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A Roadmap for Hospitals<br />

Appendix E: Resource Guide<br />

10.Agency for Healthcare Research <strong>and</strong> Quality’s Health<br />

Literacy Universal Precautions Toolkit. Available at<br />

http://www.ahrq.gov/qual/literacy or http://www.nchealth<br />

literacy.org/toolkit.<br />

11.The National Action Plan to Improve Health Literacy.<br />

Available at http://www.health.gov/communication/<br />

HLActionPlan.<br />

Addressing the Needs of Lesbian, Gay,<br />

Bisexual, <strong>and</strong> Transgender Patients<br />

1. Gay <strong>and</strong> Lesbian Medical Association’s Guidelines for Care<br />

of Lesbian, Gay, Bisexual, <strong>and</strong> Transgender Patients has<br />

general guidelines on creating forms, information on staff<br />

sensitivity <strong>and</strong> training, <strong>and</strong> sample intake forms. Available<br />

at http://www.glma.org/_data/n_0001/resources/live/<br />

GLMA%20guidelines%202006%20FINAL.pdf.<br />

2. The Human Rights Campaign Web site has several<br />

resources including the following:<br />

• Sample nondiscrimination policy statements regarding<br />

sexual orientation <strong>and</strong> gender identity. Available at<br />

http://www.hrc.org/issues/12640.htm.<br />

• Breaking Down Barriers: An Administrator’s Guide to State<br />

Law & Best Policy Practice for LGBT Healthcare Access has<br />

recommendations on visitation policies, training on<br />

importance of advance directives for LGBT families,<br />

education for LGBT families about advance directives, <strong>and</strong><br />

medical decision-making. Available at http://www.hrc.org/<br />

documents/HRC_Foundation_-_Breaking_Down<br />

_Barriers_-_An_Administrators_Guide.pdf.<br />

3. The Boston VA Healthcare System’s policy “Management<br />

of Transgender Veteran Patients” provides sample<br />

background, definitions, <strong>and</strong> specific language regarding<br />

the appropriate treatment for transgender individuals.<br />

Available at http://www.tavausa.org/Management%20<br />

of%20Transgender%20Veteran%20Patients_7.08.pdf.<br />

4. The Fenway Guide to Lesbian, Gay, Bisexual <strong>and</strong><br />

Transgender Health from the American College of<br />

Physicians is a comprehensive resource intended for health<br />

care professionals, public health officials, researchers, <strong>and</strong><br />

policy makers working towards eliminating disparities in<br />

health care. Available at https://www.acponline.org/atpro/<br />

timssnet/catalog/books/fenway.htm.<br />

5. Straight for Equality in Healthcare from Parents, Families, <strong>and</strong><br />

Friends of Lesbians <strong>and</strong> Gays provides guidance for health<br />

care workers who want to be more comfortable <strong>and</strong><br />

responsive to the needs of the LGBT population. Available at<br />

http://community.pflag.org/Document.Doc?id=297.<br />

Providing Care at the End of Life<br />

1. Promoting Excellence in End-of Life Care is dedicated to<br />

improving health care for dying persons <strong>and</strong> their families<br />

through the work of innovative demonstration projects to<br />

address existing models of hospice <strong>and</strong> palliative care.<br />

Available at http://www.promotingexcellence.org.<br />

2. National Hospice <strong>and</strong> Palliative Care Organization<br />

provides free, easy-to-underst<strong>and</strong> resources on a variety of<br />

end-of-life issues. Available at http://www.nhpco.org/<br />

templates/1/homepage.cfm.<br />

3. National Comprehensive Cancer Network has developed<br />

clinical practice guidelines for the multidisciplinary<br />

treatment of physical, emotional, <strong>and</strong> spiritual distress as<br />

well as for palliative care, pain, <strong>and</strong> treatment for cancer<br />

by site. Available at http://www.nccn.org/professionals/<br />

physician_gls/f_guidelines.asp.<br />

4. The George Washington Institute for Spirituality <strong>and</strong><br />

Health provides a collection of resources for spiritual or<br />

religious assessment <strong>and</strong> end-of-life care. Available at<br />

http://www.gwumc.edu/gwish/soerce.<br />

5. The Duke Institute on Care at the End of Life provides a<br />

listing of resources for helping patients, families, <strong>and</strong><br />

professional caregivers cope with spiritual <strong>and</strong> religious<br />

issues at the end of life. Available at http://www.iceol.<br />

duke.edu.<br />

6. Last Words: <strong>Cultural</strong> Approaches to Death <strong>and</strong> Dying,<br />

commissioned by the Funeral Directors Association of New<br />

Zeal<strong>and</strong>, describes 32 ethnic, cultural, or religious approaches<br />

to death <strong>and</strong> dying <strong>and</strong> is intended for those who work with<br />

the dying <strong>and</strong> those wanting to care for <strong>and</strong> underst<strong>and</strong><br />

people as they approach death or deal with its aftermath. It<br />

offers insight into different cultural beliefs <strong>and</strong> practices<br />

including an explanation of particular foods, remedies, <strong>and</strong><br />

rituals that are important to different groups. An abstract of<br />

the book is available at http://citiesofmigration.ca/<br />

last-words-cultural-approaches-to-death-<strong>and</strong>-dying.<br />

7. The End of Life/Palliative Education Resource Center<br />

Web site includes a fact sheet (#154) regarding the use of<br />

interpreters in palliative care. Available at<br />

http://www.eperc.mcw.edu/fastFact/ff_154.htm.<br />

8. The Alzheimer’s Association Campaign for Quality<br />

Residential Care’s Dementia Care Practice Recommendations<br />

for Assisted Living Residences <strong>and</strong> Nursing Homes provides<br />

recommendations to improve the quality of care for<br />

residents with dementia in assisted living <strong>and</strong> nursing<br />

homes. Available at http://www.alz.org/national/<br />

documents/brochure_DCPRphase3.pdf.<br />

88

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