Principles of Community Engagement (Second Edition)

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CTSA Community Engagement Key Function Committee Task Force on the Principles of Community Engagement (Second Edition) Donna Jo McCloskey, RN, PhD, National Center for Research Resources, NIH (Chair) Sergio Aguilar-Gaxiola, MD, PhD, University of California, Davis (Co-Chair) J Lloyd Michener, MD, Duke University (Co-Chair) Tabia Henry Akintobi, PhD, MPH, Morehouse School of Medicine Ann Bonham, PhD, Association of American Medical Colleges Jennifer Cook, MPH, Duke University Tamera Coyne-Beasley, MD, MPH, University of North Carolina at Chapel Hill Ann Dozier, PhD, University of Rochester School of Medicine and Dentistry Robert Duffy, MPH, University of California, Davis Milton (Mickey) Eder, PhD, University of Chicago, Access Community Health Network Paul Fishman, PhD, University of Washington Jo Anne Grunbaum, EdD, Centers for Disease Control and Prevention Sheila Gutter, PhD, Weill Cornell Medical College Karen Hacker, MD, MPH, Harvard University Michael Hatcher, DrPH, Agency for Toxic Substances and Disease Registry Suzanne Heurtin-Roberts, PhD, MSW, National Cancer Institute, NIH Mark Hornbrook, MD, Kaiser Permanente Center for Health Research Shantrice Jones, MPH, Centers for Disease Control and Prevention Michelle Lyn, MBA, MHA, Duke University Mary Anne McDonald, DrPH, MA, Duke University David Meyers, MD, Agency for Healthcare Research and Quality Barbara Moquin, PhD, APRN, National Center for Complementary and Alternative Medicine, NIH Patricia Mullan, PhD, University of Michigan Nancy Murray, DrPH, MA, University of Texas Health Science Center at Houston Ruby Neville, MSW, Substance Abuse and Mental Health Services Administration Cheryl Perry, PhD, University of Alabama at Birmingham Dana Sampson, MS, MBA, Office of Behavioral and Social Sciences Research, NIH Mina Silberberg, PhD, Duke University Meryl Sufian, PhD, National Center for Research Resources, NIH Stephen Updegrove, MD, MPH, Yale University David Warner, MD, Mayo Clinic Charlene Raye Weir, RN, PhD, University of Utah Sharrice White-Cooper, MPH, Centers for Disease Control and Prevention iv
Editorial and Research Staff Mina Silberberg, PhD, Duke University (Chair) Jennifer Cook, MPH, Duke University Cheryl Drescher, BEd, Duke University Donna Jo McCloskey, RN, PhD, National Center for Research Resources, NIH Sarah Weaver, MPH, Duke University Linda Ziegahn, PhD, University of California, Davis External Reviewers Barbara Alving, MD, FCCP, National Center for Research Resources, NIH Ahmed Calvo, MD, MPH, Health Resources and Services Administration Teresa Cullen, MD, MS, Indian Health Service William Elwood, PhD, Office of Behavioral and Social Sciences Research, NIH Carol Ferrans, PhD, RN, FAAN, University of Illinois at Chicago Sarah Greene, MPH, University of Washington Thelma Hurd, MD, University of Texas Health Science Center at San Antonio Laurel Leslie, MD, MPH, Tufts University Leandris Liburd, MPH, PhD, Centers for Disease Control and Prevention Doriane Miller, MD, University of Chicago Meredith Minkler, DrPH, University of California, Berkeley Jim Mold, MD, University of Oklahoma Sylvia L. Parsons, National Center for Research Resources, NIH Valerie Robison, DDS, MPH, PhD, Centers for Disease Control and Prevention Eduardo Simoes, MD, MSc, MPH, Centers for Disease Control and Prevention Bernard Talbot, MD, PhD, National Center for Research Resources, NIH Nina Wallerstein, DrPH, University of New Mexico Anne Willoughby, MD, MPH, National Center for Research Resources, NIH v
Page 1 and 2: PRINCIPLES OF COMMUNITY ENGAGEMENT
Page 3: TABLE OF CONTENTS CTSA Community En
Page 7 and 8: For further information on the CTSA
Page 9 and 10: FOREWORD As Surgeon General, I am p
Page 11 and 12: Executive Summary
Page 13 and 14: of Veterans Affairs, and other fede
Page 15 and 16: REFERENCES Ahmed SM, Palermo AG Com
Page 17 and 18: Chapter 1 Community Engagement: Def
Page 19 and 20: clinics, agencies, after-school pro
Page 21 and 22: The eligibility criteria that scien
Page 23 and 24: 2 Design and delivery—Improvement
Page 25 and 26: There is no question that culture a
Page 27 and 28: oot causes of problems while at the
Page 29 and 30: • Know the community, its constit
Page 31 and 32: • Coalitions require that each pa
Page 33 and 34: studies demonstrate that IRBs gener
Page 35 and 36: action at those levels This approac
Page 37 and 38: • S o c i e t y : Advocate for th
Page 39 and 40: According to Rogers, the characteri
Page 41 and 42: is the added value of CBPR to the r
Page 43 and 44: • It is important to understand c
Page 45 and 46: Butterfoss FD, Kegler MC (2002) Tow
Page 47 and 48: Flicker S, Travers R, Guta A, McDon
Page 49 and 50: Jones MR, Horner RD, Edwards LJ, Ho
Page 51 and 52: Minkler M Community organizing and
Page 53 and 54: Shore N Community-based participato
Page 55 and 56:
Yale Center for Clinical Investigat
Page 57 and 58:
Chapter 2 Principles of Community E
Page 59 and 60:
• Ask community members to specif
Page 61 and 62:
trust for a true partnership Such m
Page 63 and 64:
that affect health and health dispa
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difference in the health of the pop
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Chapter 3 Successful Examples in th
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59 TABLE 3.1. MATRIX OF CASE EXAMPL
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a mission statement written in the
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2. HEALTH-E-AME Background: The Med
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3. PROJECT SUGAR Background: Gullah
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Websites http://academicdepartments
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of the community context, developme
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5. HEALING OF THE CANOE Background:
Page 83 and 84:
6. FORMANDO NUESTRO FUTURO/SHAPING
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7. IMPROVING AMERICAN INDIAN CANCER
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and the mistreatment of some Americ
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access to resources for healthy eat
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9. THE DENTAL PRACTICE-BASED RESEAR
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10. DIABETES EDUCATION & PREVENTION
Page 95 and 96:
11. PROJECT DULCE Background: Diabe
Page 97 and 98:
References Gilmer TP, Philis-Tsimik
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milestones in child development, ch
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Chapter 4 Managing Organizational S
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engagement is not limited to coalit
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Practice Element 1: Know the Commun
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each capacity component for this pr
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REFERENCES Butterfoss FD. Coalition
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Table 4.1. Know the Community, Its
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Table 4.3. Build and Sustain Networ
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Challenges in Improving Community E
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ecommended public health practices
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community setting can be just as ri
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These challenges do not compare, ho
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halted its efforts to collect data
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mechanisms for communication, the c
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The researchers and the community b
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Horn K, McGloin T, Dino G, Manzo K,
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Take-Home Messages • Be explicit
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At meetings of the CAB, decisions w
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3. WORKING WITH NONTRADITIONAL COMM
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B. How do you engage a state as a c
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to those applying for funds The eva
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4. INITIATING A PROJECT WITH A COMM
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B. How do you set up and maintain a
Page 145 and 146:
References Blumenthal DS A communit
Page 147 and 148:
parties grew frustrated The partner
Page 149 and 150:
5. O VERCOMING COMPETING PRIORITIES
Page 151 and 152:
Reference Reifsnider E, Hargraves M
Page 153 and 154:
Take-Home Messages • “Splitting
Page 155 and 156:
Although the CTSA sites in the Bost
Page 157 and 158:
Chapter 6 The Value of Social Netwo
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Social networks can also play an im
Page 161 and 162:
engagement effort, relationships mu
Page 163 and 164:
engagement Furthermore, social medi
Page 165 and 166:
REFERENCES Arthur T The role of soc
Page 167 and 168:
Program Evaluation and Evaluating C
Page 169 and 170:
approaches to evaluation that are p
Page 171 and 172:
Several institutions have identifie
Page 173 and 174:
Planning Defining and identifying s
Page 175 and 176:
Once the positive outcome of a prog
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The major goal of empowerment evalu
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Table 7.1. Types of Evaluation Ques
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The evaluation of community engagem
Page 183 and 184:
for understanding a community and i
Page 185 and 186:
REFERENCES Anderson RM, Funnell MM,
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Patton MQ Qualitative evaluation an
Page 189 and 190:
Chapter 8 Summary Donna Jo McCloske
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• Know the extent to which the fo
Page 193 and 194:
Appendix A: Acronyms
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CDC Centers for Disease Control and
Page 197:
NIH Publication No. 11-7782
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