104the naïve user might still not recognize the dist<strong>in</strong>ction between WebMD’s own offer<strong>in</strong>gsand those of its sponsors.Evidence Support<strong>in</strong>g Specific DAsO’Connor et al. (2003), who exam<strong>in</strong>ed more than 100 DAs for people fac<strong>in</strong>g healthtreatment or screen<strong>in</strong>g decisions, concluded that:Those that have been evaluated <strong>in</strong> randomized controlled trials havehad positive effects on the decision mak<strong>in</strong>g process with improvedknowledge and realistic expectations, enhanced participation <strong>in</strong> decisionmak<strong>in</strong>g, lowered decisional conflict, reduced proportion rema<strong>in</strong><strong>in</strong>gundecided, and improved agreement between values and choice. . .. Patients, practitioners, <strong>in</strong>surers, and health policy makers may needmore empirical evidence about the effectiveness of decision aids beforetheir wide-scale implementation can occur (p. 16).They po<strong>in</strong>t out that few of the DAs available on the Internet have been evaluated,and that little is known about practitioners’ attitudes toward DAs or about the impactDAs have on communication between consumers and their cl<strong>in</strong>icians. All ofthese are issues that are especially critical to the development and use of DAs <strong>in</strong>mental health care.Most of the DAs to which the public currently has access have not been developed<strong>in</strong> research sett<strong>in</strong>gs, and have not been subjected to thorough study <strong>in</strong> terms of theirimpact on either decision-mak<strong>in</strong>g or cl<strong>in</strong>ical outcomes. As mentioned earlier, theboundary between the k<strong>in</strong>ds of DAs that are developed for research purposes, andformally tested, and those that are available to the public on the Web, usually forfree, is not a firm or clear one.DAs <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>As this paper has <strong>in</strong>dicated, there are relatively few aids available to guide decisionmak<strong>in</strong>g<strong>in</strong> mental health care. The majority of those that exist relate to depressionand seem geared to <strong>in</strong>dividuals with mild or moderate depressions. This section presents<strong>in</strong>formation the authors have been able to gather on exist<strong>in</strong>g mental health DAsand on the apparent barriers to creat<strong>in</strong>g more of them.Availability of DAs for <strong>Mental</strong> <strong>Health</strong>While most of the resources listed on the follow<strong>in</strong>g pages do not explicitly call themselves“decision aids,” they do fulfill that function: <strong>in</strong> l<strong>in</strong>e with the def<strong>in</strong>ition used <strong>in</strong>this paper, they help <strong>in</strong>dividuals understand the positive and negative implicationsof a medical decision. Many <strong>in</strong>clude <strong>in</strong>formation if not exercises that can help one<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions
105clarify one’s own values and preferences. Note, aga<strong>in</strong>, that this list is not necessarilyexhaustive, nor is it <strong>in</strong>tended to endorse any of the organizations named.<strong>Health</strong> Dialog. <strong>Health</strong> Dialog, as previously described, offers a library of severaldozen videos, <strong>in</strong>clud<strong>in</strong>g one titled Cop<strong>in</strong>g with Symptoms of Depression. The authorshave not viewed this video, but OHRI reports on its Web site that this DAmeets 11 of 14 content criteria, 8 of 9 development process criteria, and 1 of 2 effectivenesscriteria.The Cochrane Collaboration. OHRI, as previously noted, the Cochrane Inventorylists 343 identified DAs. Only three of these deal with any mental health issue, andall of those address depression. Two relate to decisions about tak<strong>in</strong>g medicationsfor adults and children, respectively, and both were developed by <strong>Health</strong>wise. Theyare available onl<strong>in</strong>e. The third depression DA is a proprietary one developed <strong>in</strong> theUnited K<strong>in</strong>gdom.<strong>Health</strong>wise via OHRI. OHRI, as previously discussed, offers a list of DAs and <strong>in</strong>dicatesthe extent to which each of them meets IPDAS criteria. It reveals, for example,that the <strong>Health</strong>wise DA titled, “Should I take medications to treat depression?”meets 8 out of 13 of the content criteria, 4 of 9 development process criteria, andneither of 2 effectiveness criteria (i.e., no research has been conducted on this DA).Mayo Cl<strong>in</strong>ic. The Mayo Cl<strong>in</strong>ic offers extensive <strong>in</strong>formation onl<strong>in</strong>e about a widevariety of conditions, <strong>in</strong>clud<strong>in</strong>g an explanation of various forms of depression and<strong>in</strong>formation on medications and their side effects. It offers many l<strong>in</strong>ks to further <strong>in</strong>formationabout medications, their side effects, and other forms of treatment.<strong>Mental</strong> <strong>Health</strong> Matters. <strong>Mental</strong> <strong>Health</strong> Matters, owned by Get <strong>Mental</strong> Help, Inc.,is a source of extensive <strong>in</strong>formation on mental health issues. Its goal is to “provide astructured source of <strong>in</strong>formation about mental health issues.” However, it <strong>in</strong>cludes asignificant amount of advertis<strong>in</strong>g, which consumers might f<strong>in</strong>d confus<strong>in</strong>g.Trilogy Integrated Resources. Trilogy has developed Network of <strong>Care</strong> for <strong>Mental</strong><strong>Health</strong> Web sites for hundreds of counties <strong>in</strong> 12 States. The sites offer, among otherth<strong>in</strong>gs, access to a large set of resources developed and ma<strong>in</strong>ta<strong>in</strong>ed by <strong>Health</strong>wise;l<strong>in</strong>ks to other mental health Web sites, support groups, and advocacy resources <strong>in</strong>the community; and <strong>in</strong>formation about best practices. They also offer <strong>in</strong>dividualsthe opportunity to ma<strong>in</strong>ta<strong>in</strong> their own personal records, <strong>in</strong>clud<strong>in</strong>g advance directivesand WRAPs on a secure site. These tools offer valuable guidance to professionalsand others dur<strong>in</strong>g times of crisis and transition. The Network of <strong>Care</strong> for <strong>Mental</strong><strong>Health</strong> Web sites were identified as model programs <strong>in</strong> the f<strong>in</strong>al report of the President’sNew Freedom Commission on <strong>Mental</strong> <strong>Health</strong>. The sites could readily <strong>in</strong>corporateDAs as they become available.<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions
- Page 4:
iiContentsIntroduction ............
- Page 11 and 12:
5outpatient commitment (Holmes-Rovn
- Page 13 and 14:
7Advantages• Practitioners can be
- Page 15:
9Section 2The Practice of SharedDec
- Page 22 and 23:
16Section 3SDM ResearchCurrent rese
- Page 24:
18Mental health care providers are
- Page 27 and 28:
21want mental health treatment or d
- Page 29:
23Some participants raised concerns
- Page 37 and 38:
31Section 6ConclusionsShared decisi
- Page 39 and 40:
33Fellowes, D., Wilkinson, S., & Mo
- Page 41 and 42:
35Power, A. Kathryn. (July 10, 2007
- Page 43 and 44:
37Appendix AResourcesThis list is p
- Page 45 and 46:
39Appendix BShared Decision-MakingM
- Page 47 and 48:
41Annelle Primm, M.D., M.P.H.Direct
- Page 49 and 50:
43Supplement 1Shared Decision-Makin
- Page 51 and 52:
45IntroductionThe consumer-driven r
- Page 53 and 54:
47Background: Definitions of SDM an
- Page 55 and 56:
49• Freedom to live in the commun
- Page 57 and 58:
51providers only (Wills & Homes-Rov
- Page 59: 53SDM for Schizophrenia TreatmentBu
- Page 63 and 64: 57I interact with my consumers; I f
- Page 65 and 66: 59ReferencesAdams, J. R., & Drake,
- Page 67 and 68: 61Elwyn, G., Edwards, A., Kinnersle
- Page 69 and 70: 63Murray, E., Pollack, L., White, M
- Page 71 and 72: 65Thistlethwaite, J., Evans, R., Ti
- Page 73 and 74: 67AbstractShared decision-making is
- Page 75 and 76: 69Confronting Critical Challenges:
- Page 77 and 78: 71into treatment should still be in
- Page 79 and 80: 73these approaches, people are more
- Page 81 and 82: 75consumers to engage with their pr
- Page 83 and 84: 77that were produced in the U.S., w
- Page 85 and 86: 79a healing partnership and develop
- Page 87 and 88: 81Shared Decision-Making in Mental
- Page 89 and 90: 83However, peer support requires st
- Page 91 and 92: 85ConclusionsImplementation of SDM
- Page 93 and 94: 87Fellowes, D., Wilkinson, S., & Mo
- Page 95 and 96: 89President’s Commission for the
- Page 97 and 98: 91Supplement 3Aids to Assist Shared
- Page 99 and 100: 93IntroductionSignificance of Share
- Page 101 and 102: 95In recent years, a variety of tec
- Page 103 and 104: 97• Provide balanced information,
- Page 105 and 106: 99Form of Access or AdministrationC
- Page 107 and 108: 101ences). Some of these Web-based
- Page 109: 103video about shared decision-maki
- Page 113 and 114: 107potential results, than on quant
- Page 115 and 116: 109Once again, however, it is worth
- Page 117 and 118: 111who belong to minority groups or
- Page 119 and 120: 113Hamann, J., Langer, B., Winkler,
- Page 122: U.S. DEPARTMENT OF HEALTH AND HUMAN