainly when I go to my oncologist appointment, now which I will in April, a few key questions will be asked and they will get my ****bones and see**** and they will check on the critical things and do I have cancer. There are no signs that I have cancer. And sometimes my oncologist does ask about my comfort level and I guess, I always kind of get the idea, you know, they are busy dealing with people who are dying from cancer, they are not all that concerned with how am I doing in the long term. And I have never said that I’m doing poorly. I have continued to pursue this soreness and each time I go in I say well, you know, can you, to begin with I wanted physical therapy and he was willing to, you know, write a prescription for that and the massage is helping so he took my massage person’s card, um, but I guess I would hope for a little bit more attention to the long term effects.” “I wish they had said a little bit more about what to do instead of just giving me this paper, here do these exercises maybe sort of.” “I see them [doctors] every 6 months. I see my surgeon and my oncologist and my radiation oncologist. And I have to tell you, I mean, I go on in my treatment there, the visits get quicker and quicker but if I need to know stuff they are very good about it.” I would hope for a little bit more attention to the long term effects. I am in the … medical system and they do have a newsletter that goes out to patients that have had breast cancer. I have seen more awareness developing in that of sort of like long term kind of thing, you know, exercise classes or what are the effects after you have had cancer 10, 5-10 years later. I have seen a little bit more attention given to talking about it but I haven’t heard a lot from my doctors. 5 years ago or so there was a point in which I was thinking, I should go back and she the surgeon because, um, yes they took care of the mastectomy, they took care of it and everything but I’m still having a lot of issues in that area and she should know about it. I felt like, wow, here it is, 9 years out and this surgeon should know what happened. You know, that I still have problems with these scar areas 17
Page 1 and 2: DR. RONALD E. MCNAIR Ronald E. McNa
Page 3 and 4: ABSTRACT The purpose of the present
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Page 21 and 22: ABSTRACT Early childhood education
Page 23 and 24: Kesha Berg Public Policy Enhancing
Page 43 and 44: ABSTRACT Human immunodeficiency vir
Page 45 and 46: Mondraya Howard Pharmacy HIV-1 Resi
Page 47 and 48: Mondraya Howard Pharmacy HIV-1 Resi
Page 49 and 50: ABSTRACT Food waste in the United S
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Chia Lee Public Health Health care
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Mai-Eng Lee Social Work Teachers’
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APPENDIX B INTERVIEW QUESTIONS Back
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dr. ronald e. mcnair acknowledgements - University of St. Thomas

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